Posts by Adam Williams75

frozenraven11 said:Hey everyone 🙂...

I’m jumping on here because I finally, finally finished my nightmare of a journey, and honestly, I just want to help anyone else out there who’s suffering through the same hell I lived through for 14 whole years... It turns out my diagnosis was pudendal neuropathy—basically a one-sided injury to the rectal branch of the nerve. This whole mess started after some old fall on my tailbone combined with a nasty stomach bug, which was preceded by years of riding my bike without any kind of padded seat protection, you know? Ever since then, the pain would hit hardest right after using the bathroom, and sitting down was just pure torture. For 14 years, I bounced from specialist to specialist, mostly proctologists, but they kept slapping me with "levator ani syndrome" diagnoses... despite everything I did to fix it, nothing worked. By the last stretch, specifically starting last fall, the pain got so unbearable that I couldn't even sit or lie down anymore... I was basically living on heavy-duty opioids that didn't even touch the pain! I was stuck at home, trapped in bed, and honestly, suicide felt like the only way out left...

Can someone leave a number where those of us dealing with the same thing can reach out?

I didn't have the cash to fly overseas for treatment, so I had to exhaust every single option right here in the States. Finally, I ended up seeing Professor Duje Kovačević over at the Mayo Clinic, and he actually recognized my symptoms and the real diagnosis, offering surgery as the solution to the pain. As much as it was hard to believe that such a massive, life-altering problem could have a quick, simple fix, I agreed to the surgery because living like that just wasn't an option anymore... At the beginning of February this year, they removed the damaged rectal branch of my pudendal nerve, and after about ten days of a really rough recovery, the pain started backing off. A month later, I was totally pain-free, and I still am today... 🙂

The reason I'm posting all this here is because I want people to know that Professor Dujo Kovačević successfully treats pudendal neuralgia, and I want that info to be easy to find on Google for anyone suffering through these terrifying pains while doctors just stare blank at them... especially for people who can't afford expensive treatments abroad in places like Nantes, Belgium, or Arizona. Now, this condition can actually be treated right here in Washington, D.C., and covered by Medicare. It literally saved my life, and it could save others too, which is huge news for so many people...

Since I'm not exactly a tech wiz and I'm not online much, I'll leave my cell number here so anyone who wants more info or thinks I might be able to help can get in touch. I’d love to keep this thread active so it doesn't just vanish into thin air...

All the best,

Loredana

Dear Loredana, can you leave a number where we can contact you, those of us with similar or identical problems?

lonecanyon83 said:Hey everyone,
I wanted to ask for some advice regarding the syndrome mentioned in the subject line and how to handle treatment.

Does anyone have recommendations for a good trainer or physical therapist who specializes in this?
I've been dealing with this since 2016—basically, a muscle is pressing on a nerve, sending pain all the way down my leg. About a year ago, it started affecting my right leg too, and sometimes the pain is just unbearable. I try to avoid taking any pills unless the pain gets truly intense.

Sometimes stretching helps, but more often than not, it actually makes things worse...
If anyone has any experience with this, I’m open to anything. I've tried a few different types of massage and training sessions, but the pain always finds its way back.
I'm based in Cleveland, so if you know a specialist or a PT in the area who might be able to help, I'd really appreciate the lead.

Ugh, tell me about it, I'm going through the exact same thing. One doctor tells me it's piriformis syndrome, then another one swears it's nothing like that and claims it's actually an L5 issue or a herniated disc, so they just keep sending me from one specialist to another for endless exams and treatments... I'm just paying and paying, and half a year later, I still don't have a straight answer. I've blown way more $6.75 on all these tests (everything has to be private because if you go through the public system, you'll be waiting for months), seeing incompetent doctors who just rip me off without helping a damn thing. The American healthcare system can be such a nightmare. How much longer