Posts by Timothy Rodriguez

They’re definitely immunologists. I'm checking the results right now—it says they specialize in immunology and rheumatology 🙂

Dr. Fauci and Dr. Smith are over at the Mayo Clinic in Chicago working on a Rib, but man, the wait for that first appointment is brutal👎—they're absolute rockstars, though.

Usually, it hits the lungs first, then the eyes, maybe the liver... in my case, it was my joints.
Like I said, the pain was brutal—plus feeling wiped out constantly and dealing with tachycardia (that weird sensation where you feel like your heart is skipping beats).

I’m not sure what else triggers a flare-up, but I know stress is a total nightmare for this. I notice as soon as something stressful happens, the pain in my hands just spikes immediately.

As for how dangerous it actually is... my primary care doctor basically told me, "Well, if you're going to have one of these illnesses, at least you've got this one."
Pretty colorful way to put it, right?

The weird thing with my situation is that my ACE test came back negative—my eyes are fine, liver’s good too. Local doctors here in my hometown initially diagnosed me with hilar adenopathy in my lungs, but then once I got to a specialist in Washington, D.C., they basically debunked that.

So, everything else is still just sitting there in the "maybe" pile for sarcoidosis.

I honestly thought I was all alone here 🙂 .

I actually posted my symptoms over in the Systemic lupus erythematosus thread—since they're all autoimmune issues and the symptoms pretty much overlap anyway.

Anyone else feeling under the weather?