Posts by David Chavez8

I hope everyone managed to take advantage of the long weekend and get some much-needed rest. I certainly wasn't so lucky. I had everything planned out perfectly—a little bit of ocean breeze, plenty of sunshine, and just a chance to escape from everything going on lately—but then everything fell apart. An absolute crisis at work turned my break into a total grind.🙂
So, what else was I supposed to do besides surf? If I couldn't catch any waves, I might as well surf the web. I stumbled upon this site www.yasg.com, which you might have come across already, or maybe not. It seems like people everywhere are fighting these same battles. One thing I came across there that really caught my attention was the mention of drugs like Avastin and CPT11, which doctors sometimes prescribe after or when Temodal therapy isn't working as well as hoped. Some people report success, while others don't.
I did a little digging into Avastin, but honestly, most of the stuff I read in the American news was pretty negative, so I kind of lost interest.
Does anyone here know more about this? Specifically, is there any word on whether that combination is actually being used here in the States?
Best to everyone!

Nicole Edwards76, my heart truly goes out to you.
I’m not doing great today. There’s this overwhelming sadness that I can’t quite put into words. I guess the tide just turned. I managed to hold it together and stay brave for six days, but today, I just broke. It’s been feeling like this more and more lately. I’m hoping tomorrow might be a little easier.
As most of you know, Mom is doing okay for the time being. She’s walking, she’s talking. But honestly, sometimes it’s the small things that wear me down the most. Just hearing her voice... God, it hurts. Her voice is right there—so familiar and warm—and then my mind immediately drifts to what everything will be like when it’s all over...
I find myself on this forum every single day. Even though reading through these posts often leaves me in tears, there's this constant pull that keeps bringing me back here, over and over again.
Best,

Grace Fowler said:The pain has eased up a bit today, and I’m actually finding that food isn't my enemy right now. It feels good to be able to eat again. Honestly, dear friends, seeing you all here means the world to me. Even though some of my posts can get a little heavy or sad sometimes, being able to check in like this has become my daily therapy.
Hey everyone, it's Grace Fowler, hanging in there on the edge of the abyss.🙄

Get up, Grace Fowler, please... just get up! There are still so many beautiful things left for you to experience here.😘

Angela Wright said:... I truly believe that all malignant diseases stem from a combination of factors, but somehow, I find myself linking brain issues most closely to one's mental state. ...My mother was someone who struggled quite a bit emotionally; she was prone to depression and tended to see things on the losing side, even though she was a cheerful and social person. She was the only one left working... Being forced out like a technological relic into early retirement hit her incredibly hard, and after about 3...

I second this 101%. Unfortunately, in our situation, it all happened just three months after she retired, which makes our sense of despair feel even heavier.

Anonymous said:My aunt is 55. How is your mom holding up? Did she have surgery?

Yes, she had her surgery on April 11th. Let's just say my mom is doing okay for now—she's handling the treatments well, which I think is the most important thing at this stage. She still struggles quite a bit with concentration, especially when it comes to reading. It happens where she’ll read the same paragraph several times, and once she hits the end, she just starts over again without even realizing she already went through it. Still, I feel like things are improving slightly. She’s still pretty disoriented, though; sometimes she'll turn right when she meant to go left, or vice versa. And as a lingering effect of the illness, half of her visual field is gone, so she can't see anything on her left side (even though the tumor was actually on the right side, just above her ear). Because of that, she has a hard time noticing things to her left—especially parked cars. She keeps bumping into their side mirrors quite regularly.😳
I really hope medical science advances enough to finally put an end to this monster once and for all. 🙏
Best regards!

Anonymous said:I wonder why we haven't heard from you, Angela Wright... I really hope your mom is doing better.
Has anyone else here dealt with Glioblastoma within their own family?

My mom is the first—and I truly pray she’s the last—person in our family to face this awful disease, especially since she's only 55.
My grandfather had a sarcoma a few years back; he's still holding on, and if God wills it, he'll be turning 85 later this year.
Sending my best to everyone!

Angela Wright, ... I honestly don't have the strength to say anything more than this: please, just stay brave.

Anonymous said:... taking Biocil..😢

Could you please let me know how much Biocil costs? You can just send me a private message if that's easier. So far, I haven't been able to figure out where to buy it here in the States. Thanks.

Angela Wright, ... I honestly don't have the strength to say anything more than this: please, just stay brave.

Carol Sanchez2 said:...My mom starts her first round of chemo this Thursday, so we’re just sitting here waiting... She’ll be getting Aloxy to help with the nausea, so I’m really hoping that keeps the vomiting at bay.
We asked the doctor about using beta Glucan to help boost her immune system, but she basically said she’d never heard of it and warned us not to take anything without explicit permission!!?? 🙄

I honestly feel lost regarding what we should give her for her immunity. You look online and there are a million different suggestions, but you can't just keep cramming everything into her system... I really don't know what the best move is.
I think for now we'll just stick to the treatment cycle, plenty of fresh fruits and vegetables, and maybe some aloe vera juice...

Someone mentioned earlier that you shouldn't mix royal jelly with aloe vera juice—does anyone here actually know anything about that?

There has been a lot of discussion on here already about various dietary supplements and immune boosters that cancer patients have used before, during, or after chemo and radiation. Of course, none of these specific recommendations come from the hospital doctors.
I remember one time, while I was stopping by a local pharmacy looking for some "alternative" options, the pharmacist told me it isn't really advisable to take more than three different supplements at once. Her reasoning was that the body simply can't process all those ingredients if they are too numerous or too diverse, which makes sense when you think about it. She also mentioned that it's better to stick with one supplement for about three months to actually see an effect before switching to something else.
Based on the experiences shared by Angela Wright and other members, ever since my mom came home from her surgery, we've been giving her pure propolis and noni juice consistently. So far, she’s handling the treatments remarkably well; no nausea at all. Besides the prescribed Temodal and dexamethasone, she's also taking Reglan. I can't tell if this specific treatment regimen isn't as "aggressive" as others, or if she was just incredibly well-prepared going into it. One more thing I find really encouraging—her blood work looks solid.
Best wishes to everyone, stay strong and stay present!

Honestly, guys, the stupidity just never ends. Mom is continuing her home treatments, which makes sense. It means from Monday through Friday, we’re heading to the hospital for radiation and her Unknown + dexamethasone, and then on the weekends, we have to hit up the urgent care clinic just for her dexamethasone injection. We haven't actually sat Mom down to talk about the prognosis regarding her glioblastoma. Once she starts asking too many questions, my sister and I do our best to dodge the specifics—we basically just hedge and try to stay positive, encouraging her to keep fighting. Essentially, we’re doing everything we can to downplay how serious this really is.
Then, we walk into the clinic and some idiot nurse or doctor lets slip that Mom actually has a "benign" tumor and that everything is going to be fine. Of course, Mom lights up. She says she finally has hope. If I didn't pass out right then and there, I almost did. Look, I am all for support and encouragement, but this? I honestly don't know if I'm the crazy one here or what.
First, we get blindsided at the hospital by the surgeon, who wasn't subtle at all when he made it clear that this disease is incurable and that we're looking at a fight just to extend her life for maybe 18 months max. We spend days just trying to process that devastating news, and then we hear that the tumor is "benign." Obviously, no one would be happier to hear that if it were true, but this...
Sending love to everyone!

Grace Fowler said:Hey there! How's it going?
So, I’m all set for Monday. Chemotherapy starts then. I went ahead and shaved my head already, and I’ve finally picked out a wig... honestly, what can I even say? It’s just one of those things. But since I’ve been through this whole process once before, it doesn't feel like such a total mystery. I know exactly what the drill is. I’m just really, truly hoping that this time around goes as well as the last.
It’s just one of those things... it simply has to happen. There isn't really any other way around it.
Hey everyone, just wanted to say hello.

Whether you're wearing a wig or not, I truly believe you are beautiful!😘

So, Mom’s finally heading home today. We did two "trial runs" first to make sure we were ready, and now she's officially transitioning from hospital care to managing her therapies from home. Honestly, it feels like a step in the right direction. She seems okay—her blood work came back looking good, and mentally, she’s holding up relatively well, all things considered. We’re just taking it one day at a time and seeing how things go. Her doctor actually described her current condition as "excellent," which was such a relief to hear.
Regarding those "good blood results," I really hope they’re our own local ones. 😛 I honestly can't believe it, but after everything I tried, I finally managed to conceive. It was such a long road, and I ended up experimenting with so many different things. I was taking native propolis, consuming noni, drinking Taheebo tea, and I stayed on a strict regimen of Biotta juices—specifically the red varieties. I also made sure to include tomato juice and fresh cheese paired with just a little bit of flaxseed oil in my daily routine. After all that, it finally happened.
Hey there! Just wanted to say hello.

I’m really hoping this sudden silence isn't some kind of bad omen or a sign that something terrible happened.😕 Please, just check in when you can, even if you don't have the best news to share.😎

steelbadger83 said:...and she was getting Imel injections (she’s still on them because they have to be taken for five years)...

Could someone please explain a bit more about Imel? Specifically, regarding those Imel injections—where do people actually get them, how does the process work, and what is their exact role in the overall treatment plan for carcinoma?
Thanks!

therapy - hair loss - wigs
Mom is wrapping up her second week on Temodar. Since she had surgery back in April, part of her head where the incision was had already been shaved. Once we got home from the hospital, we decided to just shave the whole thing. Honestly, she didn't take the "loss" of her hair too hard. If anything, she actually kind of likes it. Her hair was always a bit thin anyway, and before all this started, she usually had this sort of "messy" hairstyle going on. Now, she looks like a little girl! As for getting a wig, we’re going to hold off for a while. Who knows, she might not even want one.
The hair hasn't really started falling out yet. To be honest, I'm not entirely sure how the process works with these kinds of treatments.
No nausea so far! She’s still sticking to her routine with raw propolis, Taheebo tea, Breuss's juices (beet, carrot, currant), and occasionally we sneak some Noni into the hospital for her.
Regarding other prognoses... those came after talking with the doctors without Mom in the room.
Best to everyone!

I’m moving forward... I have to... there is still so much left that I want to see... to do... to love... after all, I'm only 38.🙂

Wishing you all the luck in the world. Stay brave and keep pushing forward!!!😘

I find myself scrolling through this forum every single day, just reading... reading about everything we're all fighting against. Every day I feel this urge to chime in, to add my two cents, or maybe just vent for a second, but then I always end up hesitating and staying quiet.
My mom is nearing the end of her first week on Temozolide. So far, she hasn't been feeling too nauseous, though things got a bit heavy on the second day—one of the other patients passed away in her hospital room, and I think seeing that really shook her up. Or, honestly, maybe they’ve just bumped up her anti-nausea meds, so everything seems "under control" for now.
I've seen some of the comments floating around regarding our doctors. I wanted to weigh in, but I don't even know where to start. I'm not trying to question their medical expertise or anything, but it feels like some of them (just certain individuals, mind you) have lost that human touch. Trying to get even the simplest piece of information out of them can feel like a mission impossible. There are exceptions, of course, but they feel rare.
Angela Wright, how is your mom doing? Is she still dealing with that swelling in her arms? Have you tried using any herbal teas, like dandelion root? If you have, I really hope it's helping.
Wishing everyone the best.

goldenhound16 said:Hey, could you write out the recipe for making that drink?
thanks in advance👍

I have this one too, though there are some slight variations in the ingredients and how they're balanced.

Take about 30 decagrams of fresh Aloa cactus leaves and run them through a meat grinder. If you can, try to use a plant that’s between one and five years old—honestly, the older it is, the better. Also, a little tip from my own experience: make sure you haven't watered the plant for at least five days before you use it.
7 oz of all-natural red wine.
Two slices of pear.
400 grams of fresh spring honeycomb.
Half a liter of hard liquor.
Mix all the ingredients together in a dark glass bottle and let it sit in a cool, dark spot for five days. Once that time is up, strain the syrup. I always make sure to only pour out enough for one week at a time. Leave whatever is left in the bottle, keeping it tucked away in that same cool, dark place.
For the first five days, take one teaspoon three times a day, about an hour before your meals.
Then, about an hour before meals, take one tablespoon three times a day.
The treatment course typically lasts about three weeks, though I’ve found that sticking with it for two months is really what's recommended.

goldenhound16 said:Could you write down the recipe for making that tonic for me?
Thanks in advance👍

Take 300g of Aloe vera cactus leaves and run them through a meat grinder.
The plant should be at least 18 months old, and make sure you haven't watered it for about 5 days before using it.
700g of pure black wine
250g of chicory (you can find products from Frank-Chicago)
400g of honey with honeycomb included
(Depending on the specific version of the recipe, some people also add 2g of royal jelly and 40g of pollen, though it varies from person to person)😕 😕
500g of 96% alcohol

Mix all the ingredients thoroughly and pour them into a dark bottle (I’d recommend a 5-liter one) that seals tightly. Let it sit in a cool, dark place for 5 days.
After that, strain the liquid and follow this schedule:
- For the first week: one teaspoon three times a day, at least an hour before meals—though two hours is even better.
- For the following weeks: one tablespoon three times a day, an hour before meals. Once you get settled, continue with one tablespoon three times a day an hour before eating.

This gradual approach helps the body adjust to the preparation, because it cleanses the system quite intensely, which might lead to things like looser stools or similar effects.
You can use it for 3 months, take a short break of about 20 days, and then start again.

By the way, you can usually pick up the Aloe vera cactus at the Trešnjevec market!🙂

Carol Ramirez said:Decided to chime in since it seems like most people have gone quiet lately. 🙂

We're still in the thick of it over here. Grandpa finished six cycles of chemo, but now they've found some degenerative issues in his vertebrae/spine. He's scheduled for deep bone imaging on May 30th, and after that, he has to face an oncology board to figure out the next steps in his treatment plan.
He’s actually feeling a bit stronger lately, which has triggered this sudden mania of him wanting to visit every single relative we have. Given how spread out our family is across different cities, it's been a lot. Sometimes it feels like he’s just trying to prove to everyone that he's doing okay—trying to comfort his sisters and such—but other times, I can't help but feel like he might be saying his goodbyes.
As for me, I'm hanging in there. I'm trying my best to be like a genie from a magic lamp, maybe a slightly more advanced version that can grant more than three wishes. I’m still experimenting with various alternative treatments; honestly, my friends joke that I could probably open my own clinic at this point. So, that's where things stand...

Best to everyone 😍

hey Carol Ramirez, help me out!
Since I'm acting as a bit of a "parachute" here—not fully caught up on the specifics of what your grandfather is going through—I was wondering if you could share exactly what's happening and what kind of alternative methods you're looking into? They say a desperate person is willing to try anything, and honestly, I think I am too.