Living with Spondyloarthropathy
in Health ·
Joseph Doyle38 said:Good day,
It seems everyone here is navigating such different experiences—for my part, I was diagnosed with B27-positive spondyloarthritis about four months ago. My initial regimen consisted of sulfasalazine at 2x2 and indomethacin at 3x2, but after reviewing my follow-up labs, there hasn't been any real improvement; my ESR and CRP levels remain stubbornly high. Consequently, Dr. Peric decided to add Decortin to my routine—starting with three in the morning for fifteen days, then tapering down to two until my next check-up. As for the pain, it persists in my left big toe, my left hip, and my shoulder, while a general ache radiates through my entire spine. To be fair, the pain has lessened significantly since I started the indomethacin. I have attempted to skip doses occasionally, but I simply cannot fall asleep at night—the discomfort is most acute when I am at rest.
Now, I find myself in quite a dilemma regarding whether to proceed with the Decortin—it carries so many potential side effects, and being a glucocorticoid, it is essentially a hormone. Since I haven't had children yet, I feel a certain trepidation about starting this medication. Has anyone else here utilized it, and if so, how did your body tolerate it? Did you notice any hormonal shifts or similar issues? Furthermore, has anyone explored alternative medicine? While I am not one to believe in such things, the idea feels more appealing than the endless cycle of these pharmaceuticals.
Naturally, I am performing stretching exercises both in the morning and evening. What specific types of exercises have you all found effective? Does running offer any relief? My doctor has explicitly advised me against visiting any spas or hot springs.
Thank you.
I was diagnosed with spondyloarthritis just a month ago, so I'm in a very similar boat. Right now, I'm taking Decortin, sulfasalazine twice a day, and indomethacin three times a day, but I haven't seen any real relief. Without the indomethacin, the pain in my feet and my third toe is unbearable. I'm seriously considering stopping the Decortin because of how hard it hits the system.
I've been sticking to the stretching and breathing exercises that are typically recommended for spondyloarthritis. Personally, I don't think running does much for it; I feel like the stretching and breathing work are where the real benefit lies.
I might give alternative medicine a shot. I've heard people mention MMS, though I haven't met anyone who has actually used it specifically for this condition.