Posts by Austin Martinez10

Bokić
I was diagnosed with primary biliary cirrhosis back in July, and I have been a nervous wreck ever since. I would really appreciate it if you could call me, as I am not online very often and frequently miss messages. Please reach out if you have a moment
so you can explain everything to me in more detail. Just send me your number via message and I will call your landline. Best regards, and please get in touch as soon as possible.

ruggedhawk88 said:Listen, I find myself lurking in this thread quite often because my mom was diagnosed with primary biliary cirrhosis about a year and a half ago after having a biopsy done here in Washington, D.C. If any of you are looking for specifics or just need someone to bounce questions off of, I’m more than happy to share what we know.

Sorry, I haven't been online much. I am very interested in learning more because I was just diagnosed. They attempted a biopsy, but it wasn't successful due to fatty liver issues, so I am uncertain about the next steps. My doctor advised three months of rest while we wait on the results from my Ursofalka medication. Please
contact me at 202-555-0149 or 555-012-8894 so we can discuss this. Thank you.

Please forgive my delayed thanks. I have been deeply focused on studying PBC, as my English isn't great, and quite a bit of time passed while we were all researching together. There is truly so much information, though it is unfortunate that
not everything is clear to us. After looking into it more deeply, I have a better understanding of the situation. Now, I am simply waiting for the biopsy results to determine the extent and stage of the liver damage. I am heading to the coast to get away from everything and attempt to relax, if possible. Thank you once again. I may make mistakes; I am quite new to all of this and still learning how to navigate everything. My son helps me, though you know how difficult it can be to catch him. I manage on my own, and if I get stuck, he steps in. After all, I am
51 years old. Anyway, we will speak again if there is any news.

Hello
I am posting again because I am waiting to hear from anyone dealing with primary biliary cholangitis.
My liver has been diagnosed with primary biliary cholangitis.
Since this was my first time hearing about this condition, I have been terrified. I spent time on
various websites looking for information, but everything suggests this is a rare
and somewhat mysterious disease. I am scheduled for a liver biopsy at the hospital on September 20th. This will
determine the extent of the liver damage and how fast the disease is progressing. Therefore,
I am asking if anyone living with this condition can reach out to me.
I need to understand the prognosis regarding management, treatment, and all other details.
I am struggling deeply and my mental health has declined significantly. For context, I had
a hysterectomy and have been on hormone replacement therapy for five years, along with three years of
antidepressants. My doctor states the medication is not the cause. I have been off hormones for three months now, and I have also stopped taking antidepressants, which has made things even harder. Please contact me. It is hard to believe that I am the only one suffering from
primary biliary cholangitis. THANK YOU AND PLEASE HELP.

My apologies for the delayed response. Thank you for replying. I intend to wait for the biopsy results before deciding on next steps. It is a stressful situation, but there is nothing more I can do right now.
I am currently looking into Megalomin, as my doctor suggested it would be beneficial. I will share my results once they arrive. Please update me if you learn anything new. Bye.

I appreciate the support. I am genuinely quite anxious because no one has
reached out regarding this illness to let me know how it progresses or what the typical
course looks like. I will follow all instructions strictly to ensure my recovery. If there is any news,
please let me know.

It all started when my lab results showed elevated levels: AST at 42, ALT at 88 H, and GGT at 188 H. I decided to
pursue more testing. It was eventually determined that I have primary biliary cirrhosis. My AMA fluorescence came back positive at 1:1280, while the normal range is
1:80. I am waiting for a liver biopsy scheduled for September 20, 2007. My doctor explained that this is
a condition where the liver essentially attacks itself. There is no cure; the goal is simply to
slow the progression. I don't know anything else and I am feeling quite overwhelmed. I am 50 years old. Please
share any information if you know more about this. Thanks.