Living with cardiomyopathy
in Health ·
Hi 🙂
I'm 25, and I was diagnosed with HOCM three years ago. Since then, things have taken a turn for the worse, and now I'm looking at surgery. Back in August, I had a coronary angiogram with Dr. Margetić at the Mayo Clinic. He recommended alcohol ablation, but I turned him down—I told him I needed more time to weigh my options and wanted to get second opinions from specialists abroad who actually focus on cardiomyopathies. Luckily, I have someone close to me who has already been through everything I’m facing, but they should probably be weighing the choice between alcohol ablation (not here in the States, though) and septal myectomy.
Mainly, I'm curious about your experience with alcohol ablation, steelhound12. I'm glad to hear the surgery went well for you 👍
As goldencobra16 mentioned, there's this website www.cardiomyopathy.org run by a cardiomyopathy patient association. It has some great info and a forum specifically for people like us 😉 so we could move our conversation over there.
I'm 25, and I was diagnosed with HOCM three years ago. Since then, things have taken a turn for the worse, and now I'm looking at surgery. Back in August, I had a coronary angiogram with Dr. Margetić at the Mayo Clinic. He recommended alcohol ablation, but I turned him down—I told him I needed more time to weigh my options and wanted to get second opinions from specialists abroad who actually focus on cardiomyopathies. Luckily, I have someone close to me who has already been through everything I’m facing, but they should probably be weighing the choice between alcohol ablation (not here in the States, though) and septal myectomy.
Mainly, I'm curious about your experience with alcohol ablation, steelhound12. I'm glad to hear the surgery went well for you 👍
As goldencobra16 mentioned, there's this website www.cardiomyopathy.org run by a cardiomyopathy patient association. It has some great info and a forum specifically for people like us 😉 so we could move our conversation over there.