Living with cardiomyopathy
in Health ·
Hi everyone,
I’m starting a fresh thread because the old one has become such a mess—it’s hard to follow everything from heart surgeries to other topics. I really hope this community can offer some support to those dealing with a dilated cardiomyopathy diagnosis.
My dad has been struggling for a long time, but things have taken a turn for the worse lately. He's barely getting two hours of sleep a night because his heart keeps skipping beats and fluttering... his legs have turned a dark shade of blue, and he’s developed this soft lump on his upper back near the neck. Every single doctor we've seen says a heart transplant is the only way forward.
Does anyone here know if there's any way to avoid this? Any options at all?
He is absolutely terrified of hospitals, let alone the idea of a transplant. I've already sent his records over to several specialists in Germany, and they all come to the exact same conclusion—transplant.
Please help! Thanks in advance.
I’m starting a fresh thread because the old one has become such a mess—it’s hard to follow everything from heart surgeries to other topics. I really hope this community can offer some support to those dealing with a dilated cardiomyopathy diagnosis.
My dad has been struggling for a long time, but things have taken a turn for the worse lately. He's barely getting two hours of sleep a night because his heart keeps skipping beats and fluttering... his legs have turned a dark shade of blue, and he’s developed this soft lump on his upper back near the neck. Every single doctor we've seen says a heart transplant is the only way forward.
Does anyone here know if there's any way to avoid this? Any options at all?
He is absolutely terrified of hospitals, let alone the idea of a transplant. I've already sent his records over to several specialists in Germany, and they all come to the exact same conclusion—transplant.
Please help! Thanks in advance.