William Evans10 said:Hi everyone....I wanted to check in to hear from you all and perhaps vent a little about my own struggles...how are you doing? Blured, I hope you're holding up okay? These seasonal viruses are absolutely killing me; my son and I have been stuck with nothing but tissues and congestion for two weeks straight...but honestly, that’s the least of my worries. Some of you might know, and some might not, but my mother-in-law suffers from schizoaffective disorder...
The issue is that she has been bedridden for months now, just staring at the wall; she has lost at least 20 pounds, I'm sure, and spends her time just smoking and drinking coffee...she doesn't even shower, and there is absolutely no drive left in her life... It isn't that she is sad, per se, it's just that she has no emotions left; total apathy has taken over. We take her to her psychiatrist regularly, and she stays on her medication consistently. My husband and I set up a room for her, so she is living with us now. Her concentration is incredibly poor; she often can't even hear what I'm saying to her because her mind is wandering somewhere else entirely—I have to repeat myself several times before she finally registers. I can't even leave cigarettes on the table, because she will just stare at them, completely uninterested in anything else. I have to supervise her constantly because she simply isn't capable of being independent. Her motor skills are also declining. She is tidy and clean, and she eats only because I am constantly hovering over her; when she sits at the table, she just sits in silence and wants to go back to bed after two minutes. Unfortunately, none of the therapies seem to be working; they only keep things under control for a tiny window of time, and lately, I'm not even sure if they are doing that anymore. Her condition isn't plateauing, unfortunately, it is progressing. She is losing her grip on reality. She has no interest in people or anything else... she doesn't want to socialize, she doesn't want to go out... she just wants to lie in bed. This state took a sudden, sharp turn for the worse about two years ago...it was such a massive shock to our family. She hasn't experienced hallucinations yet, but I am terrified that...that they will come if this continues. The doctor says that with this specific medication...well, he says you can never truly know with these kinds of illnesses. I feel so angry and so sad, because I don't know how to help her, especially since there is so little information actually available to research regarding this specific illness...And I won't even begin to mention how much this is impacting my own mental state....it's a coma. 😢 People, how can I encourage her to start living even just a little bit? I'm not asking her to chat with neighbors or acquaintances...I just want her to talk to me. Is it that she doesn't want my help, or is she simply unable to? 😢 Anyway, she's had schizoaffective disorder since she was 25, but it has deteriorated so significantly over the last two years that they will likely change her diagnosis to schizophrenia...Forgive me for such a long post...I just really needed to vent...and I wanted to ask if anyone has any advice on how to make things even a little easier for her, or how we can all cope with this together? Is there any way to spark some movement in her before she drifts away completely?😢
Thank you....Warm wishes to everyone 👋
Look, I’ve been a veteran of psychosis for a long time, so I’ll try to give you some perspective.
People going through psychotic episodes usually don't trust science, and they tend to view psychiatrists as total idiots who don't understand a damn thing. That’s where the real trouble starts. They don't see their doctor as someone trying to help; they see them as some malicious person out to get them. They think the meds are poison or that they're rotting their brains, which is obviously a complete misconception.
The question is, how do you explain logic to someone who isn't operating on logic right now? Honestly, I don't think talking sense into her is going to do much at this stage. In many cases, people dealing with psychosis lean heavily into religion (whether they're devout Christians, Muslims, or just big into alternative spirituality) because it provides a sense of purpose or meaning. You might want to try adjusting your approach to fit that vibe. Maybe have her talk to a priest or a spiritual leader—someone she feels a connection to. They often speak a language she can actually process better than the clinical jargon of science. The bottom line is that she needs to believe in *something*. Every brain, whether it's functioning normally or not, is searching for meaning—some kind of belief that makes life worth sticking around for.
Look, you really gotta wrap your head around the fact that getting better isn't some overnight miracle—it’s a long, grueling grind. It took me a solid six months just to stop feeling like a total wreck and actually start functioning like a normal human being again. And for the love of God, do NOT—I mean, seriously, do NOT—just stop taking your meds out of nowhere. In like 90% of cases, trying to go cold turkey ends with a one-way ticket back to the hospital.