*** First off, sorry about my last post—I hit send by mistake, so could a moderator please just delete that?***
Hey everyone, reaching out after a long break (I used to post here about a year ago). I’ve been dealing with a massive cluster of issues: exhaustion, weakness, general malaise, and digestive problems—specifically pale, soft stools. On top of that, I get these localized abdominal pains that seem to migrate to different spots every few days. My skin is also acting up with a rash on my face, chest, and back, plus swollen lymph nodes, changes in my salivary glands, and dry eyes. These lymph nodes have been enlarged for about a year and a half now. I’ve had four neck ultrasounds; the first three showed nodes around 1.8cm, which stayed relatively stable, but during the seventh month, the ultrasound showed they were growing (the largest ones near my jawline hit 2.8cm and 2.0cm). I had a fine-needle aspiration done back in month five, and the result was reactive hyperplasia—basically benign changes (though I know an aspiration isn't 100% foolproof).
I recently saw a private endocrinologist who confirmed the swollen nodes and mentioned seeing some changes in my thyroid, suggesting we should shift the focus there. I ran all the thyroid tests they recommended, which you can see in the link I attached. Everything looks good except for my TSH, which was 5.6. Then, during another blood draw a little while ago, my TSH was around 5.5, which is confusing because—as you can see in one of the links—my most recent TSH reading, just a few weeks after that elevated one, was totally within the normal range.
The specialist thinks the node swelling might be due to the "inflammation" on my skin, which is incredibly dry and red around my nose and cheeks. I ended up seeing a private dermatologist who prescribed a corticosteroid cream. Honestly, after using it, my gut feeling—based on constantly checking the nodes—is that they feel slightly smaller, though I have to say the change is minimal. It's not like they vanished or anything. I have another neck ultrasound scheduled in two days. I’ve already consulted several ENTs and a couple of internists/immunologists, and none of them want to biopsy the nodes yet. We’re doing another aspiration in two days to check the status. Basically, the dermatologist sent me for the tests listed in the link; one of the big suspicions is lupus, and she also wants to rule out a gluten allergy or Celiac disease. It’s worth noting that my blood work has been pretty all over the place over the last year; specifically, my absolute lymphocytes tend to spike above the limit and then settle back down to normal. That's happened across my last six or seven KKS panels. If you look at the links, you'll see my leukocyte count was elevated in the second-to-last test, but everything returned to normal in the most recent one.
Since the dermatologist noticed my tongue was looking pretty white, she ordered a stool test for Candida. The results came back a few days ago, and it just says: "yeast to rise." Candida could definitely be the culprit here, especially since all these symptoms kicked off about a month after I finished a course of antibiotics for H. pylori in my stomach.
Regarding the CMV, toxoplasma, and EBV tests:
Toxoplasma IgM and IgG are negative.
CMV IgG is POSITIVE—98.7 (positive is >14); CMV IgM is negative.
EBV VCA IgM and IgG are negative.
EBV EA IgG is negative.
EBNA IgG is POSITIVE—160 (positive is >20). I'm not sure why the IgM isn't listed here.
So, why am I asking here? My primary care doctor basically ignores all my symptoms, and I’ve practically had to beg for every single test or just pay out of pocket to see specialists. Most doctors agree there's clearly something going on, but nobody can pin down what it is. I was hoping someone here could help me make sense of these results and tell me if this rules out any autoimmune diseases. *One photo I forgot to include shows my IgE at 61—the limit is 90, so that should be fine.
Seriously, I’m like a walking case for Dr. House. If anyone has any ideas on how all of this connects, I would be incredibly grateful. I know I dumped a ton of info on you, but I'm fully expecting my GP to just tell me everything is perfectly fine again.




