Calcified pineal gland
in Health ·
I’m currently under Dr. Melada’s care, and I've been getting an MRI at the Neuron clinic with Dr. Radoš every three months. On my first scan, the size was 12mm. Three months later, it grew to 15mm, and after a full year, it's still holding steady at 15mm. I'm taking a low dose of Trileptal—an anti-epileptic—to manage orbicularis oculi spasms and blepharospasm. These usually kick in during intense headaches due to facial nerve damage from childhood facial paralysis. Right now, the headaches are much more manageable, and I've stopped winking uncontrollably at everyone around me 🙂...Trileptal helps, but when those killer headaches strike, I either crush them with Maxalt or end up parked in a hospital for a day on a dexamethasone IV drip. My field of vision is narrowed by about 30%, and I'm dealing with double vision and blurriness. My ophthalmologist mentioned there's a chance things could improve after surgery, provided they don't get worse in the meantime—like developing Parinaud Syndrome or hydrocephalus if the cyst blocks the CSF flow...The current plan is to hold off on surgery. The neurosurgeon recommended that as long as I can control the other symptoms and disturbances with medication, we shouldn't touch anything; we just keep waiting and monitoring...By the way, the MRI also showed a hypertrophic cortical vein in the right temporal region, which is likely a vascular malformation they typically leave alone, along with some enlarged perivascular spaces...