Living with Interstitial Cystitis (IC)
in Health ·
Hey.
So, there are still some of us left in the States. I was diagnosed with interstitial cystitis a year ago—though I spent four years prior cycling through various failed treatments. Currently, I'm seeking care in Canada because I couldn't find anyone back home who actually specializes in this. Right now, I'm on Polyanion, the only specific treatment for IC, but despite it, things have taken a nasty turn and I'm feeling pretty desperate. It worked for about six months. Abroad, they tend to use customized drug combinations tailored to the individual. They also have pain specialists working alongside urologists, which makes sense; you probably noticed by now that standard painkillers don't touch this kind of pain.
There's still hope.
So, there are still some of us left in the States. I was diagnosed with interstitial cystitis a year ago—though I spent four years prior cycling through various failed treatments. Currently, I'm seeking care in Canada because I couldn't find anyone back home who actually specializes in this. Right now, I'm on Polyanion, the only specific treatment for IC, but despite it, things have taken a nasty turn and I'm feeling pretty desperate. It worked for about six months. Abroad, they tend to use customized drug combinations tailored to the individual. They also have pain specialists working alongside urologists, which makes sense; you probably noticed by now that standard painkillers don't touch this kind of pain.
There's still hope.