4 posts shown.
Drew Hughes10 said:Following our dermatologist's advice, we applied Protopic to our child's hands. It provided some relief—briefly—but the patches resurfaced within just a few weeks.
We spent three years battling atopic dermatitis, cycling through nearly every cream and bath soak imaginable, yet nothing seemed to stick.
On our pediatrician's recommendation, we traveled to see a specialist in Cleveland. The consultation ran about $50. We walked away with prescriptions for two custom creams, which we picked up at a pharmacy in Cleveland (totaling roughly $40). Though the packaging noted a 30-day shelf life, the doctor assured us they could be used as needed for at least six months—provided we kept them refrigerated. After applying them to her hands for about four or five days, the dermatitis cleared up completely. Over the following year, she had a few flare-ups; we applied the cream two or three times each time, and it worked perfectly every single time. In total, we only went through about 20% of the supply over that whole year.
Since the original expiration date had passed—and because the label specified a customized cream system—we asked our local pharmacy if they could compound it here to save us the trip back to Cleveland. They had no problem doing it. We didn't need a massive batch, so they made a small amount for us; one cream cost $60, while the other was $13.
Hello, what was your child's exact diagnosis? Also, would you mind emailing me the diagnosis and the specific ingredients used in the cream?
j.b.vicic@gmail.com Thanks so much in advance.
Joshua Brown58 said:Sorry I'm running a little late with this reply—that cream is called Acidosalus, and you can check out the full ingredient list over at www.naturecure.com/acidosalus.htm.
Thanks for the heads-up. I’m going to head over to San Diego to see if I can track down that cream; I definitely want to do some digging into its actual effects and how it works before I commit. To be honest, based on everything we've been through, we’re feeling a bit lost regarding what's actually worth using. If we do manage to find it, my plan is to sit down, read the instructions thoroughly, and have a real conversation with the pharmacist. It seems like every doctor has their own specific take on things. Our current physician recommended Protopic, but after seeing all the discussions here about potential side effects—which our doctor completely dismisses—I've learned to be cautious. Please, just stay smart about this. In any case, thank you.
Thanks for sharing that. I honestly find it hard to believe our doctors could be so uninformed or even just careless—claiming a cream is some kind of miracle cure when you can go online and find so many conflicting explanations about its supposed risks. To the lady I'm responding to: we’re doing our absolute best to avoid allergens, but you know how it goes—it feels like there's always something new popping up, yet the doctors insist everything has already been identified. I'm really at a loss as to whether I should stick with this cream or not, especially since everything else I've learned about seems even more harmful. Regardless, I truly appreciate the insight.
Hello, dear friends. I have a six-year-old child diagnosed with atopic dermatitis. He’s allergic to bananas and certain preservatives, which unfortunately manifests through his skin. We’ve been working with doctors on various creams, and some friends actually suggested we head out to Fresno to see a Dr. Smith, which we did. However, his approach there relied heavily on injections. After consulting with our pediatrician, we decided against it, as they felt that method was outdated and carried far too many side effects. Instead, the pediatrician referred us to a private dermatologist. After examining my child, he prescribed Protopic 0.1% cream. He reassured us that this cream doesn't have harmful side effects and can be used safely over a longer period. Since this specific cream isn't readily available here in the States—you basically have to order it and wait forever—we’ve been sourcing it in Austria, where we can get it immediately and at a much better price. The cream itself has been quite effective; while it doesn't "cure" the condition entirely, it definitely helps manage the symptoms and aids in the fight against atopic dermatitis. That said, I’ve been reading various accounts online regarding its efficacy and whether it's truly safe. I would be so grateful if anyone could share their personal experiences with Protopic, or if an experienced dermatologist here might be willing to weigh in with their professional perspective. Thank you all in advance.