Huntington's disease (chorea)
in Health ·
copperheron94 said:What have you all seen out there? At what age did those first subtle signs start showing up? It’s rare, sure, but when it hits a family, isn't it just absolutely devastating?
Some odd behavioral shifts and tremors started appearing three years ago. We got a medical diagnosis six months back. He’s on Eglonyl now, but I don't see any real improvement—if anything, he just sleeps more. He’s exhausted, lazy, to put it bluntly. He was always such a good person, and he still is, so I don't get how they link this to aggression... who knows what's ahead? The disease surfaced at age 50. How long has this miserable illness been part of your lives? What happens to the kids? Where are you getting treatment? Which specialists or alternative medications should we look into? I read somewhere that if you start treatment early enough, it doesn't have to be quite so fatal. Does anyone know about the CAG triplet count from genetic testing? If you know of anything that actually helps improve quality of life, please let me know.
As a family, we're holding up okay for now, but I haven't slept a single night. I can't even wake up without my mind racing.