lonebadger6 said:What bothers me most about this whole thing is that we're talking about a five-year-old, yet the parents are stuck fundraising. What is Medicare even for? Why the hell are we paying into health insurance if they can't cover an operation for a five-year-old child!?
The issue is that since Medicare technically covers this procedure, you have no grounds to seek funding for it abroad unless you pay out of pocket.
They were hoping Nicole's sister would be a compatible donor so they could just do the surgery here, but unfortunately, she isn't a match. Now they have to find an unrelated donor, which won't happen in the US anytime soon... our system is still in its infancy regarding this. It actually occurred to me that I should go donate blood just to make sure I'm in the registry...
The other problem is that our hospitals lack everything from the right equipment and meds to enough specialists in this field. Not surprising, really, given how few cases like this pop up in America every year (there are different types of leukemia, and Nick has the toughest one😢—plus, this disease tends to recur, which makes things even harder)... basically, our doctors just don't have enough experience. Even with what little experience they do have, the success rate isn't great. It’s especially sensitive because it’s a child, and I heard that after the surgery, there aren't even pediatricians on the ward, just internists. Quick, decisive action after surgery is everything. If they left him here, I think they'd practically be signing his death warrant. Whatever. We were a poor country, and the American healthcare system doesn't see much point in investing in something it won't benefit from...
I don't think any parent would leave their child to be treated under these conditions; they'd try everything to secure the best care. This diagnosis is brutal enough as it is, even for top-tier clinics. There are statistics for successful transplants—the percentage isn't massive, but it's not so low that you'd give up. But again, those stats apply globally, not specifically to America...
Except those quotes from foreign hospitals are terrifying. One clinic in Germany sent a quote for 300,000 euros.😲
Luckily, there are some that are "only"😁 150,000 to 200,000 euros.