Steven Cox5 said:Hey. Just wanted to drop a note that I finally got a diagnosis. It's microscopic lymphocytic colitis. My colonoscopy looked normal, but once the biopsy results came back, they described half a page worth of inflammation stretching all the way from the terminal ileum down. Currently on Budesonide 3 x3 mg for 6 weeks, sticking to Modulen, some basmati rice, and fish broth—just water for me since meat upsets my stomach. Still feeling pretty rough, though. Had a massive bleed, but my OB/GYN managed to stop it with birth control. We'll see how things go; my GI mentioned maybe adding Imuran if this doesn't work. Just wanted to share that we finally have an answer!
Hey Steven Cox5, how are you doing? Hope you're holding up okay... reading your post, I honestly can't believe everything you've been through. It's pathetic how incompetent those doctors were, and even worse that they didn't seem to care enough to act faster before things got this bad. It's insane how long it takes them to get a diagnosis. Which hospital did you go to? Let us know so we stay far away from there... Best.