Posts by Amanda Stewart45

Listen, I’m hardly ever on this forum, so if anyone wants to get in touch, just find me on Facebook under the name Ivana Mrkh America...

Does anyone actually know anything about uterine transplants? What’s your take on this madness?

Hey ladies! :-))
Thank God for Dr. Poljak from Split; he was the only one who actually knew what he was doing. After wasting my time with a bunch of incompetent doctors who couldn't be bothered to try, I ended up seeing Dr. Poljak in his private practice. The second I explained my situation, he told me exactly what steps to take next—and he didn't even charge me a dime, even though it's a private clinic and he’d never seen me before! It turns out, the absolute best specialist for our condition in all of Europe is Dr. Jorge Keckstein in Austria. For those of us dealing with vaginal shortening, he performs neovaginoplasty to ensure we can have a normal sex life. You can just go to the Medicare website, print out the "Request for Out-of-Country Treatment" form, and ask the agency to fund your procedure in Austria since they don't perform it here. That is exactly what I did, my request was approved, and I traveled to Austria with everything fully covered! Dr. Jorge Keckstein is an absolutely wonderful, top-tier human being, and the entire staff was incredibly kind and attentive. He practices at the hospital in Villach. I really hope this helps someone, because it took me seven long years of wandering around aimlessly among "so-called experts" to finally find this solution... P.S. Don't you worry, ladies; we are truly special under this little sky (1 in 5,000), and that's why God watches over us so closely...

Maria Edwards81 said:I'm 25 now, but I started seeing different gynecologists for checkups when I was 16 or 17. Since I was a virgin, they couldn't perform ultrasound exams, and everything they could palpate seemed totally fine. They just blamed my missed periods on stress or delayed puberty... once I hit 18, everyone finally started getting worried. After bouncing between a bunch of doctors who had absolutely no clue what was wrong or what pills to prescribe, I was finally sent to a specialist. That's when she ordered a laparoscopy, and we finally discovered the real reason behind my "delayed" cycles.
What am I waiting for? I'm just waiting for hormone therapy to actually work so I can finally bleed, if that even happens. I don't have many options; most general OB-GYNs just spout nonsense. I know cases like mine don't cross their desks every day—maybe they never will—so they just get lost. My regular gynecologist is fine for standard checkups, but for what I actually need, she simply doesn't have the answers and isn't willing to go the extra mile for me.
MRKH has nothing to do with what I have. 😢I might have been overconfident thinking I'd find some answers, but clearly, I haven't. Maybe, like you said, I just need to accept that the answers might never come.

Have you seen Dr. Šimunić in New York on Petrov Road?

Thanks for trying to help, but there’s absolutely nothing there either...

silentfalcon14 said:Hey, I was wondering if there are any other women out there dealing with MRKH syndrome?

I'm right here, and honestly, I'm just as in the dark about all this as you are...

fadedbear22 said:Hi Justin Chase22... if you need someone to talk to or have questions, I'm here.🙂

I want to talk! But who am I supposed to talk to? 😢 I haven't met a single person with this diagnosis yet. It’s incredibly hard, especially since I know next to nothing about it...

Justin Chase22 said:Me too...

Please, Justin Chase22, how can I get in touch with you? I have this diagnosis and absolutely no one to talk to because nobody understands what's happening... 😢