Posts by boldotter96
7 posts shown.
HAPPY NEW YEAR TO YOU ALL🙂! I truly appreciate the support; it means the world to me.
Warmest wishes to everyone!
Thank you all so much, ladies. I am truly hoping to come out on the other side of this—both physically and mentally. My multidisciplinary team meeting is scheduled for this Friday. I will be sure to check back in once I have some news. Best regards,
Surgery was completed on December 8, 2009. Here is the latest HP report:
Since most of the tumor was already removed during the previous curettage, its exact dimensions can't be accurately measured. The tumor hasn't invaded the myometrium, though it does involve some focal endometrial glands. There is no evidence of lymphovascular invasion. The cervical tissue shows mild signs of chronic inflammation.
Total burnout. The diagnosis is pT2aNxMx FIGO IIA.
My doctor’s take is pretty straightforward: what happened, happened. We got it all out, you're a healthy woman, and there’s no need for any further treatment since we caught it right on time.
I’m heading to my tumor board meeting at that time:
The surgeon who performed my procedure, working alongside my primary doctor as part of a multidisciplinary team, believes that preventive brachytherapy combined with a maximum ovarian excision is the best course of action.
The radiologist made it pretty clear: there's no way around this. We’re looking at both external and internal radiation, and I'm not talking about some mild treatment either—this is FIGO IIA. Honestly, leaving the ovaries in was a total waste of time since they won't be worth anything now anyway. 😢
The pathologist just gave me the news: they only found involvement in a single endocervical gland, there’s no lymphovascular invasion, and the cervix itself is completely clear.
And just like that, the debate kicks off... and here I am, sitting on the sidelines like I'm watching a tennis match. 🎾
I think my oncologist is going to cut this discussion short by recommending I get a sigmoidoscopy and a CA 19-9 test before we decide on the next steps. I’ll be walking out of there feeling pretty drained, and honestly, halfway home I’ll probably just start laughing at the sheer absurdity of the nausea. Well, I'm going to go ahead and get a colonoscopy done. 😳Oops: my CA19-9 is at 4.2, while the reference range goes up to 33.
Now I’m just sitting here waiting on the next tumor board meeting, wondering if they'll come back with more new ideas or finally reach a definitive decision.
Three doctors, three completely different opinions... you can only imagine how much I'm spiraling right now. I am in total chaos. If only they hadn't held that entire debate without me even being in the room. And don't even get me started on the surgeon who left me dealing with all of this after the operation.
So, that’s my story. I’d love to hear your thoughts on everything. Thanks in advance, and sending you all my best!
Ladies, THANK YOU SO MUCH for all the support and for being so understanding about everything I'm going through. You honestly have no idea how much it means to me. Let's stay in touch...
Melissa Thompson45, my mother wasn't on any hormone therapy at all; she had me, and then four years later, she had my wonderful, amazing brother.🙂
They’ve scheduled the surgery for next Tuesday.😕😕😕 It turns out the ovaries are staying after all, since my doctor talked me into it. I'm starting to panic, and I haven't been sleeping a wink lately anyway.
Sometimes I find myself hoping that the pathology report from the uterus will match what they saw during the hysteroscopy, so hopefully there won't be a need for radiation or anything else... I honestly don't know how I'll face a new diagnosis or how I'll mentally handle more treatment. That first one completely traumatized me.
Thank you to EVERYONE for reaching out and for the support. Please keep your fingers crossed for me.
Thank you all for the support...
Nick, honestly, nobody in my family has dealt with this. Both of my grandmothers passed away in their late eighties—one from heart failure and the other just from old age. My grandfathers were the same. My parents have been healthy so far, though my dad deals with high blood pressure a bit, as does my maternal aunt. The rest of my relatives are all men🙂 and have stayed healthy up to this point.
It’s all so baffling. My doctor was puzzled by my results, and my gynecologist was completely stunned and at a loss. Even during the tumor board meeting, everyone was in disbelief. Thirty-six years??? No children??? You can imagine how I felt. I just fell apart, and I haven't been able to pull myself together since...
I've been fighting this battle against infertility for seven years now. We have gone through every single test imaginable. Just before my doctor was set to perform the egg retrieval, she suggested a hysteroscopy because she wasn't happy with how my endometrial lining looked. I had the procedure done at the end of October, and it turns out my uterus was riddled with polyps. They cleared everything out and performed a full revision of the uterine cavity. And then—total shock.
Pathology report: Adenocarcinoma, mucinous type, G1 NG2.
The doctor is absolutely stunned; she’s sending my pathology out for an expert review because she says what she found is just unheard of in a case like mine. If the findings are confirmed, I'll be heading into a hysterectomy.
I am 36 years old and have never experienced a pregnancy or a miscarriage. My BMI is within the normal range, and I don't deal with diabetes or high blood pressure. I haven't used any hormonal contraceptives, and I haven't had any abnormal bleeding or pelvic pain. My cycles are regular, so all things considered, I wouldn't consider myself part of a high-risk group. Not to mention that I undergo Pap smears, swabs, and various checkups with different doctors at least three times a year, and nothing has ever indicated an issue. Everything has been perfectly fine.
It’s painfully clear that having children isn't even a thought in my mind anymore... I am absolutely terrified for my own life. My doctor put it bluntly: right now, the only priority is saving your own head, however much that's possible.
The expert pathology review confirmed the HP findings, though they’ve updated the grading from NG2 to NG1. The report describes fragments of well-differentiated mucinous adenocarcinoma with low nuclear atypia, showing no definitive signs of invasion into blood vessels or lymphatic channels. There are also endometrial fragments present, showing signs of atypical complex hyperplasia along with some areas of benign squamous metaplasia. PHDG- ADENOCARCINOMA MUCINOCUM ENDOMETRII G1, NG1.
Over the last seven days, following my doctor's orders after she performed my hysteroscopy, I have completed the following tests.
The clinical presentation and complete biochemical profile are both entirely within normal limits.
The breast ultrasound came back completely clear.
The liver ultrasound came back looking great. All clear.
The abdominal and pelvic CT scan came back clear—no changes or abnormalities detected.
Chest X-ray came back clear.
My CA 125 tumor marker came back at 8, which is well within the normal range of 35.
The gynecological ultrasound came back completely normal. My doctor was actually stunned by my diagnosis, since she said my uterus, endometrium, and ovaries all look absolutely perfect on the scan.
After reviewing all my test results, I met with the medical board. Following a thorough gynecological exam and a full review of my records, the multidisciplinary team reached the following conclusion:
Clinical Diagnosis: Adenocarcinoma of the uterine corpus, FIGO Stage I.
The decision has been made—it's going to be a classic hysterectomy along with an appendectomy.
I’m currently coordinating my upcoming surgery with my doctor, and I have an appointment with her this Tuesday. Honestly, Tuesday feels like it's a lifetime away. She was very firm about keeping my ovaries and only removing the uterus, telling me—and I quote—that they will be more beneficial to me in the long run should any health issues arise later on. To be honest, I’m completely torn. Part of me thinks it might be better to just have everything removed; what's the point of worrying about long-term health when I'm already dealing with cancer? I feel like I would just feel more secure if everything were gone, though I know how uncertain things are right now. I'm also dreading the possibility of radiation, even though none of my doctors have definitively confirmed that it will be necessary yet. Everything really hinges on the HP results following the hysterectomy.
It's hard to put my finger on how I’m feeling right now. I'm facing the reality of being completely stripped of my chance at motherhood, all while battling a cancer diagnosis with an uncertain prognosis. Everything I read online feels like a rollercoaster—one minute it's absolutely terrifying, and the next, it's slightly more manageable. Honestly, I'm just oscillating between pure fury and total fear.
I've been bouncing from one gynecologist to another for years, trying to get to the bottom of my infertility issues. Over the last two years alone, I’ve undergone five colposcopies and Pap smears, along with countless ultrasounds. Everything comes back perfectly normal—everything looks fine on paper. But then, just as I was finally preparing for IVF... poof. 👎
I am absolutely terrified. Does anyone here have any information regarding this?
Am I in the wrong place? I might have intended to post this in the oncology subforum instead. Please let me know where I should be.