Posts by ironnomad38

Thanks for all the info and advice🙏!!!!!!
I have a much better understanding now of what symptoms women typically experience, especially since I'd heard they aren't always the same—some women don't even show any symptoms at all.
I actually had my surgery performed by Dr. Smith at Mayo Clinic. He’s fantastic; he explains everything clearly, and if I have a question, he provides a detailed answer. Last time, we even ended up talking for an entire hour.🙏

Exactly!!!👍
Seriously though, how does that even work for women fighting cancer?
I truly believe staying positive is everything, especially when you're dealing with health issues.
If you don't mind me asking, where did you have your surgery?

I’ve got four incisions.
One is just below my navel, two small ones are down on the sides, and there's one larger one sitting above those two.
Honestly, when I stop to think about the fact that I’ll probably be back in surgery again soon😠 , I feel like screaming.🤣

I am so incredibly sorry to hear that!😘
Those symptoms sound absolutely awful.
My doctor actually had me stop taking Logest because I kept feeling like I was choking in my sleep (my last pill was on December 20th).
Thank God you haven't had to undergo any surgery yet.
Endometriosis can cause such devastating issues, and getting rid of that tissue is notoriously difficult.
My doctor completely understands what I'm going through; I can tell he doesn't want to take any chances, which is why he suggested surgery.
I deal with dizziness and occasional headaches, though my blood pressure is normal.
My sedimentation rate came back at 12.
What did your CBC look like?
I’ve heard that blood work isn't always the deciding factor when it comes to making a diagnosis.
For me, the hardest part is how sudden the pain is—like being on a subway and suddenly feeling this intense bloating, followed by sharp pains all over my abdomen.
I also notice strange noises coming from my stomach before bed and after working out.
It gets even worse during my period.
I stay very active and try to be really careful with my diet.
My abdomen is quite tender to the touch, especially the area right around my belly button.
The worst part about this whole situation is that endometriosis can really only be 100% confirmed through a laparoscopy.

Thanks so much for the advice and for being so understanding!

I had surgery a year ago, and they removed my fallopian tube at the same time.
Since then, things haven't really improved; my digestive symptoms have actually gotten worse, and the bleeding has become more painful and heavy.
My gynecological exams all come back normal.
I didn't have endometriosis back then, but now my doctor suspects it might be the cause. He thinks fluid is leaking from that inflamed tube—which he says contained some uterine tissue—and it’s somehow lodged somewhere inside.
There was a lot of inflammatory fluid found outside the uterus and around that area.
From what I understand, surgeons can't always clear everything out 100%, and given how much inflammation there is, anything is possible. They also suspect adhesions near my intestines.
I’m currently being treated at Mayo Clinic, which is where I had the surgery.
I went in for an MRI, and the gynecological results were fine.
The report noted that the lumen of my sigmoid colon was wide and filled with gas and fecal matter.
Do you ever experience that sensation of fluid shifting around in your abdomen that you can actually hear?
It happens to me after working out. I've been dieting—skipping lunch and dinner, just eating broccoli and cauliflower. I honestly don't know what else to do; I've lost 3 pounds.
The pain throughout my upper abdomen is sudden and stabbing. My stomach just feels heavy.
Now they’re sending me to rebro for a potential bowel obstruction check, and they mentioned they're considering Crohn's disease as well.
What are your thoughts on all of this?

I haven't had the CA-125 test done because my doctor didn't think it was necessary.
I was on Logest from October 6th through December 21st, and honestly, it just made everything feel worse. I’ve been dealing with upper abdominal pain and really heavy, painful bleeding. Last month, I actually had to switch to injections because the side effects were becoming unbearable.
I'm struggling with pain in my colon as well as my upper abdomen, and it all seems to intensify right when my period starts.
Whenever I'm on my period, I have to rely on prunes and plenty of water just to keep things moving, otherwise, I can't even leave the house.

Hi there.
A year ago, I had surgery due to pyosalpinx—a specific type of fallopian tube inflammation. They had to remove it because it was completely damaged, and I also had a 15 cm ovarian cyst.

I’m really wondering if any other women here have dealt with salpingitis and what kind of long-term effects you've experienced from the inflammation?
My doctor mentioned that we might need to consider a diagnostic laparoscopy next.
He also suggested I see a gastroenterologist at the Mayo Clinic, who might perform an intestinal transit study.
Since I’ve been having gastrointestinal symptoms, he suspects there might be adhesions around my bowels or even endometriosis lesions affecting them.

Please, if you have any experience with salpingitis, I would love to hear it!

Thanks for the support!!
I'll be sure to let you know once I find them.

I’ve been on Logest since September to deal with some spotting between periods.
If I actually get my "real period," I know it’s going to be heavy and absolutely agonizing.
My doctor mentioned they suspect endometriosis.
The issue is that this medication isn't doing anything for me; if anything, I feel even worse.
My last period started on November 27th, and honestly, I thought I was done for. I went in for those injections, and it just completely overwhelmed me—it was too much. Now the pain is even worse; I can barely make it to the bathroom, my whole abdomen hurts, and I'm feeling dizzy...
I have blood work and a urine test scheduled for tomorrow. Fingers crossed everything comes back okay!

Does anyone have any advice on what I should do?

Your MCV (mean corpuscular volume) is at 80.8, which is slightly below the normal range of 83–97.2.

Your PLT (rheumatoid factor) came back at 447, which is a bit high compared to the standard 158–424.

Your ALT (alanine aminotransferase), an important marker for assessing liver function, is quite elevated at 124 (normal is 10–36).

Your AST (aspartate aminotransferase), also used to evaluate liver health, is notably high at 55 (standard is 8–30).

Regarding GGT (gamma-glutamyl transferase), which indicates microsomal enzyme activity in liver cells,
your level is 73, which is significantly above the 9–35 range.

Your TRIGLYCERIDES—the fats made up of fatty acids—are high at 1.82 (normal is 0–1.7).

I’m not a doctor, but looking at this as a layman, it seems like you have high blood lipids and your liver isn't exactly in great shape right now.
You'll need to cut back on fatty foods and completely overhaul your diet if you want to see improvement. Getting more active and similar lifestyle changes are key. Any doctor will tell you the same thing.👍