Raymond Nguyen5 said:👎
Look, I don't know what your background is or if you've dealt with any major health issues before—which maybe isn't even relevant here—but what really matters is whether someone actually possesses that sense of basic human compassion...
If the system worked the way you’re describing—where you see a specialist who guides you, asks what you need, and stays on top of things, or you go to an association (not the one over in Laginja, but whatever) and get the answers you need without ever having to touch a computer because you're talking to real people face-to-face who are actually paid to do their jobs instead of just volunteering—well, then this country wouldn't be called America, it would be called UTOPIA...
But, there are a few, actually several, BUTS, and that's just not how it works, which is why those of us struggling with all these different illnesses are out here hunting for answers in every corner, when we probably should have just used all that energy to dig a hole for the system and all these "helpful" people to toss us into so they don't have to get their hands dirty helping us...
As for understanding how this forum works, maybe you should open a PDF and explain to everyone that you think you should be allowed to ask questions and expect answers only when you feel like it, while letting just a tiny handful of people actually participate... I honestly thought a forum was meant to be a FORUM, where you have rights, but I guess I have no idea how things work here...😁
Just to be clear, I wasn't looking for advice from some "doc" on the internet, nor should I have needed it; I was just making the point that doctors in real life often act exactly like the "docs" on these boards—arrogant, ego-driven, uninformed, and playing God, with a few exceptions of course...
I honestly don't even know where to start with you, but I'm going to try to tune out your tone for the second time...
1. A forum is a place for discussion, which means it's definitely not a place where you're going to get the hyper-specific medical answers you're insisting on...
2. Even fadedmarlin402 told you the same thing I did, so I'm not going to go back and forth about the moderators again...
3. Just like with any specific condition, patients desperately grab onto any little shred of info they hear from someone who heard it from someone else... Your specialist is informed, trust me, they stay updated on everything, but if they haven't brought it up (and I don't even know if you asked), then it's not important enough to focus on right now, otherwise you'll just end up with false hopes... Seriously, you have no idea how much news gets blown out of proportion just because patients hype it up, even when it has zero actual impact on the disease itself...
4. All I can say is that if I were in your shoes, I definitely wouldn't be taking my anger out on the whole world; I'd just accept life as it is, with all its limitations, and try to live it as best I can instead of lashing out at everyone, and honestly, your attitude lately has been pretty rude, and being sick isn't an excuse because there are plenty of other people in the exact same or even worse situations than yours who still act like normal human beings. It feels like you're just pointing fingers at everyone because you're angry about having MS. I know it's hard, but the way you're acting is literally pushing people away, and instead of getting sympathy, you're just annoying everyone with your behavior. Maybe just think about that for a second...