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Posts by feralfalcon37

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Dealing with SIBO: Any advice? in Health ·
Hey,

Since I started this thread, I’ve noticed some new comments popping up—so I figured I’d drop a quick update. Maybe my experience can help someone out here.

It’s been over three years since my symptoms first flared up. I won't claim I'm "cured" from SIBO, but honestly? I've learned how to live with it so well that I don't even notice it anymore.

In my case, it's the SIBO-D type—basically an overgrowth of hydrogen-producing bacteria. I did my breath testing at a local clinic like Planned Parenthood, though I know places like Proimmun offer much more extensive testing if you want to go that route. Once the test came back positive, I went to see Dr. Milorad Opačić at the Amruš Clinic, and I’d definitely recommend him. He’s super professional and actually knows his stuff when it comes to SIBO. The gold standard antibiotic for SIBO-D is XIFAXAN (rifaximin)—the doctor mentioned it too—but there's a catch: it's not covered by standard insurance, so you end up paying a fortune to get it through the clinic, and even then, there's no guarantee it'll work. We decided to try an alternative route instead: taking Clavocin (1g twice a day for 10 days) paired with a strict modified low FODMAP/SCD diet for a few weeks during and after the meds.

For me, Clavocin was a total home run. Zero side effects, and my symptoms cleared up pretty fast. Looking back, my SIBO likely triggered because of some inflamed gums—I ignored the dental issues for way too long, and my dentist back then didn't seem to care, so I ended up with periodontitis. Interestingly, while I was on the antibiotics for SIBO, my gum inflammation completely vanished. It made me realize there's actual truth to that old saying about healthy teeth being half of your overall health (well, in my case, healthy gums). I finally got the periodontitis treated, and ever since I've stayed on top of regular checkups and better oral hygiene, my gut health has stayed under control.

The silver lining to this whole SIBO mess is that I’ve started living way healthier than I ever did before. I've learned a ton about nutrition and how the body actually breaks down and absorbs food. Now, I eat incredibly clean and feel better than ever. I watch what I eat, stay away from heavy gluten and lactose, and make sure my meals aren't overloaded with carbs beyond what my body needs. Proteins and healthy fats have been great—never had any issues with those.

One massive factor during my treatment was something called the Migrating motor complex (MMC) and how it behaves when you have SIBO. If you're curious, look into the connection between SIBO and a sluggish MMC. The bottom line is: for digestion to work, you need periods where the gut can just chill, break everything down, and finish its business before you shove more food in. When treating SIBO, sticking to a meal schedule is huge—you need at least 3–4 hours between meals. It’s actually better to do 4–5 smaller, spaced-out meals rather than 3 massive ones, and you absolutely have to resist snacking between meals. Intermittent fasting works too, but only once you've reached the stage where malabsorption has stopped.

I also did some nutritional counseling with a specialist at a private practice in Chicago, and I'd highly recommend them. They really understand the SIBO situation and were super thorough and helpful.

If I could give one piece of advice to anyone dealing with SIBO right now, it’s this: start researching and reading on your own. Focus on medical journals or verified literature, preferably from American authors. Unfortunately, here in the States, people don't talk about this enough, and a lot of doctors are practically clueless about it. Over the last few years, I've burned through hundreds of scientific papers, articles, and books just to figure things out for myself. At the end of the day, it's my health on the line—who else is going to take better care of me than me?

I'd suggest starting with this book: https://www.amazon.com/SIBO-Made-Sim.../dp/0306846160

That’s all I got for now—hopefully this helps at least a few of you get on the right track.
Dealing with SIBO: Any advice? in Health ·
Robin Scott9 said:Hey,

here's some solidarity 🙂

Been dealing with gut issues forever—honestly sounds just like my story, only mine dragged on a few years longer. Gastritis, IBS, the whole standard routine. Digestion is trash, stools are loose and pale. I’d say even after seeing a handful of gastroenterologists, none of them really seemed to get what was actually going on. Ended up digging through the internet myself, found out what it was, and did a private test that showed high hydrogen levels.

Did two rounds of antibiotics about a year apart. Followed up with a month on a low FODMAP diet. Unfortunately, I wouldn't say I'm "healthy" yet, though I feel slightly better. The biggest headache with treatment is just trying to pin down the actual cause. Most articles point to low stomach acid being the culprit—something our doctors here almost never even consider (if you have symptoms, they immediately shove an PPI down your throat). It's a huge bummer that we don't have easy access to the Heidelberg test here, which literally tells you if your acid is too high or too low. Since the fix for high vs. low acidity is polar opposite, it leaves you stuck...

Yeah, unfortunately—I figured it was something like that. My test was hydrogen-dominant too, though my methane levels were also high enough to trigger a positive result. As far as symptoms go, the worst parts for me are the bloating and chronic fatigue.

Which antibiotics were you on, and which doctor did you see after that positive test?
I went to the clinic in Mayo Clinic territory—they recommended it over at Bonifarm because I was honestly lost. Got prescribed Augmentin (875mg + 125mg) twice a day for 10 days. My doctor pitched it as a cheaper alternative to Rifaximin, which I’d read is the standard go-to. Right now, I'm not having major issues, just occasional mild abdominal pains. Planning to re-test after a few weeks of FODMAP to see where I stand.

And I totally agree on the stomach acid thing—I deal with reflux every now and then. I talked to my doctor about it ages ago, and he just mindlessly prescribed an PPI. I refused to take it; I'd rather try to manage it through diet changes. But hey, I haven't reached a definitive conclusion either, other than knowing something is definitely wrong.
Dealing with SIBO: Any advice? in Health ·
How much do people actually know about this issue around here?

It took me over two years—and thousands of dollars wasted on endless tests, scans, and other total nonsense—to finally find out I have SIBO. During that time, I bounced between several different gastroenterologists, and every single one of them came up empty. Their big "conclusions"? Stress, IBS, a bad diet, lack of exercise... which was honestly laughable because I’m a healthy guy—I rarely get sick, I eat clean, I hit the gym regularly, and my stress levels are zero. I just couldn't accept those excuses.

I only landed on the diagnosis after months of obsessively digging through research and trying every diet under the sun, which eventually led me to get a breath test done at a Bonifarm clinic. Honestly, my experience dealing with the US healthcare system regarding this has been an absolute train wreck. I’m currently in the middle of treatment—just finished a round of antibiotics and I'm sticking to the FODMAP diet now. Fingers crossed this actually works.

If anyone else here has dealt with this nightmare, I'd really appreciate it if you could share your experience or any advice you might have.