Angela Wright said:That’s just how it goes with rare diseases and conditions. Your best bet is to keep searching online until you find a leading global center specializing in rare brain conditions and seek explanations from them. It might not be a bad idea to contact our local research institute as well:
If they can't help, at least they'll know who to refer you to for further assistance.
Here are some of the primary centers for brain tumors:
EDIT: This link provides a detailed description of a woman's case where it is located in the corpus callosum.
There was discussion regarding an initiative like this here: http://ehealthforum.com/health/diagn...a-t177251.html, but there seems to be a consensus where this type of lipoma is largely treated as a "benign non-issue." Consequently, symptoms like vision issues, mood swings, or fatigue are often attributed to other causes. This would be acceptable if the whole situation weren't so shaky and under-researched. For instance, when I asked a neurosurgeon, "What would you do if you had this on your brain?", he simply shrugged his shoulders; he said nothing, or rather, he said he didn't know. There were plenty of possible vague responses: "every case is individual," "it's hard to say," and so on.
The American version is worth a try, why not.
I appreciate your response and interest, then. At least now, when someone else Googles this diagnosis, they will receive some actual information instead of just being told, "You have a lipoma, period." They will see that we exist. I🙂
To you, 🙂