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Posts by Kevin Bishop10

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Angela Wright, thank you for the response.

I truly admire your strength and your willingness to help by reading and writing such exhaustive replies.

I have visited two dermatologists, and both concluded there were no changes to my skin. Just to be safe, they removed three moles and sent them off for pathology. There was something suspicious—poorly differentiated—but they were removed in their entirety. Perhaps it was just a false alarm; who knows? Regardless, it hasn't been proven that those moles contained melanoma.

I had an extensive discussion with an oncologist specializing in the digestive tract. I answered all his inquiries with negatives, so he requested only a colonoscopy, which came back completely clear. Consequently, they concluded the tumor is not in that area.

By the way, the initial pathology report suggested "metastases from an epithelial adenocarcinoma tumor." I am aware that a PET-CT has its limitations, but the only things showing up as "active" on that scan were two lymph nodes in the retroperitoneum, which were subsequently removed while we wait for their pathology results.

With the urologist, I insisted several times on a testicular exam and a color Doppler ultrasound, but I was told that at 55 years old, I shouldn't be having these kinds of issues!? Through self-examination, I cannot find any irregularities.

Unfortunately, I am not in a financial position to travel to neighboring countries to seek a second opinion. My insurance covered the PET-CT, and in Sarajevo, there is only one oncology center. Therefore, I am essentially "stuck" receiving treatment from them. On another note, are there high-quality, expert, reliable, and experienced oncologists for poorly differentiated tumors in Chicago, or perhaps in Ljubljana? Any recommendations?

All that remains is to wait for the pathology result and see what the oncology board decides. As soon as I know something, I will check back in. Perhaps I can help someone else facing similar problems.

Thank you for the help and suggestions. I am fully aware that I cannot afford to waste time and that treatment needs to begin as soon as possible. The question is, what exactly am I treating? All this time, I have been haunted by one thought: I waited a year and a half for a lymph node to "disappear on its own"; what if I hadn't consulted a surgeon? Would only that lymph node still be enlarged, or would the tumor have appeared? I will never know!
Angela Wright said:Kevin Bishop10, unfortunately, there is no such thing as a one-size-fits-all chemotherapy. A doctor can only attempt to estimate what they might be dealing with based on certain parameters before essentially flying blind with a prescribed therapy. 😢

Thanks for the response. I suppose my only option left is to sit around and wait for the tumor to reach "full bloom"—maybe by springtime?—and then finally react. I can only hope the doctors notice it in time and manage to step in before things get too far along.

In any case, I plan on sticking around this forum. You all have truly impressed me with how much you understand one another and the way you step up to help out.

Wishing everyone plenty of luck and good health!
Greetings.

My apologies if I am disrupting your established "protocol," but I am quite unaccustomed to navigating internet forums, so I am unsure of the proper way to format a post or pose a question.

I am writing from Sarajevo, and while I have read most of the discussions here, I have yet to find an answer to the specific issue weighing on my mind. Therefore, I ask for your insight regarding the following:

Is there such a thing as a "broad-spectrum" therapy (such as pills, chemo, radiation, etc.) for cancer of unknown primary origin?

To provide some context: after carrying an enlarged lymph node in my groin for about a year and a half, I finally consulted a physician. A biopsy confirmed it is an adenocarcinoma. Despite extensive testing—tumor markers, abdominal and lung CT scans, abdominal MRI, colonoscopy, PET-CT, ultrasound, and so on—the primary "nest" remains elusive. The PET-CT only revealed two lymph nodes in the retroperitoneum resulting from this malignancy. Those nodes have been surgically removed, and I am currently awaiting the pathology report before returning to the oncology board.

Is there a standard course of treatment for this kind of situation, or must I wait for the primary tumor to actually "surface" before any treatment can be prescribed? For instance, can chemotherapy be administered if the site of the primary tumor is still unidentified? Is chemotherapy always tailored to a specific tumor type, or does a "broad-spectrum" chemotherapy exist?

Thank you in advance, a resident of Sarajevo (55).