Posts by Casey Wood39

Big thanks to Jane for the solid advice. I’m really hoping to see more people jump in and back my idea for starting this association. Seriously, if you’re living with Tourette, or if you’re a friend or family member navigating this alongside them, don't hold back—there's absolutely no shame in joining this conversation. If you want to get involved, shoot me an email at: lcizic@hotmail.com. Let's band together and help people find ways to live better lives despite all the hurdles they face.

Whether you call it a disorder or a disease doesn't really matter when the doctors themselves can barely manage to land on a correct diagnosis. I only know what I know about Tourette's through real-world experience, not some textbook. I’d really appreciate it if you could point me in the right direction regarding what it actually takes to start a non-profit—like, who do I even reach out to? I know you need at least three members to get things moving, but does it have to be exclusively people living with the condition?

I’m honestly wondering if there’s anyone out there in America living with Tourette's syndrome who might be open to chatting? I have a son dealing with this incredibly rare and complicated condition, and it feels like we're navigating a maze without a map. I've actually been thinking about starting a support group or a non-profit organization since it seems like there isn't one here, and frankly, it's frustrating. It feels like nobody can give me a straight answer or any real information, let alone help me understand the sheer uphill battle people face with this diagnosis. If anyone has some helpful insight or just wants to reach out, I would truly appreciate it!