Living with Muscular Dystrophy
in Health ·
Hey everyone, I’m a mom navigating life with a son who has Duchenne muscular dystrophy.
It’s an incredibly heavy diagnosis to carry. My little guy is five right now, and so far, we’re holding steady—things are still looking okay. We’ve been hitting our physical therapy sessions with Voyage, and honestly, our therapist is an absolute rockstar.
She is phenomenal, both with the actual exercises and just offering practical advice; I couldn't be happier with how things are going with her. But I’ve noticed lately that this forum has gone pretty quiet regarding similar situations. It feels like there hasn't been a parent posting about this kind of journey in ages.
Let’s shake things up a bit. Maybe we can actually support one another or trade some useful tips. I really hope someone decides to jump in—maybe I can offer some insight to someone else, too. Please, reach out.🙂
It’s an incredibly heavy diagnosis to carry. My little guy is five right now, and so far, we’re holding steady—things are still looking okay. We’ve been hitting our physical therapy sessions with Voyage, and honestly, our therapist is an absolute rockstar.
She is phenomenal, both with the actual exercises and just offering practical advice; I couldn't be happier with how things are going with her. But I’ve noticed lately that this forum has gone pretty quiet regarding similar situations. It feels like there hasn't been a parent posting about this kind of journey in ages.
Let’s shake things up a bit. Maybe we can actually support one another or trade some useful tips. I really hope someone decides to jump in—maybe I can offer some insight to someone else, too. Please, reach out.🙂