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Posts by bluewalker30

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Does anyone know where I can pick up Herceptin and what the damage is going to be? I don't live in the US, and the waiting list here is an absolute nightmare.
Hey there, my fellow heroes!
I’m glad to hear those tips about nutritional yeast and raisins worked out for some of you. If you want to level up, try adding chamomile tea to the mix—it’s a total game changer. Just don't go overboard; even nutritional yeast can be a bit much if you overdo it. Ideally, you just want to take a small amount, maybe the size of a tiny almond, either by swallowing it or mixing it in. To get those blood counts back where they belong, I swear by nettle tea. That specific "regimen" did wonders for my labs. Using the yeast, I actually saw my white blood cell count jump from 2 to 5 in just five days. I’m still sipping on that nettle tea today, and my blood work has been perfectly fine.
Sending big hugs—stay safe out there!🙂
P.S. Brewer's yeast is really the gold standard, but if you can't find that, the homemade stuff works too. Even beer can help, though I’ve only tried that myself, so I can't officially recommend it since everyone reacts differently depending on their other medications.🙂 🙂
shadowheron4 said:Warm wishes, Nusazvrk! Thank you so much for the support; it really means a lot right now, and I truly need it. My husband headed out to work on the ship yesterday, and now I’m just sitting here waiting for my oncologist appointment, waiting to go over all the test results, and bracing myself for whatever they might say. Lately, I haven't been feeling my best, and when everything hits you at once...
It’s true that you have to take things one day at a time and be grateful to Bog for every single day we're given. That’s exactly what I try to do. I just pray He gives me enough days to get back on my feet and get this little one of mine—who is entirely dependent on me—up and running again. My main priority is making sure she has her mom there whenever she needs me, because I am her whole world. Of course, Dad is there too, though unfortunately, he isn't around as often as we'd like. It's not his fault; his job keeps him away, and he works incredibly hard just so we can live a decent life. And look, it's not all gloom and doom. We still have beautiful moments and days where we're all together and doing well; those moments are precious. Real happiness doesn't require a luxury car, a massive mansion, or a mountain of cash; for us, just being together and staying healthy is plenty. You don't really grasp that until you face the kind of challenges we both have encountered. Then, you finally learn how to value life. From the bottom of my heart, I wish you a long, wonderful life with your husband and your whole pack of little two-legged troublemakers. May your current dream life become even more complete and happy!!!

Best regards!
I'm not going to sit here and feed you fairy tales about how everything will magically turn out fine. Instead, I'll tell you this: I went through treatment six years ago and I'm cancer-free. There's nothing left but a scar. I know women who had surgery 15, 20, or even 30 years ago with zero recurrence. I also know people who were sent home with almost no hope, yet ten years later, they're still doing great without any signs of the disease returning. Those are the people I look to. I know the wait for results is nerve-wracking, but you have to maintain faith in a positive outcome. Personally, I don't waste energy worrying about the "what ifs." I operate on Plan A and Plan B. Plan A is that if everything looks good, I keep living my life to the fullest without dwelling on the past. Plan B is that if the results aren't good, I have to be strong and fight. There is no other option. I know a woman who went through 36 rounds of chemo and fought metastases for ten years. Warriors like that give me the strength and the belief that I can do this too. Tell yourself, "I have a child; I have to be here, healthy, strong, and composed." There is no better motivation than that. Take care of yourself!🙂 🙂
Dear Linda Campbell, I am so incredibly sorry for your loss... just try to remember that they’re in a much better place now, and your angel will be right there by your side through it all...
Carol Sanchez2 said:Hey, my mom and I used to eat flaxseed and cottage cheese together. It’s actually pretty tasty—we’d make it both savory and sweet. Personally, I usually have it for breakfast by tossing in some raisins, almonds, and honey. My mom used to eat it every single day, though she’s moved on from it lately since she just doesn't crave it anymore. I can't say for sure what the actual health benefits are, but people claim it's good for you, so it might help.

I’ve tried starting this a few times, but I ended up breaking out in such a nasty rash that I had to head straight to the ER. Has anyone else dealt with something like that? I'm torn on whether it's even worth trying again.
Has anyone here actually tried combining flaxseed with fresh cheese?
Christian Wood63 said:Does anyone have the recipe for Anaxy?
So, my buddy finally sent me that text he promised. Here’s exactly what it said: ""
Look, if you buy that processed gas, it’s just going to gunk up your engine—it doesn't have any real cleaning power, and honestly, you can't even find it around here. If you want something that actually cleans out the system, just stick with ExxonMobil.

It’s been nine days of this. I’ve been taking a teaspoon of coffee about two hours before getting out of bed every single day for a month. Then comes a fifteen-day break, and then...

So, here’s how the schedule looks for the second month: you take 15 days of medication, followed by a 10-day break. Then, during the third month, you go back to taking it for 10 days, followed by a 10-day break, and then another 10-day pause.

He can do it whenever he feels like it. But once he’s done? It’s probably a good idea to have him lie down for about two hours and stay off the fluids for a bit.

If it tastes like garbage, don't force it. One sip is enough to know—after two, you're just punishing yourself. Just grab a Coke instead.

Hey there.
🙂

If things start heading toward vomiting, just stop immediately. Don't try to push through it or force it—just cut it short and call it a day.
Timothy Morgan38 said:That’s exactly what I’m thinking... while you don't want to hit someone over the head with a brutal truth, you shouldn't hide reality either... which is why today's conversation was so draining to talk about...

The part I can't wrap my head around is why the doctors won't tell her even a single straight thing...

All she got was the diagnosis and how many rounds of chemo are planned, and that was it. Nothing else...

They haven't told her how serious this actually is, how she should be managing herself, or even what's helpful versus what's harmful... nothing at all...

She knows the name of the diagnosis, but she doesn't grasp the gravity of it.

It’s like every doctor is acting like they have no clue. She asked point-blank about her prognosis—to the specialist at Jordan, her primary care doctor, and even a neighbor who happens to be a surgeon...

One looked at the chart and said: "Oh, it's nothing to worry about!"
The second one went with: "It really just depends on you and your internal chemistry."
The third gave the exact same answer as the second...

Helloooooooooooooooo! "Nothing to worry about"? Give me a break. This isn't a sore throat. You don't need to panic and crush her spirit, but you also shouldn't act like we're talking about a hangnail...

Not one of them mentioned anything practical that might help: like getting fresh mountain air, being near the ocean, walking, resting, blah blah blah... anything just so she knows what's best to focus on.

I was thinking about taking her and my dad down to Miami for a few days just to get away from this depressing daily grind... but I'm not sure if that's a smart move...

Does anyone know if sea air is actually good for her, or should she stay away?

Also, if anyone has any basic guidelines on what could help her feel better...

Even though she feels fine right now and claims she feels like she doesn't even have cancer, I just want to keep her in this state for as long as possible...

So, what would be good habits to maintain to keep things steady?

1. Quitting smoking (this will be tough, but I hope she pulls it off)
2. Resting (no issue there—she rests whenever she feels even a hint of fatigue)
3. Eating normally
4.........
5.....
6.....

What else?

Thanks

I don't have an answer. All I know is that if I face a relapse, I'm not giving up. If things go south, I don't want people pitying me or crying along with me while waiting for the end. I want to go out with a smile. Surrounded by love and good memories, without the tears. I want to be remembered for who I truly am...
I believe a person heals themselves through positive energy; it slows the disease down. There isn't just one path; we all choose our own.
Feed the body so it stays strong enough to fight the treatments and the illness; feed the soul with the love of those close to you...😘
When dealing with lung cancer, papaya tea can actually be quite helpful. I'm talking about drinking about 200ml three times a day... honestly, there are even cases where it shows results with metastases. Unfortunately, my sister was a heavy smoker who stubbornly refused to kick the habit...
Handling Family and Friends

Don't fall into the trap of thinking you need to shield your spouse, kids, or friends from the reality of your illness. Think of it this way: your partner is likely worried sick and probably has a million questions they’re too afraid to ask. Even little kids are incredibly perceptive—they’ll pick up on shifts in the atmosphere before you even say a word. If you shut your loved ones out, you’re just inviting anxiety and helplessness to take up residence. Being upfront helps everyone navigate this new normal together.

The Power of Touch

The more transparent you and your partner are with each other, the better you'll handle everything from daily trust to intimacy. Even if your libido isn't exactly what it used to be, that doesn't mean you should stop being physical. For a lot of people, dealing with a health issue actually makes them crave closeness even more. Hugs, affection, and simple warmth become essential anchors for both of you right now.

A few ways to face your illness head-on

Lean on the people you can actually count on
Surround yourself with folks who actually make you happy
Be honest about your fears and the hurdles you're facing
Keep doing the things you genuinely love
Wear bright colors and make sure to carve out some "me time"
Pay attention to the little things that make life worth living
Pick out some flattering lingerie
Stay open to affection and warmth
Dealing with illness
Every woman reacts to a breast cancer diagnosis differently. There isn’t some magic, one-size-fits-all manual for handling sickness; honestly, the best way to tackle it is to find what works for you personally. Since we’ve spent years working alongside women navigating life after breast surgery, we wanted to offer a few thoughts on how to manage the mental load.

Let it out

A breast cancer diagnosis tends to mess with your entire perception of time. It can feel like the clock is suddenly racing against you, leaving you feeling like there’s just not enough time to get everything done. Almost everyone hits that same wall of questioning—asking "Why me?" or "What did I do wrong?" That constant pressure only adds fuel to the emotional fire. In moments like this, don't try to be a hero by bottling it up. If you need to cry, cry. If you need to vent some pent-up anger about being sick, do it. Letting those emotions out actually clears space and gives you the strength needed to keep fighting.

Talking it through helps

Talking about the diagnosis, the fears, and the messy parts always helps. Whether it’s your husband, a close friend, or someone who has already walked this path, having a sympathetic ear is vital. The catch is that you actually have to be willing to open up and share what you're feeling. Sometimes, the people closest to you aren't necessarily the best listeners—they might be too emotionally involved to be objective. In those cases, talking to someone outside your immediate circle, like a volunteer or a therapist, might be the better move. If you have questions or just need to talk, feel free to reach out to us on any workday between 9 AM and 3 PM at 555-0199 or shoot us an email at: priska0@net.hr.

http://www.amoena.com/
Has anyone here actually used FEMAROM? I’m curious to hear what your experience has been like.🙂
Angela Wright said:Oh, obviously. Don't get worked up about it.🙂 Here is a link to a thread from back in March discussing this very topic.😉

🙂 Anger? Please. I don't have the time for that... besides, getting angry just gives you wrinkles.😉
Angela Wright said:That’s old news. Just Google Tykerb and you'll find everything you need.

It doesn't really matter if the info is "old" or not—what matters is whether it's accessible. A lot of people haven't heard about it yet. My rule is simple: if I think something might offer someone a bit of help or hope, I’m going to share it, regardless of how long ago it was reported. I expect the same from everyone else here, too. Small details get overlooked, forgotten, or brushed aside all the time, even when they're actually vital. For instance, in the beginning, I used to mix my juices together. I had no idea that waiting two hours between them was actually the best way to go... something I eventually learned from an oncologist who specializes in nutrition.
Carol Sanchez2 said:WHERE DID YOU FIND THIS DATA?

CNN covered it, and I pulled the specifics from various sites online. I even caught the pricing details on some news programs... that's how I tracked it all down.

FDA approves Tykerb (lapatinib) in combination with Xeloda (capecitabine) for the treatment of advanced or metastatic breast cancer in women who have progressed on prior therapy

GlaxoSmithKline’s New Breast Cancer Drug May Give Women more Options Philadelphia

PHILADELPHIA, PA, March 13, 2007 – GlaxoSmithKline plc [NYSE: GSK] announced today that the FDA approved Tykerb (lapatinib), in combination with Xeloda (capecitabine), for treating patients with advanced or metastatic breast cancer whose tumors show overexpression of receptors and who have already undergone therapies like anthracyclines, taxanes, and trastuzumab. This marks the first targeted, once-daily oral option available for this group. Tykerb was granted Priority Review by the FDA in November 2006.

"Tykerb is a significant breakthrough for women with advanced HER2 (ErbB2) positive breast cancer. The data clearly show that this small molecule, oral, targeted agent, in combination with capecitabine, is effective for women whose disease has progressed on previous therapies, including anthracyclines, taxanes and trastuzumab," said Paolo Paoletti, MD, senior Vice President of Oncology at GSK. "The approval of Tykerb demonstrates our R&D organization’s strong commitment to the discovery and development of novel cancer treatments. We are dedicated to Tykerb development in a variety of settings including adjuvant breast cancer as well as in other solid tumor types.”
The Encounter

We crossed paths
somewhere
between worlds
in a narrow corridor
where
destinies collide
during a moment
when the universe falls silent
so that
the whispers of souls can finally be heard

J. Letic
There's a new drug hitting the market for women dealing with advanced-stage breast cancer and metastatic changes. It’s currently only available here in the United States, and we're looking at a price tag of roughly $3,000.

About GlaxoSmithKline

GlaxoSmithKline

About Tykerb

Tykerb is a small molecule taken orally that works by inhibiting the tyrosine kinase components of the EGFR (ErbB1) and HER2 (ErbB2) receptors. Basically, the Stimulation of EGFR (ErbB1) and HER2 (ErbB2) drives cell growth and various stages of how a tumor spreads and invades. Overexpression of receptors has been noted in several different human tumors and is linked to a tougher prognosis and lower survival rates.
slyseal28 said:Your writing is honestly beautiful. If you don't mind me asking, where do you find all this stuff?

A few dear friends and I are putting together a website focused on cancer. The idea is to create a reliable information hub—a guide and a support system for patients, their families, and friends. We’re also planning to host a forum so people can actually swap stories and experiences.

The kind of pieces you’ve written would be perfect for the support section we're building. Would you be okay if we featured them there?

NOPE! Quite the opposite—I want everyone to see them. I sent you a message on my blog.
It's just stuff I come across online, though I haven't posted anything new in quite a while... ☕ Feel free to take whatever you think works.
How can we actually support people facing a serious illness—both emotionally and socially? And how do we show up for their families? It really comes down to expanding that old cliché: treat others exactly how you’d want to be treated. Honestly, just dropping by to see a patient and their family is a gesture that uplifts everyone involved.

Don't pull an disappearing act on me. Just be the person who cares... be the friend you've always been.
Reach out. Even a simple hand on my shoulder tells me I'm not alone in this.
Give me a call and let me know when you're dropping off dinner. Pro tip: bring it in disposable containers so neither of us has to worry about washing dishes or returning Tupperware.
Watch over my kids. Offer to take them to your place or hang out with them here. I need some breathing room to focus on my spouse, and my kids need a break from the heavy atmosphere of my illness.
Cry with me when things get rough, and laugh with me when they don't. Don't be afraid to show some real emotion.
Take me for a drive or a quick outing just for the change of scenery, but please, read the room regarding how much energy I have left.
Call me to run through a grocery list and then just coordinate a delivery straight to the house.
Give me a heads-up before you swing by, but please don't feel like you have to stay away. Don't assume being sick means I need total silence. I need you; isolation is its own kind of struggle.
Help me keep the spirit alive during holidays or special occasions. Decorate my hospital room or my living room, or just bring over some flowers or a small gift.
Look after my family. I'm the one who is sick, but they are going through it too. Offer to sit with me so they can catch a break. Invite them out, grab a table for them at a restaurant. Encourage my spouse's friends to check in on them. I feel a lot better knowing my family is still finding moments of joy.
Get creative. If there’s someone I’ve been missing, ask me and help arrange a visit.
Bring over a magazine, a book, a cool poster for my wall, or even a box of cookies to share with visitors.
Talk about "the thing." Don't shy away from using the word cancer or naming the diagnosis. Just ask, "Do you want to talk about it?" first.
Keep me looped into the real world. Tell me what's happening in your life so I don't feel disconnected. Talk to me about the future—about tomorrow, next week, or even next year.
Don't feel pressured to keep the conversation going constantly. We can just sit in silence or watch a movie together.
If you bring a book or some knitting and just sit with me, I won't feel like I have to entertain you. It also gives me the freedom to drift off for a nap if I need it.
Can you give me or my kids a lift somewhere? I might need rides to doctor appointments, the pharmacy, or even just the store. You could also help my kids stay connected to their friends by dropping off little gifts or driving them to meet up.
Include me in the decision-making process. I'm already losing control over so many parts of my life; I don't want to lose my say in my family matters or my own care.
Bring some positivity my way. I seriously need it—plus, it's contagious.
If my family and I have to miss out on big events or celebrations, take plenty of photos so I can still feel like I was part of the moment.
Could you help with the housework? When you're dealing with a serious illness, the laundry, the dishes, and the general mess can pile up fast. Instead of saying "let me know if I can help," try being specific: "I'll be over Monday to handle the laundry," and then actually do it. A vague offer is hard to accept, but a specific plan is easy.
Water my plants!
Send a quick card just to say, "I'm thinking of you."
Help out with the holidays by offering to pick up wrapping paper, gifts, or tickets.
Bake some homemade treats that can be frozen and tossed into a meal prep kit for the family.
Offer to take care of the mindless chores—dropping stuff off at the dry cleaners, picking up groceries, etc. These are the things that otherwise just don't get done.
Just tell me what you'd like to do for me, and if it sounds good, let's make it happen.
Keep me in your prayers and share your faith with me.
Help me feel okay about how I look. If I’m actually pulling it off, tell me—I could really use that boost to my confidence right now. But if I’m looking rough, just spare me the honesty.
Let me and my family have our moment to grieve; let us prepare for the worst if we have to. Sometimes, a good, long cry does more for a person than any loud, forced pep talk ever could.
Just remember, no matter how I feel or what I see in the mirror, the core of who I am remains unchanged.
It’s honestly wild how tightly our minds and bodies are wired together—how our fears, anxieties, disappointments, or even pure joy can ripple through our tissues, organs, and entire biological systems. Unfortunately, people don't talk about this connection nearly as much as they should.

Back in 1987, a study by M. R. Jansen at Yale University confirmed that breast cancer spreads significantly faster in women dealing with intense feelings of hopelessness, frustration, fear, or other heavy negative emotions. We're seeing similar patterns today; current data from war-torn regions in America and parts of Canada show a statistically significant spike in breast cancer cases.

On the bright side, since everything usually has two sides, there’s a silver lining to how emotions affect the body. Just as negative thoughts and bitter memories can slowly tear down our spirit and physical health, the reverse is also true: positive thoughts and pleasant memories can actually have a healing effect on every single cell in our bodies. Sometimes, this leads to genuinely miraculous improvements in recovery, happiness, and overall health.

As William James, the father of American psychology, once put it: "Whatever you push into your subconscious will move heaven and earth to make it happen. So, you better be sending nothing but the right ideas and creative thoughts into that subconscious."

Very few good things just fall from the sky overnight without some level of grit, patience, and effort. But that shouldn't discourage you.

Real, long-term personal growth requires the slow, patient work of reshaping who you are—your habits, your mindset, and your outlook on life.