Posts by cosmicsurfer7

Amanda Miller69 said:I’m honestly terrified because I think my mom is reaching the end. They started putting her in diapers because she can't hold any urine, and she has zero appetite—I brought her some homemade soup yesterday, but she just sort of messed with it. Today she’s calling me, sounding weaker by the minute, complaining about burning when she goes. They rushed out to grab blood samples to see if the cancer has spread further (I'll have to ask once I get to the Mayo Clinic), but besides that, she was looking yellow under her chin and eyes yesterday. I think her liver is slowly giving out, and with the urine issues, her kidneys might be failing too. 👎
The doctor—the one who kept trying to discharge her—is saying she’s been in the hospital way too long. So tomorrow, my brother and I are sitting down with the professor to figure out an urgent placement at a nursing home or a rehab facility. She definitely can't go home in this condition; she wouldn't make it through the day.
The healthcare system here is a joke. My mom's uncle was sent straight home from the ICU right after his prostate surgery; he can't even move, while my aunt is basically shuffling around with a walker. I swear, you don't even see this kind of mess in Albania. 😠
I’m honestly scared to even walk into the hospital right now, just dreading what state I’m going to find my mom in.

DEAR Amanda Miller69, you are totally panicking... just breathe... talk to the doctors in a way where they realize they have no choice but to keep your mom in the hospital or move her to another proper medical facility...
Hang in there, you've got this!!!

Amanda Miller69 said:I’m trying. I just really wish I’d stumbled upon this forum when my mom first got sick. Back then, I was honestly too terrified to even look anything up or face the reality of what was happening.

Hey honey,
I’ve seen plenty of cases where people were just as sick as she is, but they didn't have any trouble getting the care they needed at places like the Mayo Clinic. So please, don't back down and don't let them push you around! YOUR MOM HAS EVERY RIGHT TO THAT CARE!!!

rustyscout31 said:Huge thanks to Veda, Muscles, and everyone else for being there for me!! Ever since this hit my family, I’ve been stuck in this loop of feeling like I failed somehow (I honestly even thought about just handing everything over to God and letting fate take the wheel). But seeing how optimistic everyone here stays, despite all our different stories, really gives me the strength to keep going. Your support means the world.🙏
I've always been a strictly traditional medicine kind of person, but lately, I’ve been becoming a bit more open to alternative options. That said, I'm definitely not buying into those fake healers who swarm around photos of sick people like vultures. I think we're all just incredibly vulnerable right now, willing to do absolutely ANYTHING to get our loved ones healthy, but you have to watch out for the scammers targeting our wallets...
btw, if anyone here has actually tried getting a second opinion or using homeopathy for someone who's sick, please let me know how it went. Thanks in advance!🙂

Personally, I recently followed some advice and reached out to some homeopaths, and honestly? I feel like I just threw money down the drain. Their stuff is super vague, even if they claim to offer a personalized touch... Basically, they're just glorified vitamins. The injections have to be ordered from Vienna, then you have to drive all the way to Jesenice to pick them up, and dealing with US Customs is a total nightmare.
I actually sat down and talked to a few primary care doctors who deal with
patients facing serious diagnoses all the time, and not a single one of them could point to a single positive outcome from homeopathy!!!

Amanda Miller69 said:Some doctor told me today—didn't even bother introducing himself—that my mom could probably head home to recover from her surgery soon. The thing is, she’s still pretty much immobile and super weak, but he said I should just talk to the head professor when they arrive tomorrow. Great. How am I supposed to care for someone who can barely move while working full-time, especially since I can't get any sick leave or vacation time? The doc mentioned they could suggest a rehab center in their discharge papers, but apparently, that depends on availability and how long the waitlist is.
What am I even supposed to do until then? I know I don't have a choice but to wait for the professor tomorrow, but honestly, I'm starting to panic. Anyone got advice?

Hey Amanda Miller69,

1. Go see your gynecologist and ask them to write you a recommendation for medical leave so your primary doctor can sign off on it. Tell them you're dealing with intense ovarian pain or that you can't even sit down without hurting. If a specialist gives a recommendation, general practitioners have to honor that leave since it's covered by Medicare. OR
2. Ask the professor if they can keep Mom in the hospital until she can be transferred to a rehab facility, which they can usually set up within two days. Usually, patients already in the hospital get priority for those spots.

That's how you might be able to make this work!!!

Fingers crossed for you!

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Someone with a brain tumor—who had already gone through 30 rounds of radiation plus Temodar—actually used all of this. It was posted on a blog back in 2006, right after they'd been diagnosed the year before. I'm still waiting to hear an update to see if the gentleman is doing okay today. I'm praying to God he is...

Sending love to everyone!

Sandra Evans13 said:Thanks, Fiz!
Mom finally got discharged from the hospital today, and honestly, seeing her recover from surgery is such a relief. She’s even starting to eat small amounts again, which is just huge. She hasn't been able to touch food for almost three months, so watching her actually enjoy a meal is everything. I’m definitely going to track down that doctor we talked about—I'm really hoping they can do some good for my mom too.
I heard about these capsules—they aren't actually medicine, just a supplement—called Immunoex. Immunoex What are those things people claim supercharge your immune system, but they’re actually pretty pricey? Like, I'm talking about stuff where a single daily dose costs a fortune. $60So, we’re officially one month in.
The dosage usually starts to taper down later on. Has anyone here actually dealt with this stuff before? I even found a dedicated website online under that same name. Check out the site at www.immunoex.info..

Hey everyone, what's up?
I actually looked into that Immunoex stuff over in the States because I heard it won some awards or something, but honestly? They don't treat it like anything special over there. It’s just viewed as another random dietary supplement. Most people in the US seem way more focused on hitting that max dose of beta-glucan—around 2.5 mg per kg of body weight daily. At the end of the day, though, it's totally up to us what we decide to take.
So, I just started seeing Dr. Stacy over at Cytomed... does anyone here actually know anything about how their stuff works?

Believe me, having faith is what actually sets you free and gives you that inner strength.

Linda Peterson37 said:Hey everyone,
does anyone know if my dad is actually entitled to an escort in the ambulance when he's being moved from one facility to another? He’s completely immobile—his entire left side is paralyzed—so common sense tells me he should definitely have medical staff riding along. It feels totally unacceptable to leave him alone. I mean, what if he starts choking or something during the ride?
The thing is, I haven't gotten any straight answers from his doctors or the hospital staff. Honestly, I’ve had to hunt everything down here on the forums or just Google it, and then I go back to the doctors with what I found, which apparently really gets on their nerves. If anyone knows the actual laws or what our rights are here in the States, please let me know. Everyone seems to be saying something different...
Last time they transferred him from one hospital to another, they tried to refuse an escort entirely. I had to make a huge scene right there in the hallway before they finally agreed to help.

Thanks, and cheers to you all.

Hey honey,
I actually looked into this myself;
1. An ambulance is usually just for transport, meaning there won't always be medical staff accompanying the patient.
2. If there's extra room, a family member or someone close to the patient can ride along as an escort.
And that's pretty much it!
Xoxo

Linda Peterson37 said:Hey everyone,
does anyone know if my dad is actually entitled to an escort in the ambulance when he's being transferred from one facility to another? He’s completely immobile—his left side is totally paralyzed—so common sense tells me he absolutely needs medical staff to ride along. It feels totally unacceptable to leave him alone. I mean, what if he gets sick or something happens while they're driving?
The thing is, I haven't gotten a straight answer from any doctors or nurses yet. Honestly, I've had to hunt everything down myself on forums and online just to have enough info to push back against them, which obviously drives the staff crazy. If anyone knows what the actual law says or what our rights are here, please let me know. Everyone seems to be telling me something different...
Last time they moved him from one hospital to another, they tried to deny him an escort entirely. I ended up making a massive scene right there in the hallway, and only then did they finally agree to it.

Thanks, and cheers everyone.

Hey,
you can really dig your heels in about getting an escort only if your dad qualifies for home health assistance or long-term care benefits (basically, if he can't handle his basic daily needs without help). Otherwise, they can technically say no, because an ambulance isn't just a taxi service—they're supposed to look after the patients they take on.
That's the "legal" side of things, anyway. But if you get a doctor who's actually decent, they can always write "with escort" on the transport order...
Take care!

Hey everyone, I wanted to share some news I just stumbled upon (at least it feels like big news to me). I was scrolling through and, well, the title pretty much says it all. Apparently, this could be a huge help when dealing with lung, breast, or brain tumors. Thought I'd pass it along.

Love you guys!🙂

Amanda Miller69 said:I have to share this wild coincidence that happened. My mom is actually the tenant rep for our apartment building, and yesterday two guys showed up looking for her (my aunt was home at the time). My aunt told them she was currently in the hospital and wouldn't be back anytime soon. One of the guys asked for her name, my aunt gave it to him, and he just goes, "Oh, I actually operated on her yesterday." Turns out, it’s Dr. Miller, who lives right in the building next to ours (they're connected), and he only stopped by because there's a leaky pipe between our buildings.😂 He told my aunt she was basically two or three days away from passing, but my brother and I were told it had been 7 or 8 days. Her body is just so exhausted right now, but she keeps telling us she can see how much grit she has—she believes in herself, and says recovery is entirely up to her will. We’re still fighting and staying positive. We don't have any other choice. Honestly, hearing all that yesterday just totally crushed me; I ended up sobbing on my boyfriend's shoulder like a total wreck.🙄

Hey Amanda Miller69,
don't let those doctor's predictions get to you. Your mom has survived everything thrown her way because she never gives up—she just has that inner strength...
Just give her some extra love and recharge those batteries, and she'll be fine.
Remember: NOTHING HAPPENS BY CHANCE! Everything in life happens for a reason!!!
Sending kisses to everyone!

Linda Peterson37 said:He hasn't tried those Papaya capsules because, honestly, we hadn't even heard of them. Instead, he’s currently taking cat's claw (Uncaria tomentosa), shark cartilage, plus some other vitamins and minerals to boost his immunity and help with circulation and stuff.
As for how he's doing right now—it's tough. We're waiting on radiation treatments that were finally scheduled, since the machine in Indianapolis was out of order for a while, and he just isn't up for traveling to places like Chicago. On top of all that, he’s on chemo every six weeks. It’s a lot to handle, but things will get better!
Check your PMs.

My dad has always been such a character—total jokester, super cheerful, just one of those people who lights up a room. Even now, with everything he's going through, he’s still cracking jokes and making us laugh. Honestly, he gives me so much energy and keeps me smiling. He reminds me that life really is about the little things, and that no matter how hard it gets, we can always find a reason to smile for the people we love, because they deserve it.
If he can find a way to laugh even when he's this sick, then I can definitely show up for him a hundred times over.

Amanda Miller69, that's wonderful news! Just keep pushing forward!

I stumbled upon this info regarding Papaya and wanted to share it with you guys, it actually makes a lot of sense...

"One way acetogenins (Paw Paw) work is by starving cancer cells of glucose, which essentially cuts off their ATP energy supply.

ACETOGENINS, the vital extract from Papaya!

What's the deal?

Most tumors contain a tiny fraction—about 2-3%—of cells that are incredibly resistant to drugs (known as MDR cells). Chemotherapy doesn't touch these. After the first round of chemo, if it works, it wipes out the non-resistant cells. Since that covers most of the tumor mass, it looks like the cancer is gone. But those MDR cells stay behind and start multiplying. A brand new tumor grows made entirely of MDR cells. When you try chemo again, nothing works because every single cell is resistant.

Acetogenins, an extract found only in Papaya, have shown effectiveness against these MDR cells. They block the energy flow into the mitochondria (the powerhouses) of the cancer cells. This ultimately stunts the growth of the blood vessels that feed the tumor.

AMANDA MILLER69, JUST KEEP GOING, DON'T LOOK BACK.....

Sending kisses to everyone!

Linda Peterson37 said:I noticed there’s actually a lot of talk here about Rife's generator. My dad used one, and honestly, I really believe it helped him quite a bit. The thing was, he wasn't always super consistent with how he used it. And I think that's the catch with all this alternative stuff—like someone else on the forum mentioned, you don't exactly have an "alternative oncologist" who can look at the specific illness or condition and tell you exactly what works for whom, how long to run it, how intense to go, or what to avoid entirely. We're all just out here trying everything, not even knowing if we're helping or making things worse...

As for the rest of it, I feel like there's truth to be found in all of this. If my dad were feeling any better, we'd probably be looking into even more options too.
Phoenix,, my dad has a Grade II astrocytoma, so feel free to ask me anything.

Thanks, I can see you've been searching everywhere for answers too. Maybe the Rife's generator did help him, but were you also giving him papaya capsules?
Here’s our situation: no surgery for now. The plan is to use radiation and chemo to shrink it down, then maybe surgery in phase two. If you don't mind me asking, what kind of path did your dad take? When did he start using the machine, and how does it actually work?

Hey everyone!
If you want to avoid getting lectured by the "experts" in here, just head over to www.rosorifeterapija.com
You'll find info on those papaya tablets, which actually makes a ton of sense if you think about it...
I remember hearing whispers about those pills even in unofficial medical circles back in the day. Honestly, it doesn't hurt to throw "ESSIAC" into a Google search—it might actually help you out.
I’m still out here grinding, trying to track down people who have dealt with Grade II brain astrocytomas...!
Sending love to you all. Hang in there, guys—we're stronger together!!!

Linda Peterson37 said:My dad’s diagnosis first came out in 1998, and he ended up having surgery in June of '99.
Back then, the tumor was located right in the right frontobasal area, but after a recurrence popped up in December 2006, it's moved to the right frontotemporal region.
After that first surgery, he had to go through radiation and chemo, though we couldn't start that until six months later because he was dealing with some really bad pressure sores.
Now that the recurrence has happened, they're saying it isn't operable, but honestly, that hasn't discouraged us from fighting. Not even a little bit. I guess once we got past that initial shock and disbelief—which hit all of us hard when we found out his cancer was back—I just felt this weird, inexplicable surge of strength. It made me want to learn everything I could. I'm constantly reading, researching, buying things, and trying whatever I can to help my dad. We've looked into all sorts of alternative cancer treatments, and we've tried a lot of stuff, some of which we're still doing now. I've mentioned some of this in older posts, but seriously, if you need to know anything at all, just ask.
Personally, I really feel like diet makes a huge difference, especially macrobiotics. There's this great book, Michia Kushia - nutrition against cancer, that I think is totally worth picking up.
I'm really hoping that both the chemo and radiation will shrink the tumor enough so they can perform surgery. I truly believe that for my dad, the chemo and radiation will work to get it to a stage where surgery is an option. Either way, just keep pushing forward with courage.
Just ask away about whatever is on your mind.
Sending love to everyone!

Thanks so much, dear. I'll definitely ask... Have a wonderful day!

HAPPY EASTER TO EVERYONE CELEBRATING!

Linda Peterson37 said:Look, my dad’s been fighting a brain astrocytoma for a long time too. When he first got diagnosed, they labeled it Grade II, but things have progressed since then.
Anyway, I’ll help you out with whatever advice or experience I can, just like everyone else here who actually cares. But it would be super helpful if you could give us some specifics—like when the tumor was first found, if you've had surgery yet, if there's been a recurrence, stuff like that.
Ask me anything. Just shoot.

I know there are so many genuinely good people on this board. My astrocytoma was discovered back on February 29th.
The standard medical plan is chemo and radiation, and if that manages to shrink it down, then we look at surgery. Right now, it's located bilaterally in the frontal lobe, so doctors aren't recommending surgery at this stage. On top of that, we're doing homeopathy plus sticking to a really solid diet.
When was your dad's diagnosis, and where is he being treated?
Sending love to everyone!

Angela Wright said:I'm O+. Please let me know if they can work with that type too.

Hey everyone, I'm pretty new here and honestly, I'm still figuring out how this whole forum thing works...
I noticed you've posted quite a bit about my diagnosis.
It's a Grade II astrocytoma in the brain, and honestly, it's just destroying me right now. If anyone has any advice or knows anything at all, please, reach out. I really need the help.