Living with epilepsy: Tips and support?
in Health ·
Ethan Garcia8, what you’re feeling—that specific kind of exhaustion—is exactly what I dealt with during my hyperthyroid phase. And honestly, that fatigue is just one of the milder symptoms. I went through a total living hell with this disease, but I really don't feel like reliving the trauma right now.
It’s not even that I can’t find the right words in the moment; it’s more like I physically can’t finish a single thought. You know that gross, hollow feeling? It gets even worse when you realize it’s actually an epilepsy symptom you have to report. Then, they just bump up your dosage, and suddenly you're spiraling straight into depression.
Kyle Nelson2, I’ve had both CT scans and MRIs on my brain, and they found a cyst on the right side—it's been there since birth, just unusually large.
That MRI was a complete nightmare for me, and now I have to go back in to see if the cyst is growing or staying put.
I’m dodging the appointment like a little kid because there is zero chance anyone is forcing me back into that morbid, claustrophobic machine again.
It makes sense to me that my thyroid could be triggering neurological issues, but my primary doctor and my neurologist both insist there’s no connection and tell me to stop overthinking it.
It’s driving me crazy because I have no clue why things have taken such a turn for the worse, especially since everything used to be totally fine.
Btw, with this heavy-duty medication regimen, getting pregnant is out of the question—it would be a total disaster for a baby.
Why do doctors keep so much from us?
It’s not even that I can’t find the right words in the moment; it’s more like I physically can’t finish a single thought. You know that gross, hollow feeling? It gets even worse when you realize it’s actually an epilepsy symptom you have to report. Then, they just bump up your dosage, and suddenly you're spiraling straight into depression.
Kyle Nelson2, I’ve had both CT scans and MRIs on my brain, and they found a cyst on the right side—it's been there since birth, just unusually large.
That MRI was a complete nightmare for me, and now I have to go back in to see if the cyst is growing or staying put.
I’m dodging the appointment like a little kid because there is zero chance anyone is forcing me back into that morbid, claustrophobic machine again.
It makes sense to me that my thyroid could be triggering neurological issues, but my primary doctor and my neurologist both insist there’s no connection and tell me to stop overthinking it.
It’s driving me crazy because I have no clue why things have taken such a turn for the worse, especially since everything used to be totally fine.
Btw, with this heavy-duty medication regimen, getting pregnant is out of the question—it would be a total disaster for a baby.
Why do doctors keep so much from us?