Posts by Dana Brown56

Hey everyone, I was wondering if anyone here has actually been given this specific diagnosis? I’m really curious to hear what kind of symptoms you guys deal with and what your treatment plan looks like. To be clear, I’m not just talking about feeling that heavy, soul-crushing chronic fatigue—I mean the actual, official final diagnosis.

Jose Clark2 said:So, what kind of symptoms were you dealing with, and what kind of tests did they run on you?

Well, Jose Clark2, for me it was a whole mess—hand and body tremors, having to run to the bathroom constantly, sweating through everything, and just this incredibly draining, soul-crushing fatigue. I’ve had bouts of insomnia here and there, plus those dizzy spells that always bring nausea along for the ride... honestly, the whole thing just feels like I'm coming down with a nasty flu, you know? Just constant muscle aches everywhere. As far as testing goes, I've pretty much been through the wringer with specialists—saw a neurologist, a psychiatrist, even a psychologist—and for the most part, everything came back fine. But finally, my neurologist gave me a diagnosis, so now we're just waiting to see if the medication actually helps things turn around.

Hey everyone, I was wondering if anyone here has dealt with this diagnosis before? I'd love to hear what kind of treatment plans you've been following.
So, I recently got diagnosed with Dysautonomia, and on top of that, I'm dealing with Chronic Fatigue Syndrome.
Right now, my doctors have me on Rivotril and Deanexit... so I guess I'm just sitting here waiting for a "miracle" to happen! :-)

I figured it was finally time to jump in here and give everyone an update. We’ve officially made it through the first round of chemo, and thank God, she seems to be handling it pretty well so far. She had a little bit of nausea for just one day, but by the next morning, she was feeling so much better. Anyway, I really appreciate the advice you shared; I’m truly hoping we won't even need to reach for those pills, but it’s such a relief to have a plan in place just in case.
She’s taking some Tylenol right now, and we’re picking up some Kinoko Gold AHCC to help boost her strength (kind of like our version of Imunoahcc).

Jose Miller6 said:For nausea and vomiting, doctors usually prescribe Reglan, so if she hasn't been given anything yet, just ask her primary care physician for a prescription. They used to let you get Zofran on a prescription too, but apparently not anymore, so you have to buy it over the counter. Just a heads up though, Zofran is way more expensive. It might be worth checking the price at the pharmacy; I think you can just buy a single pill to see if it actually helps her.

Hey everyone, I was wondering if anyone might have some advice on what kind of pills we should pick up for my mom to help ease those nasty chemo side effects. She actually just finished her very first session today. She’s already been taking Imunoahcc, and she also had some Tylenol tablets—well, I think that's what they were called, my memory isn't perfect!

Hey everyone, I wanted to reach out because my mom was just diagnosed with a lung tumor a few days ago. She’s quite frail—only weighing about 99 pounds—so the doctors aren't recommending surgery right now; instead, they want to get all her tests finished and then move straight into chemotherapy.
I’ve been doing some reading online, and a lot of people suggest a diet that's roughly 80% vegetables and 20% fruit, but honestly, since she’s already so thin, I’m really worried that following that strictly might cause her to lose even more weight, which doesn't seem like a smart move.
We actually heard about some Japanese mushrooms that are supposed to help boost the immune system (my sister actually works with herbal remedies and custom blends based on specific diagnoses back in Canada), so we’re going to try those to see if we can get her strength up.
On top of that, we picked up some Immunocch supplements, but our doctors here in the States don't have any clue what they are, how to take them, the dosage, or what kind of food you should eat alongside them. If anyone here has gone through this or has some experience with it, could you please reach out? It would mean the world.