velvetviper4 said:Dear friends,
Rodak, who is 30 years old, has been diagnosed with Ewing sarcoma starting in the pelvis, which has metastasized to the lungs. Apparently, it is quite large; currently, surgery isn't an option because it’s pressing against the heart. He is undergoing chemotherapy—he has finished two rounds so far, with four more to go.
Please, if any of you have experience with this, or if someone close to you has gone through it, help us with some advice. This is our first encounter with all of this, and we are completely lost....
Excuse me, I am new to this forum and just saw the comment,
I am 26 years old. Two years ago, I was diagnosed with Ewing sarcoma in my pelvis—it was the size of a handball—which had spread to my lungs, my sacrum, and some vertebrae. I also had a benign brain tumor (an ependymoma), which they removed later on. The doctors gave me a prognosis of only 3 months to live...🙄
They put me on chemo to shrink the tumor enough so it moves away from the kidney, so that surgery might actually be possible.
To date, I have received 20 rounds of chemotherapy and 40 fractions of radiation; specifically, 37 fractions on the L3 and L4 vertebrae, and 3 fractions near the site of the ependymoma in my head (post-surgery).
I handled the chemo surprisingly well! In two years of treatment, I haven't vomited even once. My hair fell out, obviously, but I’m already bald anyway, so that was fine...
When the doctor saw me after two years, he looked like he had seen a ghost. He told me not to be angry with him, but admitted he truly thought he would never see me again...
The tumor has almost vanished. I am walking normally again, and most importantly, the pain is gone.
Not everyone reacts the same way; therapy affects every person differently. Do not lose hope—stay positive. Ask every single question you have.