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Super... thanks so much for the help and the advice. I'm getting out of Dubrava Hospital as fast as I can. Honestly, everyone there acts like they're some kind of geniuses, but when you go in for checkups, they just copy and paste the previous findings like robots! It's ridiculous. Menetrier is incurable for now, and as far as I know, they haven't even set up the specific billing code for it at MBK yet. Only about 36 people in the entire country are dealing with Menetrier disease right now.
Thanks again!
Hey everyone!!
Here’s my situation: 1. Stomach cancer (treated for now)
2. Monitoring for potential malignancy (code Z 3.16)
3. Menetrier disease (a fallout from the cancer, though the disease itself is a breeding ground for more cancer)
Since the doctors are bracing for the cancer to come back, I'm on constant watch. But honestly? The pain is unbearable. Right now, I'm relying on Fentanyl patches and Luminal, but the meds barely touch it—the patch only lasts me maybe a day and a half, tops. And the bleeding? It's everywhere, both ends (vomiting and stool), while my doctor just shrugs and says it's "normal" because my stomach is "clearing itself out." My cardia is open, and my esophagus and stomach aren't doing their jobs at all—my duodenum is basically shot. The doctors aren't prescribing anything specific for the actual diagnoses; the only thing I have is the Fentanyl patch prescribed by the specialist at the Mayo Clinic pain clinic.
Like I said, I am living in agony because this treatment DOES NOT WORK.
To top it all off, my last MRI showed a 6x3 cm cyst in my brain behind my left temple, plus two cysts on my liver... everything is going downhill fast, not to mention the depression hitting me hard...
Does anyone have any advice?