2 posts shown.
That would be incredible because the medication actually works. It’s honestly pathetic that our government hasn't added it to the coverage list yet, forcing people to struggle through all those health issues without support. What we're dealing with here is hepatocellular carcinoma that has recurred—secondary. When I first started Nexavar, the side effects were brutal. I had a rash on my arms and legs so bad I could barely move, the fatigue was constant (though now it only hits when the weather changes), and my hair and eyebrows actually thinned out. Even then, I tried to push myself through workouts and swimming as much as my body would let me—maybe I overdid it a little. Nowadays, as the body adjusts to the drug, things are finally leveling out. The side effects are fading, and I’m back in the gym, swimming, and running regularly (though my hands and feet stay a bit sensitive). There isn't much else to say besides being patient and hoping for the best. I am genuinely happy to hear this; I really hope your mom gets access to these meds and starts her treatment soon. Good luck! 😉
Hey everyone. I'm 23. Last year, right after my 22nd birthday, I ended up in the hospital because of some intense abdominal pain (or so I thought at the time). After running all the tests, it turned out I had HCC. A silver lining, I guess? It was only caught because the tumor was pressing against my central vein, causing a blood clot and those pains—even though this disease is usually a silent killer. Another stroke of luck: despite the tumor taking up about 60% of my liver, I was still considered operable. The surgery was a massive gamble with my life, but apparently, staying active and keeping a positive mindset actually pays off. They had to remove 70% of my liver, and recovery was a long, grueling process. Unfortunately, it came back this year in my lungs and liver, but honestly, it’s nothing compared to the first round—we're talking small spots, maybe a few centimeters max. We fought hard, and we managed to get me approved for treatment with Sorafenib (Nexavar). My internist says the drug is working well, but I need to be patient. I've heard there are similar drugs on the market, and once the patents expire, they should become much more affordable (right now a box of Nexavar is like $1,100, but once the patent drops, it could be $100-$67), but I'm not entirely sure how or where to find them. Feel free to reach out if you have questions or if there's any way I can help. Cheers.