Quote: my Soul
Rachel Williams said:After three and a half years of fighting, we’re finally reaching the end of the road. If it were "just" the lung cancer, I truly believe Mom would have had much more time—that damn thing has barely budged since the beginning. But then, this past summer, they diagnosed a wild breast cancer that has already metastasized everywhere. And all this happened because they only just got around to ordering a PET scan... a scan we had been begging for for nearly a year once those breast markers first started climbing, even though the mammogram showed absolutely nothing. When we finally secured the referral to MD Anderson Cancer Center, the doctors there were actually shocked that no one had sent her there sooner. Starting tomorrow, Mom is officially being admitted to the hospital. We’re just waiting for the end now... If I lived in America, I don't think this would even be an option. But living here, dealing with a high-risk pregnancy while being two states away from her... the most I'll be able to do is visit occasionally or call her cell phone. How I’m going to pull myself together mentally at the end of this... only God knows...
Both my mother and I have come to the exact same conclusion: having a high-quality primary care physician is everything. My mom spent four agonizing years being bounced around from one specialist to another, dealing with nothing but dismissals, until they finally diagnosed her with lung cancer. By then, of course, it had already reached Stage IV. Everyone kept insisting her cough was just acid reflux, or that the scarring on her lungs was left over from tuberculosis—which she’s never even had, but apparently, doctors know better than she does... And when the nodes in her neck started swelling? One doctor would say they were just swollen glands, another would claim it was just fatty deposits. Depending on who was looking at her, the answer changed. But her GP never backed down. She kept pushing for more tests because she wasn't satisfied with what her colleagues were finding; she was certain they were missing something. And she was 100% right. For every brilliant doctor working in our hospitals, there’s a criminal element just waiting to take your money—people who aren't fit to treat a child, let alone an adult. As for the pulmonary clinic over in Blackout... I wouldn't set foot in there if my life depended on it. Not just because of how they "treated" and "diagnosed" my mother, but because their incompetence is just the final straw for us. Based on everything my family and I have been through, we're done. I wouldn't recommend them to anyone, much like I wouldn't suggest Jordan... and honestly, the same goes for the MD Anderson Cancer Center...
I am truly sorry that you and your mother ended up in this position... It’s heartbreaking. My mom and I are facing the exact same reality—terminal stage, lung cancer, just waiting for the end. We’re planning to keep her at home for her final days; even though the thought terrifies me, we want her to be surrounded by the warmth of her own home until the very last moment. I can't even imagine what you're going through with a high-risk pregnancy on top of everything else... hang in there. Because of my mom's situation, I ended up moving halfway across the world, 10,000 miles away from home... I'm still trying to wrap my head around it all...
I agree, you absolutely need a solid, high-quality primary care physician. My mother had such a run of bad luck because her regular doctor went on maternity leave, leaving a rotating door of young, inexperienced residents to cover the shifts. It was a mess. To make matters worse, after she suffered through three repeated bouts of pneumonia, I flew back to the States, picked her up, and took her straight to a private clinic like Mayo Clinic. We specifically sought out an older pulmonologist, Dr. Slavko Miklic, but honestly... he seemed more interested in me than in my mother’s medical history. He kept making comments like, "Ma'am, how do you have such a beautiful daughter?" Disgusting. I really shouldn't have to mention that... In the end, his big diagnosis was that Mom had mid-section syndrome, and his "brilliant" solution was that we had to pat her on the back three times a day to drain the mucus. Seriously?! He didn't even think to order a CT scan to figure out why a long-term smoker like my mother was dealing with recurring pneumonia. Once I started digging online, I realized that recurrent pneumonia in smokers is a massive red flag that demands serious follow-up. The specialists at Johns Hopkins figured out what was actually happening immediately. I have to give credit where it's due—MD Anderson Cancer Center is top-tier, not just for their expertise, but for their actual compassion and humanity toward patients. Especially their pain management clinic and Dr. Tomislav Bosnjak... he is truly a wonderful, kind, and patient man, both as a human being and a physician...
ruggedfox11, what Jane said was just beautiful... I actually broke down in tears reading her response. And if I can add one thing... nobody truly knows what might have happened if your loved one had been given that antibiotic. Maybe it would have bought him a little more time, but who knows if it would have just led to even more suffering down the road. It’s impossible to say...
Since we're already wading through these heavy topics, does anyone have any insight on how to handle it when a terminal patient is spiraling emotionally and mentally? My mom is on benzodiazepines (Xanax), but death absolutely terrifies her. She’s developed this paranoia; we can’t even bring up the subject of dying without her shutting us out completely. We even called in a priest—a dear friend of hers—to try and talk things through, but nothing seems to touch her. I think she just can't bring herself to surrender, so she's stuck in this constant state of agony where her body is failing her, yet she's white-knuckling it through every second. Dad and I are ready to just let her go so she doesn't have to suffer needlessly once there's no hope left for recovery, but she just can't seem to "let go"... Does anyone have any advice? Should we keep trying to talk to her? Heavy sedation isn't an option right now... how do we make this easier for her?