hello,
Unfortunately, life has led me here to this topic...
My father-in-law, who is 77, was diagnosed with a high-grade myofibrosarcoma in his chest, and they have surgically removed it. Before the surgery, he had a PET/CT scan which didn't show any metastases, his lung X-ray was clear, and the MSCT of his abdomen and pelvis came back normal too...
The oncologist in Miami is now asking for follow-up CT and MRI scans, as we suspect they might be worried that the surgery didn't clear everything out. We are considering seeking a second opinion, and while browsing through various forums, I saw Dr. Shantek at Johns Hopkins Hospital mentioned as a specialist for rare tumors. We are trying to get in touch with him, but since I read somewhere that he doesn't check his emails regularly, I was wondering if anyone might happen to have his contact information...
Any experiences you all have with this type of sarcoma would be more than welcome...
Unfortunately, life has led me here to this topic...
My father-in-law, who is 77, was diagnosed with a high-grade myofibrosarcoma in his chest, and they have surgically removed it. Before the surgery, he had a PET/CT scan which didn't show any metastases, his lung X-ray was clear, and the MSCT of his abdomen and pelvis came back normal too...
The oncologist in Miami is now asking for follow-up CT and MRI scans, as we suspect they might be worried that the surgery didn't clear everything out. We are considering seeking a second opinion, and while browsing through various forums, I saw Dr. Shantek at Johns Hopkins Hospital mentioned as a specialist for rare tumors. We are trying to get in touch with him, but since I read somewhere that he doesn't check his emails regularly, I was wondering if anyone might happen to have his contact information...
Any experiences you all have with this type of sarcoma would be more than welcome...