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Posts by wiredmarlin3

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I have another question for shadowbison75. If things take a turn for the worse with a diagnosis, where did your dad get his treatment if we're looking at Washington, D.C.? Since that's basically where we're heading.
It's just like everyone else who’s been stuck in this exact same spot.
Does anyone have a recommendation on where to go or which specialist to see in D.C.?

I guess you might wonder why I'm asking, and honestly, why I'm so terrified...
With my dad, everything just went sideways from the very beginning. It started with him being mocked by the staff at the local hospital during rounds—they actually joked that he was "just trying to be sick" when he was perfectly fine. Well, once they finally ordered an MRI, all that laughing stopped pretty quickly.
Then there was the mess of them sending him to a trauma surgeon instead of neurosurgery, and eventually, even picking an oncologist felt like a complete and utter failure.
After a few failed rounds of chemo
(he’d do four cycles of one, then they’d switch to another because apparently the first wasn't working), they basically just gave up on him or ignored him entirely. They only ever bothered with palliative radiation whenever he complained about the pain becoming unbearable...
After I practically begged them to admit him to the hospital in month 4 to run some tests—like a CT or an MRI, whatever was necessary, since his condition had spiraled so badly in the two weeks following his last radiation session—all I got was, "Well, that's just how this disease works; have him come back in month 8 for a checkup." (Even though they knew he'd be away on vacation then and wouldn't be able to make it.) So, that follow-up really shouldn't have happened until month 9.
My dad never even made it to that appointment.
shadowbison75 Thanks for getting back to me.. I guess we'll go ahead and schedule another ultrasound, then just wait to hear what the ENT says.
Hey everyone,
It looks like it's Mom's turn now, following after my dad.

She’s been struggling with swallowing issues and this tightness on the right side of her neck for quite a while now.
The LOM clinic gave her some antibiotics and sent her off for an ultrasound and an ENT consult.
The ultrasound showed her thyroid is normal size but has some nodules, plus there's an enlarged lymph node on the right side.
According to them, nothing seems alarming, though they did suggest a biopsy for both the thyroid nodules and the lymph node.
She went in for the biopsy today, but they only actually biopsied the thyroid part.
When asked about the lymph node, they basically just said there wasn't anything there worth biopsying.

As for the ENT, they "urgently scheduled" her for August 28th.

Swallowing is getting more painful by the day. She’s feeling this pressure and pain on the right and front sides of her throat.
Her voice hasn't gone hoarse, though.

I'm honestly pretty scared; I can't help but worry this might be some kind of throat cancer or something similar.

Does anyone know which diagnostic methods are typically used for that kind of tumor? And does anyone have recommendations for a good private ENT in NYC where we could get things moving?
I just want to get ahead of it if it's something minor, because if it really is something serious, we can't afford to wait months for an ENT appointment.
I've seen people mentioning ENT visits and fiberendoscopy, and then others talking about MRIs or CT scans.

Maybe we should start by getting a second opinion via ultrasound, since I don't really get how they couldn't see something if it's large enough to cause this much trouble with swallowing.
hello to everyone out there fighting this battle, whether it's you or someone you love deeply.

Looking through your posts, I get the feeling things haven't hit their absolute worst point here in the States yet, though we might be getting pretty close...

I was wondering if anyone here has any actual experience with oncology treatments at the private Solmed Clinic?
The doctors there are apparently from the Sister of Mercy.
Their website is packed with all sorts of info about cancer and nutrition and stuff, but honestly, it all feels a bit vague and non-committal to me, I guess.
.
Feel free to just send me a DM if you'd rather not post everything publicly.
thank you.