Look, we haven't spent a single moment at home discussing this. It's not like I'm feeding my dad fairy tales; I know him too well. If we start getting into how much you actually have left, the conversation is over.
Hannah Reed3, thanks for those words of hope. There is a lot of divine providence in your story, and thank God Mom is doing well. Stories like yours mean a lot to those of us still fighting through it.
shadowbison75, most doctors just serve you cold statistics. Here’s an example from the day before yesterday: "You know what this disease is like; there's no hope left. I've seen people lose their legs in two days." I'm no expert—we're in the same boat—but I never took it too seriously, because according to them, he's already lived far too long.
Chloe Bennett5, I am so sorry about your mom. This disease is a nightmare. I’m still fighting, and I have no intention of backing down, regardless of what the odds say—whether it's the statistics, the progression, or just the nature of the illness itself. Today, however, gave me a glimmer of hope; the progression over the last two months has been minimal. Because of that, I made a pretty drastic decision today: no more chemotherapy. I’ve got a specific strategy in mind, and I’m going all in on it, whatever happens. My dad always stood by me, even when we didn't see eye to eye, and I’m doing the same for him. I still believe he’s part of that 5% who make it through. I hope you've been able to find some peace after such a devastating loss. At the end of the day, family is everything.
Dad ended up staying in the hospital today. Things have taken a turn for the worse; they’re mentioning progression, and his CRP levels are massive now.
My 62-year-old... And then there’s the chemo. Those drugs just wreck him without even reaching the tumor itself. Don't even get me started on our doctors and hospitals. If you actually want to help your patient, you have to teach yourself everything about the disease overnight. I am miserable, sad, angry, and desperate.
Sometimes surgery isn't even a guarantee that things will turn out okay. How old is your dad? My dad's illness has completely broken me. We've been living with nothing else for a year now. He was right on the verge of retirement, and now he’s stuck living like this at the end of his career.
My dad is home. Everything seemed fine after two surgeries and a full 12 months, but then the recurrence hit. Now his personality, memory, and so many other things have completely changed. He’s currently on his third line of chemo, which we are paying for out of pocket, and honestly, I can see him getting worse every single day. How are you all doing? Did your fathers undergo surgery?
I spent about four hours yesterday scrolling through this Reddit thread from the very beginning. I just needed to see that my mom and I aren't alone in dealing with Dad's illness. We are at the 14-month mark with glioblastoma, and things have taken a turn for the worse over the last two months. No matter how much you hope or pray, the disease follows its own nature. I admire all of you; regardless of how things turn out for your loved ones, you are all heroes in your own right. It’s tragic that anyone has to endure what we are going through. Thank you all for providing even a small amount of comfort during these difficult times.