Hey everyone! My 9-year-old daughter was diagnosed with Lyme disease and mono back in June, which landed her in the hospital for a bit. Everything seemed fine then, except for an enlarged spleen.
We were supposed to head in for a follow-up now in September, but since she’s been sleeping so much, barely eating, and dealing with headaches, we ended up taking her straight to the ER. After the blood work came back, they kept her admitted. Her white cell count is at 1—so her immune system is totally trashed right now—and her platelets and red blood cells are low too. Her liver enzymes are high, and her liver and spleen are still enlarged, plus she has a UTI. They did a bone marrow biopsy the day before yesterday, and we're still just sitting here waiting on results. She seems okay, though—she's eating more, and physically, both her pain levels and blood counts look a tiny bit better. Since they're considering the possibility of a blood disorder (like leukemia or whatever), does anyone know how long these results actually take? They told us the day before yesterday it would be ready by Friday, but today they're saying they have no clue when it'll be done. Only one parent is allowed in to visit, so we're just stuck here, super worried—honestly, terrified. The doctor mentioned she doesn't think it's leukemia, but we're still freaking out. Does anyone know how long the wait usually is, or what else they might be looking for with the bone marrow biopsy? And is it possible all of this is still just lingering from the Lyme and mono? Thanks in advance.
We were supposed to head in for a follow-up now in September, but since she’s been sleeping so much, barely eating, and dealing with headaches, we ended up taking her straight to the ER. After the blood work came back, they kept her admitted. Her white cell count is at 1—so her immune system is totally trashed right now—and her platelets and red blood cells are low too. Her liver enzymes are high, and her liver and spleen are still enlarged, plus she has a UTI. They did a bone marrow biopsy the day before yesterday, and we're still just sitting here waiting on results. She seems okay, though—she's eating more, and physically, both her pain levels and blood counts look a tiny bit better. Since they're considering the possibility of a blood disorder (like leukemia or whatever), does anyone know how long these results actually take? They told us the day before yesterday it would be ready by Friday, but today they're saying they have no clue when it'll be done. Only one parent is allowed in to visit, so we're just stuck here, super worried—honestly, terrified. The doctor mentioned she doesn't think it's leukemia, but we're still freaking out. Does anyone know how long the wait usually is, or what else they might be looking for with the bone marrow biopsy? And is it possible all of this is still just lingering from the Lyme and mono? Thanks in advance.