How do I get a diagnosis?
in Health ·
darkmason11 said:I’ve just been sitting here with this temporary diagnosis for months now, and I still haven't gotten a single concrete answer or any actual treatment. For now, they're saying it's brain demyelination, but they have absolutely no clue what's causing it... They initially thought it might be MS, but then they ruled that out because all my tests came back normal, so we're still stuck in limbo. Honestly, I don't even know where else to turn to get a straight answer, especially since I can't afford to just go see a specialist out-of-pocket at a place like the Mayo Clinic...
Unfortunately, you aren't alone in this...
I've been stuck in this endless cycle of doctor visits and hospital runs for years now. I currently have about five different conditions listed as "observation only." I guess maybe it's better that nothing is official yet, rather than having a definitive diagnosis, but the reality is that as long as everything stays unconfirmed, there's no treatment. There's just no hope for things getting better if nobody knows what they're fighting.😢