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Posts by irongull13

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Maria Fisher46 said:Hi there,

Based on everything being described here, it really looks like we're dealing with Gilbert's syndrome... It might be worth getting a direct bilirubin test to get the full picture. You could even look into genetic testing to confirm the UGT1A1 genotype, which isn't usually a massive expense—I'd imagine it costs somewhere around $100—and you can have that done at places like St. Jude Children's Research Hospital, Mayo Clinic, or even the Cleveland Clinic.

Hello, when I had my full blood panel done in Washington, D.C. a few months back, my total bilirubin was sitting at 98, while the conjugated levels were around 10, though they're supposed to stay under 5... I haven't bothered checking the conjugated levels since then, just the total, which has been hovering between 50 and 60 u/mol over my last three tests.
irongull13 said:So, here’s the situation... even though I decided to go ahead with my military service, the whole process involved a full medical screening at the Cleveland Clinic, which included a complete blood panel. Everything looked perfectly fine, except for my bilirubin, which was sitting at a high 98. I should mention that right before getting my blood drawn, I had been traveling all the way to NYC 124 miles, barely sleeping or eating anything all day, let alone staying hydrated. I showed up to the lab starving and absolutely exhausted, which might be relevant because when the doctors reviewed the results, they suggested I likely have Gilbert's syndrome. All my other markers—AST, ALT, GGT—were at the bottom end of the normal range. They explained that if you actually have Gilbert's, being sleep-deprived and hungry will send your bilirubin levels through the roof. Anyway, they asked me to come back and redo the tests within 20 days.

I went back and did everything again, and this time the bilirubin was 64, while everything else remained totally normal.

Then, just recently, I had some follow-up blood work done to check things over, and the bilirubin came back at 48. Here are the links to my full blood work and urinalysis.

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I’m an athlete, 30 years old, about 5'9" and 165 lbs... honestly, I haven't seen a doctor since I was a kid, so seeing that bilirubin number really caught me off guard. My doctor tells me there's nothing to worry about since my liver enzymes are great, but nobody has ever given me an official diagnosis of Gilbert's, nor have they sent me for any specialized testing. Should I be looking into scheduling a liver ultrasound or more intensive screenings? And I should probably mention, I remember friends joking ten years ago about how my eyes looked a bit yellow... I never thought much of it back then, but now I realize it was likely the bilirubin. Thanks for any insight.

It looks like those previous links aren't working, so I'll post some new ones instead...
https://postimg.cc/TyX4yvbp
https://postimg.cc/LhhN88Wx
So, I recently decided to go through the military enlistment process, which meant undergoing a full medical screening at the Cleveland Clinic... part of that included a complete blood panel. Everything looked perfectly fine, except for my bilirubin levels, which were sitting at a high 98. I should probably mention that right before the blood draw, even though I’d traveled to NYC the day before 124 miles, I had barely slept or eaten anything all day, let alone stayed hydrated. I showed up to the lab hungry and absolutely exhausted, which might be relevant because when the doctors reviewed the results, they suggested I likely have Gilbert's syndrome... especially since every other marker—AST, ALT, GGT—was right at the bottom of the normal range. They explained that if you have Gilbert's, being sleep-deprived and fasting will send your bilirubin skyrocketing. Anyway, they asked me to come back and repeat the tests within 20 days.

I went back and did everything again, and this time the bilirubin was 64, while everything else remained totally normal.

Then, just recently, I had some follow-up blood work done to check things over, and the bilirubin came back at 48... here are the links to my full blood and urine panels.

View on imgur
View on imgur
View on imgur

I'm an athlete, 30 years old, about 5'9" and 165 lbs, and honestly, I haven't stepped foot in a doctor's office since I was a kid, so seeing that bilirubin number really caught me off guard. My doctor says there's no reason to worry because my liver enzymes are excellent, but no one has ever officially told me, "Yes, you definitely have Gilbert's," nor have they sent me for any specialized testing. Should I be scheduling an ultrasound of my liver or looking into more extensive diagnostics? I also can't help but remember a conversation from maybe ten years ago, where my friends were teasing me about how yellow the whites of my eyes looked... I never thought much of it back then, but now I realize it was likely the bilirubin. Thanks for any insight...