placiddrifter26 said:First off, you’re being treated by Dr. Labar. You're lucky to be under his care, so you should trust him.
We aren't doctors here; we're just people who have learned things. Someone gets sick, treats a similar condition, and shares their experience.
As for your condition, I view it as a chronic issue—an abnormal increase in red blood cell count. It's essentially a lifelong thing, but if you manage it well with therapy, you can control the progression and slow it down.
Stop obsessively searching online. Information is too general; it varies wildly from one patient to the next depending on when they were diagnosed and how their body reacts to treatment. Even with the same diagnosis, you'll find it hard to find even a few patients with identical symptoms and treatment paths. The more you read, the more anxious you get without gaining anything useful. If your cytostatic therapy is working and you feel relatively okay, then just live your life. Accept the illness, but make sure it knows you're the one in charge.👋🙂
I never assumed everyone here was some kind of specialist. I am simply looking for people dealing with a similar condition, or perhaps someone with a family history of it...
I'm not expecting miracles. For instance, I live my life, I work, and I've accepted my own diagnosis. Thanks for the response, 🙄!!!