Living with Wegener's Vasculitis
in Health ·
Patrick Thomas23 said:Endoxan at the start, just one round of therapy.
Mabthera 3x in 2013 and 3x in 2014. After that, I managed to stay relapse-free for 10 months in 2013, and since 2014, it's been 12 months.
I have to disagree with you there... I notice that if I have too many "rough" days in a row—physical exhaustion, lack of sleep, feeling that "inflammation" creeping in—and I don't pull back myself... slow down, rest, recover... then bleeding happens. That’s the only pattern I see in my own body. And stress! It kills me. I am 10000% certain one of my relapses was triggered by stress.
My CRP levels are always above the minimum... they never stay steady for me.
Diet? Anti-inflammatory diet? Any actual insights? Does it help anyone?
If anyone knows anything about this disease, please reach out via DM.
I was diagnosed just a few days ago, so I'm really looking for your experiences.