Elizabeth Cook28 said:Muscle weakness—basically being stuck because you just can't find the strength—joint contractures, and scoliosis. That’s about it, but honestly, that's enough to make you completely dependent on others for basic help. 😢
It’s strange—I can't find much about this anywhere. Not even a decent article,
Hey there, vampire—what a coincidence, I actually stumbled upon this forum while searching for something else entirely. Talk about odds! :-) I’m dealing with the exact same diagnosis. It would be great if we could connect somehow.
Feel free to shoot me an email at: sweet_secret1@gmail.com🙂