Posts by jadegull13

velvetmoose9 said:Find a neurologist or an anesthesiologist who actually specializes in pain management.
Since you've been dealing with this for three years now, don't expect a quick fix. You're likely looking at long-term, aggressive medication—maybe some anticonvulsants or tricyclic antidepressants...
The catch (given how long this has dragged on), is that nothing works overnight. You have to be patient, stay persistent, and be prepared to tweak and adjust your meds multiple times. 🤷
Once you hit remission—meaning the pain starts to dial back—try seeing a psychologist or therapist who specifically deals with chronic pain management.

I’m already seeing different neurologists. Right now I'm in Pittsburgh seeing Dr. Marović; he put me on Tegretol 200 mg and Lyrica 75. My resting pain has dropped about 10-15%, but any touch still feels unbearable. The issue is that nobody seems to want to take my case seriously, except for the staff over at Nemec Hospital, whom I'm in constant contact with. Just as a side note, I actually have a degree in kinesiology, which makes this even harder—it kills me that I can't do anything, can't rush, let alone run. It seems like you all know your stuff. Are you a doctor? Any advice or help would be appreciated...

thanks a lot for the reply 🙂

Hey everyone,

Three years ago, I had a sesamoid bone removed from my foot. Ever since then, it’s been nothing but chronic pain—this constant tingling and burning sensation. My whole foot hurts when touched, especially near the top of my big toe. Even though they actually cut a nerve during the procedure, the pain is still there. I’ve gone under the knife five times now. Three of those surgeries were with Dr. Nemec, but nothing has worked. I've been passed around with all sorts of diagnoses like Sudeck syndrome or phantom limb pain, but none of them seem to hit the mark. It hurts like hell if anything touches it, yet I have zero surface sensation in one specific area of my foot. If anyone here is dealing with something similar, please reach out. I'd love to chat and see how you're managing it. My main issues are the stinging, the burning, and the tenderness, and honestly, it hasn't let up for three years straight.🙂