Neurofibromatosis?
in Health ·
Alright, thanks Piggy 👍
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Posts by Carl Myers26
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Neurofibromatosis?
in Health ·
So, I went ahead and got the biopsy done, and the results are back—it turns out it’s just an angiolipoma.
Neurofibromatosis?
in Health ·
Angela Wright, I guess that might be what we’re looking at. Thanks for helping me wrap my head around it, but I suppose I won't know for sure until I get the biopsy results back...
To be honest, I have two spots just like the ones in this photo on my thighs. They aren't quite as obvious since there's hair covering them 😁, but the others can definitely be felt if you run your hands over them—even if they don't stand out visually like these two do...
If I'm being real, the psychological aspect of this bothers me way more than the actual physical sensation...
As for the ones on my arms, I only noticed them by touch recently; you can barely see them with the naked eye...
I usually notice them after a workout at the gym, like they start "acting up" a bit, though they don't cause any real medical issues...
By the way, did your boyfriend end up getting a biopsy, and did he have any of them removed?
And is there some kind of medication or treatment to stop more from popping up? I'm assuming there isn't, but I figured it wouldn't hurt to ask...
To be honest, I have two spots just like the ones in this photo on my thighs. They aren't quite as obvious since there's hair covering them 😁, but the others can definitely be felt if you run your hands over them—even if they don't stand out visually like these two do...
If I'm being real, the psychological aspect of this bothers me way more than the actual physical sensation...
As for the ones on my arms, I only noticed them by touch recently; you can barely see them with the naked eye...
I usually notice them after a workout at the gym, like they start "acting up" a bit, though they don't cause any real medical issues...
By the way, did your boyfriend end up getting a biopsy, and did he have any of them removed?
And is there some kind of medication or treatment to stop more from popping up? I'm assuming there isn't, but I figured it wouldn't hurt to ask...
Neurofibromatosis?
in Health ·
Michelle Cook83 said:Did your primary care physician actually refer you for an MRI? Honestly, a biopsy would be incredibly helpful here, because you won't truly know what kind of tumor you're dealing with until they get those results back.
It wasn't my GP, actually—it was a neurosurgeon who ordered the MRI...
I mean, I get that a biopsy tells you exactly what type of tumor it is, but I guess there's a risk involved, right? Like, could it cause issues if they end up removing something they weren't supposed to?
And regarding the biopsy itself—if they just take a sample versus performing a full resection of the neurofibroma, does that change the recovery? I wonder if someone can walk around just a few hours after the procedure, or if it takes much longer than that.
Neurofibromatosis?
in Health ·
Hi everyone, let me start by laying everything out...
Basically, over the last two or three months, I’ve noticed these little lumps appearing—it looks like fatty tissue, though I honestly have no idea what they actually are. They're about the size of marbles, mostly concentrated around my thighs...
I’ve actually had one larger one, maybe an inch or two long, for quite a few years now. It never really bothered me, though, since it wasn't painful. Back then, I saw a couple of doctors, but nobody could tell me what it was, so I eventually just gave up on it...
But then, as I mentioned, about ten of these smaller lumps popped up in the last few months. One of them actually grew to match the size of the old one in just a matter of days (thankfully it seems stable for now and isn't growing anymore)...
I went to see my primary care physician, who referred me to an orthopedic specialist. At first, he was just as stumped as the others; he even asked if I had some kind of allergy to animals, thinking maybe that was the cause. But I’m not allergic to anything, and I can't even remember the last time I was around an animal...
Ultimately, though, he suggested it might be neurofibromatosis, but he admitted he couldn't know for sure until he removed one and examined it under a microscope...
Following that, I saw a neurosurgeon, who recommended I get an MRI of my brain and an abdominal ultrasound before proceeding with a biopsy...
I’ve already done the brain MRI and the abdominal ultrasound, and both came back clear. Everything looked fine, although the technician did mention I have a folded gallbladder—supposedly something I was born with—and a slightly enlarged spleen, or something to that effect...
Now, I’m scheduled for the biopsy on this neurofibroma in a few days, and I’m wondering: is there any risk that this biopsy could cause harm?
I've also noticed a few smaller lumps near my elbows, which feel more like they're just under the skin, unlike the ones on my thighs...
If this really is neurofibromatosis, I assume it's some kind of hereditary condition...
My GP actually told me there's no real need to bother with the tests or the biopsy, implying it’s nothing to worry about and that I'll probably live to be a hundred regardless...
Has anyone here dealt with something like this? And is there any way to at least stop new ones from appearing, or even get rid of the ones I already have?
Any advice would be greatly appreciated, thanks!
Basically, over the last two or three months, I’ve noticed these little lumps appearing—it looks like fatty tissue, though I honestly have no idea what they actually are. They're about the size of marbles, mostly concentrated around my thighs...
I’ve actually had one larger one, maybe an inch or two long, for quite a few years now. It never really bothered me, though, since it wasn't painful. Back then, I saw a couple of doctors, but nobody could tell me what it was, so I eventually just gave up on it...
But then, as I mentioned, about ten of these smaller lumps popped up in the last few months. One of them actually grew to match the size of the old one in just a matter of days (thankfully it seems stable for now and isn't growing anymore)...
I went to see my primary care physician, who referred me to an orthopedic specialist. At first, he was just as stumped as the others; he even asked if I had some kind of allergy to animals, thinking maybe that was the cause. But I’m not allergic to anything, and I can't even remember the last time I was around an animal...
Ultimately, though, he suggested it might be neurofibromatosis, but he admitted he couldn't know for sure until he removed one and examined it under a microscope...
Following that, I saw a neurosurgeon, who recommended I get an MRI of my brain and an abdominal ultrasound before proceeding with a biopsy...
I’ve already done the brain MRI and the abdominal ultrasound, and both came back clear. Everything looked fine, although the technician did mention I have a folded gallbladder—supposedly something I was born with—and a slightly enlarged spleen, or something to that effect...
Now, I’m scheduled for the biopsy on this neurofibroma in a few days, and I’m wondering: is there any risk that this biopsy could cause harm?
I've also noticed a few smaller lumps near my elbows, which feel more like they're just under the skin, unlike the ones on my thighs...
If this really is neurofibromatosis, I assume it's some kind of hereditary condition...
My GP actually told me there's no real need to bother with the tests or the biopsy, implying it’s nothing to worry about and that I'll probably live to be a hundred regardless...
Has anyone here dealt with something like this? And is there any way to at least stop new ones from appearing, or even get rid of the ones I already have?
Any advice would be greatly appreciated, thanks!