Posts by Walter Taylor65

Nicole Chavez5 said:In my case, things changed because my doctors lacked the initiative to explain the potential fallout from surgery for a benign growth. Before the procedure, I wasn't taking any pills or steroids, and my hormone levels were completely normal. Now, this therapy has left me feeling pretty desperate.

Can someone explain the actual reasoning behind prescribing Cortef? My doctor didn't bother to provide an answer.

It's honestly wild to me that you weren't given any guidance, but I gotta be real—your posts feel a bit childish. Sorry, but I have to say it...
You're basically trying to tell us sick people that you were "NEVER" unwell before having surgery for a benign tumor???
We were all perfectly healthy until a certain point, too...

I'll answer your questions for you.
1. You can't live without Cortef. Period. It's that simple. If your pituitary gland stops producing it after surgery—especially if it was fully removed—then what? Are you just going to stop taking it?
Exactly my thought!!
For all we know, you could have Lupus and be on massive doses of actual, legitimate corticosteroids...
One piece of advice: keep an eye on your electrolytes, specifically sodium and potassium, eat normally, and just live your life...
Some people have it way worse, even if things aren't easy for you right now, obviously..
Hang in there and quit the moping.

crimsonmoose2 said:I'll be 26 soon enough. 🙂 They noticed I was running short on height way back in elementary school, so I went through endless checkups and eventually growth hormone therapy, which I was basically on until the end of high school. It didn't do much for me, though. I've just accepted that being 4'11" is my deal.

I’m dealing with pituitary, thyroid, and adrenal issues, plus the whole female hormone situation. So right now, I’ve been on a cocktail of Synthroid, Hydrocortisone, and Ortho-Cyclen for a while, with the occasional dose tweak.

I head in for checkups every six months—mostly because it gives me an excuse to swing through Washington, D.C. and catch up with my crew. 😁

Anyway, how are you holding up generally? I'm constantly exhausted, lazy, sleepy, and have zero stamina. This whole treatment thing is a grind. 😁

hey
just saw your message...
My last one was way more optimistic than this one... In the meantime, they diagnosed me with an ACTH deficiency. Because of that, my cortisol levels in a 24-hour urine test came back low, so they ran an ITT test and put me on a day of Hydrocortisone! Since then, life hasn't exactly been a breeze. Aside from a brief honeymoon phase for about two months after starting the Hydrocortisone, things have been rough. My potassium levels are tanking because of the Hydrocortisone, and now my doctors are actually split on whether I should even be on it, since I didn't have a total cortisol deficit. Now that I'm taking Hydrocortisone, it feels like my pituitary is just "done"...
I’m supposed to taper down the dose, but how??? I’m terrified I’ll just feel even worse...
I'm at 20 mg right now, but I'm supposed to get down to 15. Of course, not every doctor agrees on that...
It's a nightmare
I don't know what to do...

How many mg of Hydrocortisone are you on, how are you handling it, and which hospital are you seeing for follow-ups?
Oh, and yeah, I'm perpetually wiped out, totally drained, no energy, etc., etc., etc.

hey,
anybody else here 🙂
I’ve been dealing with hypopituitarism since I was six, which basically means I’m short on ADH—diabetes insipidus, if you want the technical term.
It's been my life for 26 years now 😛
It doesn't cause massive drama, though I definitely feel it hitting me harder as I get older.
I don't really know what your situation looks like—which hormones aren't firing right for you and all that...
But honestly, most of this stuff can be managed.
It just depends on who you're seeing and how much of an expert your doctors actually are.
To be real, I’m kind of over it at this point. I barely even show up for checkups anymore.
(I actually just had a brain CT, and they suggested there might be some potential issues near the pituitary, so now they want me to go in for an MRI for the tenth time.)
Of course, there's nothing actually wrong, but whatever.