Posts by stormywalker54

It makes sense...
Even my primary care doctor was at a loss for words regarding all of this.
Because everything happens while I'm asleep—in the deepest stage of sleep. My rest is so heavy that nothing can wake me...
It used to be that my leg would twitch once every few days.
Over time, it progressed to the point where I couldn't sleep at all because of the shaking. Constantly. Every few minutes...
Now, it has calmed down slightly. It happens every night, but only a few times. It has settled somewhat.
I have never heard of anything like this, nor do I know where to even direct a question to get someone to reach out with an opinion or something...
I thought maybe it was RLS, because honestly, I don't even know how to put this into words.

Nicholas Davis4 said:In my opinion, this doesn't quite fit the profile of RLS, though I am certainly not a doctor.
To be honest, I'm not entirely sure; I have a friend who deals with RLS, but they never mentioned their legs shaking like this.
A neurologist would be able to give you a much more accurate assessment, of course, but from what I can tell, it doesn't feel like typical RLS.
Have you noticed any muscle weakness? For instance, does it feel like your muscles are fatigued, causing your legs to tremble whenever you try to lift them?

Sitting or lying down isn't the cause of RLS—it doesn't create the condition itself—it just acts as a trigger for the symptoms. In fact, the sensations are often most noticeable during periods of rest, especially when someone lies down and everything becomes still.

Well, I am waiting to see a neurologist.
In my sleep, around 3 or 4 AM, my legs just shake...
It isn't that I have this overwhelming urge to move them—not in the way you all describe it.
Instead, I’ll just lift a leg and it starts trembling.
I don't even realize it is happening, nor does it actually wake me up.
My feet, too—I noticed it last night, so I thought I would mention it here.
Perhaps someone else has experienced something similar...
I spend a lot of time sitting at work. I barely even get a chance to use the restroom.
Maybe it is all connected...
Waiting for my appointment.

Nicholas Davis4 said:If you don't feel that overwhelming urge to move your legs, then you aren't dealing with RLS.
You’ll know for sure when you get that sensation like your legs are about to explode or every single tendon is snapping under tension, forcing you to move just to find a moment of relief. Unfortunately, that relief is often just a fleeting window.
I actually hit my breaking point and practically forced my employer to approve my time off for a neurologist after suffering for years. It all came to a head when I was pacing my apartment until 4 AM for two weeks straight, barely able to function. That's when things finally reached a tipping point.
I'm not entirely convinced that foot pain is directly linked to RLS.
It sounds more like your arches are collapsing—something an orthopedist would handle rather than a neurologist.
To get an actual diagnosis and start proper treatment for RLS, you really need to see a neurologist.
Without the classic symptoms we all deal with, I'm not quite sure how you arrived at an RLS diagnosis yourself.
Simply moving your legs in your sleep can happen with RLS, but how can you tell if you're doing it intentionally because of discomfort, or if someone else is just telling you that you move? I suspect you'd have the specific symptoms that plague us, not just leg movement during sleep. People toss and turn or kick in their sleep all the time—I've always been a restless sleeper even before RLS, and that doesn't mean I have the condition.

My feet just won't stop aching. A massage is honestly the best remedy—but my husband is getting a bit tired of dealing with my feet constantly...
Ugh, it’s irritating. It isn't just that.
I don't feel the need to move them during the day—not usually—though sometimes at work from sitting too long...
Well, since I diagnosed myself, things feel a little easier, though not entirely. It still isn't quite right.
It can't be that I'm only twitching my legs while I sleep.
The only thing is that my feet hurt, so I could really use a massage.

Oh, and I was reading that iron plays a significant role here.
I've been anemic my whole life. Max was 4—it was much higher once, but it turned out those weren't mine &#128579😉.
Is it actually possible that an iron deficiency caused this?

Hello,
I have been shaking my leg (unconsciously) while asleep. My sleep quality remains normal—it doesn't seem to impact my rest or my daily life at all.
However, it is affecting my husband's sleep...
Has anyone else experienced this starting suddenly during sleep?
I am scheduled to see a neurologist in early April.

Morgan Palmer4 said:Regarding follow-up rehabilitation, does anyone have experience with spas specifically for rehab rather than just leisure? I've had both lower legs amputated—I'm currently using crutches—and my orthopedic surgeon recommended a spa retreat. I am torn between options in Colorado Springs or maybe somewhere near Denver... Does anyone have any insight? I would be grateful for any response...

I stayed at the facility in Colorado Springs and I have nothing but praise. If you go through Medicare, you are placed directly in the resort to undergo your therapies. I also used Medicare, though I was actually placed at the Marriott, where I did all my treatments.
The equipment at both locations is high-quality, and the physical therapists are wonderful (at the Marriott, there is a great guy working on magnetic therapy—I believe his name is 😉)...
The only downside is how crowded it gets—they’ll put 30 or more people in one pool, which feels a bit unsanitary. However, you can always pay for access to the private pools at the Marriott $5.00 and have a therapist available to assist if needed.
Therapy sessions run from 7:00 AM to 4:00 PM.
Oh, and the entertainment there is top-tier. I ordered a beer and noticed they were much more generous with the pour than expected—I ended up ordering two more because they serve much more than the standard amount for the same price 😂
Also, the prices in the local shops are outrageous. Even back home in the middle of summer, it isn't this bad. It's awful... that's why everyone ends up drinking there 🤣
Anyway, if you need anything else regarding the physical therapy...