Posts by Olivia Anderson10

vividsailor7 said:It’s definitely a rib.

Great, thanks a lot.

Vinogradska Hospital doesn't run copper tests, and Fran Mihaljević doesn't do ceruloplasmin—at least, that's what I found out when I checked.
Since I don't actually live here in Washington, D.C., it would probably be a lot easier if I could just get everything done at a single hospital instead of bouncing between two different places, especially since I'm not exactly great at navigating my way around the city.
I still need to check my rib.

Which hospital in Washington, D.C. would be able to perform both of these tests:

copper in a 24-hour urine sample and
blood ceruloplasmin?

Angela Wright said:I suppose there shouldn't be any real need to worry until November, but then again, knowing how I operate, I’d probably just go ahead and get it done privately as soon as possible. That way, I could have some peace of mind until November rolls around and I go back. It isn't exactly a pricey checkup for the kind of reassurance it provides.

That’s pretty much what I was thinking too. Thanks for the advice.

I finally went in for a mammogram after quite a while, and I’m feeling a little uneasy about the results: the native mammogram shows normal skin and subcutaneous tissue in both breasts. However, there is increased density in the fibroglandular parenchyma across all quadrants of both breasts. In the upper outer quadrant, within that fibroglandular tissue, they spotted a sharply circumscribed, slightly lobulated isodense mass measuring about 25 mm, which apparently looks mostly benign. No pathological microcalcifications were found. They did say I need to follow up with a breast ultrasound as soon as possible.

The issue is that my appointment for the ultrasound isn't scheduled until November, so I’m sitting here wondering if this finding is serious enough that I should just head to a private clinic now, or if I can probably just wait until November comes around.

I’m 42. A few years back, I had a mammogram too, and they found some tiny cysts, but nothing that required any actual intervention—they told me everything was fine at the time.

I’d appreciate some thoughts on this finding: We stimulated each ear using an acoustic "click" stimulus at an intensity of 85 dB HL. Responses were detected via electrodes placed over the CZ position. For the stimulation of both ears, we observed early acoustic potentials with regular latencies, but there was a reduction in the amplitudes of waves I through V bilaterally. This result suggests a neural lesion affecting both auditory pathways.

This is just one of the many tests I’ve undergone while trying to pin down a diagnosis for these abnormal involuntary movements in my arms, legs, and torso. It’s been quite a while since then, but maybe some of you remember me, vividsailor7.

So, as it stands, they've identified a hypersensitivity to electrical currents (I couldn't complete the IEEE testing because it triggered my involuntary movements) and now the AEP results (though I wasn't able to actually "hear" the maximum volume in the headphones).

A definitive diagnosis still hasn't been reached. I'm honestly at a loss as to what other tests I should even consider doing.

Olivia Anderson10 said:



These are the results from the endocrine workup I had done in my hometown. For the rest of the endocrine testing, I went to Washington, D.C., but they didn't actually order any specific tests for me there. They just told me to come back in six months with new findings for MRI, prolactin, TSH, T3, T4, HR, IGF-1, cortisol rhythm, SCORT, LH, FSH, E2-2-5 d.c., and anti-TPO. At the Mayo Clinic, my doctor mentioned that based on my current results, I don't need to worry about the pituitary adenoma; apparently, it isn't active, so we’ll just monitor the situation for six months without starting any treatment.
I have to admit, I’m feeling a bit let down because I really thought I’d be getting more testing done in D.C. right now rather than waiting half a year. I guess it’s just a little confusing—if that was the plan, why did my endocrinologist refer me to Washington, D.C. for testing in the first place?

I was also told that this adenoma definitely isn't what's causing the involuntary movements in my arms and legs.
I suppose I'm wondering which direction I should even head in to figure this out, since the cause remains a mystery. It has honestly turned me into a completely different person—listless, anxious, and depressed. I don't even have the will to leave the house most days; I almost wish I could just wake up a year from now and find everything back to normal. My biggest struggle right now is the anxiety and the panic attacks, including that sensation where I feel like I'm suffocating and can't catch my breath. I think I might need to reach out to a psychiatrist. I don't think I can handle this on my own, and I'm not sure how to help myself.

If anyone has any advice on what I should do, please let me know.

I forgot to include the thyroid ultrasound results: the exam shows the right lobe is somewhat larger, with a noticeably heterogeneous parenchymal structure in the lower pole. The dimensions of the right lobe are 8 (AP 16mm, ML 15 mm, and CC 50 mm). The left lobe measures AP 13mm, ML 16 mm, and CC 40 mm, with a homogeneous echo structure. The contours of both lobes appear regular, and the isthmus is intact.

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Posting this again in hopes that someone might weigh in. Thanks.

Olivia Anderson10 said:



These are the results from the endocrine workup I had done in my hometown. For the other endocrine tests, I traveled to Washington, D.C., but they didn't actually order any specific testing for me there. They just told me to come back in six months with new MRI results—specifically looking at the sellar and parasellar regions—along with PRL, TSH, T3, T4, HR, IGF-1, cortisol rhythm, SCORT, LH, FSH, E2 on days 2-5, and anti TPO. The doctor at the Mayo Clinic told me that based on these current findings, I don't need to worry about the pituitary adenoma; they said it isn't active, so we should just monitor the situation for six months without starting any treatment.
I have to admit, I’m feeling a bit let down. I really thought I’d be getting more testing done in D.C. right now rather than waiting half a year. Besides, if that was the plan, I guess it’s a little confusing why my endocrinologist referred me to D.C. for testing in the first place.

They did tell me that this adenoma definitely isn't the cause of my abnormal involuntary movements in my arms and legs.
I’m wondering which direction I should even head in to figure this out, because the cause remains a mystery. It’s changed who I am; I’ve become someone else entirely—listless, anxious, and depressed. I don't even have the drive to leave the house, and part of me just wishes I could wake up a year from now and find everything back to normal. My biggest struggle right now is the anxiety and the panic attacks—sometimes I even feel like I’m suffocating or can't catch my breath. I think I might need to see a psychiatrist. I can't seem to help myself, and I honestly don't know how.

If anyone has any advice on what I should do, please let me know.

I forgot to mention the thyroid ultrasound results: the exam shows the right lobe is somewhat larger, with a notably heterogeneous parenchymal structure in the lower pole. Dimensions of the right lobe are 8 (AP 16mm, ML 15 mm, and CC 50 mm). The left lobe dimensions are: AP 13mm, ML 16 mm, and CC 40 mm, with a homogeneous parenchymal echostructure. The contours of both lobes are regular, and the isthmus is intact.

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Could someone please give me their thoughts on my request?

Here are the results from the endocrine workup I had done here in my hometown. For the more specialized endocrine testing, I traveled to Washington, D.C., but they didn't actually refer me for any further tests there. They just told me to come back in six months with updated MRI scans (including pituitary), prolactin, TSH, T3, T4, HR, IGF-1, cortisol rhythm, SCORT, LH, FSH, E2-2-5 d.c., and anti-TPO. My doctor at the Mayo Clinic mentioned that based on these current findings, I don't need to worry about the pituitary adenoma; she said it isn't active and we should just monitor the situation for six months without starting any kind of treatment.
I have to admit, I'm feeling a bit disappointed because I really thought I’d be getting more testing done in D.C. right now rather than waiting half a year. Besides, if that was the case, I don't quite understand why my endocrinologist referred me to Washington, D.C. for testing in the first place. It feels a little unclear to me.

I was told that this adenoma definitely isn't what's causing these involuntary movements in my arms and legs.
I'm wondering which direction I should even head in to uncover the cause, since we just can't seem to find it. Because of all this, I feel like a completely different person—listless, anxious, and depressed. I don't even have the drive to leave the house, and honestly, I wish I could just wake up a year from now and have everything be back to normal. My biggest struggle right now is the anxiety and the panic attacks; sometimes it even feels like I'm choking or can't catch my breath. I think I probably need to reach out to a psychiatrist. I can't handle this on my own, and I don't know how to help myself.

Please, if anyone has any advice on what I should do, let me know.

I forgot to include my thyroid ultrasound results: The exam shows the right lobe is somewhat larger, with a noticeably heterogeneous parenchymal structure in the lower pole. Dimensions for the right lobe are 8 (AP 16mm, ML 15 mm, and CC 50 mm). The left lobe dimensions are: AP 13mm, ML 16 mm, and CC 40 mm, with a homogeneous echo structure in the parenchyma. The contours of both lobes are regular, and the isthmus is intact.

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I just found out I have a pituitary adenoma. I need to get some endocrine testing done, and I'm trying to figure out where to go—maybe Mayo Clinic or Johns Hopkins? If anyone has suggestions on which facility or even a specific doctor I should look into, I’d really appreciate it. Thanks.

Hi everyone, I really want to thank everyone who has stepped up to help. It feels especially necessary since I had another unpleasant experience yesterday evening. On Friday night, I had a mild episode. Out of nowhere. It started with this heavy sensation in my arms—running from my shoulders down to my hands—and after a few seconds, it felt like something was tingling its way up from my feet. Then came this sudden, involuntary, uncontrollable jerk of my entire body. I was sitting down, but it just tossed me right out of the chair against my will. I guess you could describe it like that feeling when you’re falling in a dream and you suddenly jerk awake. Or like when someone jumps out and yells "boo" at you and your whole body reacts instantly. My limbs just sort of went on their own. After that jerk, the tingling sensation in my legs stopped and actually seemed to recede back down toward my feet before vanishing entirely. There weren't any more spasms. I took some Xanax and went to bed. I was hit by this intense coldness and shivering. I could barely fall asleep. The night went okay, though I woke up a few times. Deep down, I was hoping this wouldn't happen again, at least not so soon. The last time was back in September, and the very first time was two years ago. This morning, I just feel completely drained, listless, and stuck in this phase of self-pity.
It might be totally irrelevant, but I should probably mention that yesterday I was in a room where a group of people were smoking marijuana. When I felt the smell becoming too intense and started feeling suffocated, I stepped outside for some fresh air, mostly because I was terrified that the scent might trigger another spasm. (When these episodes happened in the past, I actually was using marijuana—now I wonder how I could have been so foolish—and I assumed the weed was the cause, so naturally, I haven't touched it since. That's why today I'm even avoiding being near smokers just because of the smoke).
For context, I smoked cigarettes for about 20 years and finally quit on September 17, 2011 (which was when my second episode occurred).
To answer the previous questions: no one in my family, close or extended, has ever dealt with anything like this. No neurological issues at all. I'm 41 years old. I have a happy marriage and a daughter. Both my husband and I work; I work in an office. I don't have any major stressors in my personal or professional life. I can't say I dealt with much stress during childhood either. I did have surgery for endometriosis, which I monitor regularly. Because of the endometriosis (or so the doctors told me), I can no longer have children. About ten years ago, I had some nipple discharge from both breasts for a while, which was explained away as a common occurrence for women. It stopped on its own. I've had EEGs and a ton of other tests, all of which came back within normal limits—essentially, they said everything looked fine. I do have mitral valve prolapse, and I've been taking Ormidol 25 mg daily for about two years. I also deal with occasional tachycardia and arrhythmias. The only test I couldn't complete was the evoked potentials for my arms and legs, because the electrical stimulation triggered those abnormal movements, so we had to stop the test.
Thank you for easing my fears regarding the pituitary adenoma.
Because of that little episode yesterday, the fear surrounding those abnormal movements has pushed itself back to the forefront.
I'm starting to get nervous, depressed, and just lose all motivation because we still haven't figured out what is happening to me.
So, I truly appreciate every single one of your posts.

Maria Fisher46 said:Dear ma'am,

Your post caught my eye. Since vividsailor7, who you actually directed the question to, hasn't replied yet, I figured I’d jump in and offer my own take on these results (I've gone through some of your previous inquiries as well).

Based on everything you’ve mentioned regarding your symptoms in your previous posts, this MRI report—which suggests a microadenoma since it's under 10 mm—doesn't strike me as a likely cause for what you're going through.

I guess it would be best to just wait for the upcoming results—both the endocrine labs and the radiology reports—before anyone tries to make a final call on this.

In medical literature, pituitary adenomas are occasionally cited as a potential trigger for epileptiform seizures, though this usually involves much larger adenomas that expand toward the temporal lobe of the brain. There is also the possibility that significant tumors can essentially "crush" healthy pituitary tissue, leading to a deficiency in its hormones—including ACTH, for instance. This could potentially cause fluctuations in blood glucose levels or even drops in sugar, which might then trigger a seizure, but I guess that kind of thing is mostly documented in children rather than adults.

There is another possibility where a pituitary adenoma could be linked to some form of epileptiform seizures, though I suppose those are more theoretical possibilities and speculations. The idea is that certain types of pituitary adenomas cause an overproduction of a specific hormone called ACTH—that ACTH again! This hormone is crucial for how the adrenal glands function. Basically, ACTH triggers the release of cortisol, and if cortisol levels get too high, it could theoretically provoke seizures because cortisol can act on certain receptors in the brain, potentially triggering an episode. One study actually noted the presence of seizures in patients who had elevated serum ACTH and high cortisol levels in their 24-hour urine tests; once they received treatment and those levels normalized, the seizures stopped.

Honestly, I think this is mostly just speculation based on a few isolated, rare instances. In my view, this finding was likely just an incidental discovery made during the procedure because of some uncontrolled movements.

That’s about all I have to say on the matter.

Hello there. 🙂

I honestly want to thank you for your comment and all the effort you put in—I know it probably took quite a bit of work to sift through and address every single one of my questions.
You all have been incredibly helpful in helping me wrap my head around these brain MRI results. If it turns out that this adenoma isn't actually tied to the initial issues that sent me down this rabbit hole of testing in the first place—though I suppose you all think that’s unlikely—which direction should I be looking for further diagnostics? Also, what's the actual plan for this adenoma? Is surgery something that might eventually become necessary, or is it the kind of thing where you just leave it alone if it stays "quiet"? What are the long-term health outlooks here? I assume there will be ongoing monitoring, but what I’m really struggling with—mostly from a psychological standpoint since I'm already feeling pretty shaken up—is whether I can just go on living my life as if this adenoma was never even found. Can I accept that it's there but won't cause me any harm, or am I essentially carrying around a timed bomb in my head that could flip from benign to malignant at any moment?
Thanks again for the comment, and to everyone else who wants to chime in with their thoughts as well.

Brain MRI results: Using standard imaging techniques across three planes, the brain shows normal organization of the gyri and sulci, along with a healthy relationship between gray and white matter. There are no signs of ischemic lesions or hemorrhaging within the brain parenchyma. No focal expansive processes were detected. On FLAIR sequences, there are no signs of demyelinating lesions. The ventricular system appears normally positioned and sized. The optic nerve chiasm, cavernous sinuses, pontocerebellar angles, and craniocervical junction all look morphologically normal. Within the pituitary gland, there is a discrete elevated signal on both T1 and T2 sequences, measuring up to 3 mm, which is primarily suspicious for a pituitary adenoma. An endocrine workup is recommended, along with a dedicated pituitary MRI.
Here you go, vividsailor7, those are the findings. I’d really appreciate your take on this pituitary adenoma. Is this actually a tumor, and could it possibly be what's causing my issues? Just to remind you, my main symptoms are these abnormal, uncontrolled jerking movements in my body and limbs that just happen out of nowhere. Or is this adenoma just something they happened to stumble upon during the scan, and what does it actually mean for my overall health?

vividsailor7 said:That’s possible, but honestly, I’m letting the neurologist have the final word here.

Yeah, absolutely—the neurologist is really the one I'm listening to.
I just find myself hoping that the mere fact I couldn't get this specific test done isn't some sort of indicator for something serious.

vividsailor7 said:Specifically, I’m looking into getting a brain MRI now. What was the actual takeaway regarding the somatosensory evoked potential?
I don't recall asking if there were any similar issues or other neurological conditions within my family history, though.

Since it was just me and my sister there, her take was basically that I might just be overly sensitive to electrical stimulation—telling me not to worry and things like that. When she asked if there had been any similar cases like mine in the family, the answer was no.
I won't be heading to the neurologist until I've finished both the eye exam and the MRI.
As for family history, there haven't been any neurological diseases (parents, grandparents, or anything further back—my mom isn't sure, so we're assuming there isn't one).

I’m reaching out to vividsailor7 since I know his perspective, though I suppose any other specialist could weigh in here too.

I went in today to get an SSEP for my median and tibialis nerves, but I just couldn't handle the electrical stimulation. It was the exact same thing that happened when I tried electrical therapy for my back pain. The technician explained that my toes were supposed to react to the current, but instead, my entire leg started twitching, and then those spasms spread to my other leg and my pelvis—my toes didn't react at all. She tried one more time, but it was the same result. Basically, she triggered those abnormal spasms that are the whole reason I'm undergoing these tests in the first place. Then we tried the same thing with my fingers. My whole arm started twitching, very little movement in the fingers, but then my entire body and legs started spasming. I felt like I was in a "coma" because I was experiencing those abnormal movements again, and I couldn't even complete the essential testing. Now I'm spiraling into these dark thoughts that something is physically wrong with me. Even an hour after the appointment, I can still feel this "something" passing through my body. On October 20th, I have an eye exam for a fundus and Goldmann applanation tonometry, and on October 25th, I have an MRI. I'm honestly scared because I couldn't finish the test, and I'm wondering if the way my body reacted might actually point toward something specific.
I also saw a physiatrist, and he seemed genuinely surprised by how intense my reflexes were when he tested them with the hammer. He mentioned it was a bit strange to him, as he would have expected the opposite reaction, so maybe this does signify something....

vividsailor7, thanks for your input, if only your words were actually worth something!
I’d sign off on a diagnosis like that in a heartbeat, provided there isn't some physical cause behind it.
If my brain MRI comes back normal, I guess there won't be a happier person in the entire US than me!
When it comes to the psyche, it really is such a powerful force in this world—the way it can actually influence bodily movements, I've certainly seen that for myself.
I'll check back in once I have the results.

vividsailor7 said:So, here’s how this looks. The results seem pretty organized. Are you experiencing any issues with your period? If there are clinical indications, it probably wouldn't hurt to get an ultrasound of your ovaries and thyroid. I guess the only thing I would add to that is checking your electrolytes (Potassium, Sodium, Phosphorus, Calcium).

Thanks for taking a look at my lab results. Honestly, I feel a little bit better knowing you think everything looks okay. Regarding my periods, I actually had surgery for endometriosis about ten years ago—it was a laparoscopy where they didn't remove anything, just cleared out some adhesions and cysts. I stay on top of it with regular checkups, so that’s all under control. I do get occasional spotting that isn't tied to my cycle, but my gynecologist says that's pretty typical given my history with the disease. Earlier this year, I actually missed an entire period. I went through all sorts of tests to try and figure out why, but everything came back within the normal range. Eventually, my cycle just kind of reset itself and went back to being regular. Endometriosis has definitely played a role in infertility issues for me, too. I don't take any birth control pills, though, mostly because of my heart condition.
I’ve already touched base with my gynecologist about getting sent off for some tests to figure out if this might be related to my upcoming hormone changes. For days now—and maybe that's actually what's triggering these episodes—I've been dealing with these intense bouts of shivering. It hits me for a few hours at a time, whether it's during the day or in the middle of the night, and it feels like this deep, bone-chilling cold that I just can't shake. It's almost like I'm freezing from the inside out. Then, after a bit, it's as if my circulation finally kicks in and I warm up within a few minutes, only to have the shivering return again an hour later. It's pretty strange; people are walking around in short sleeves while I'm stuck sitting there in a heavy jacket just trying to feel normal.
I forgot to mention that I’ve been diagnosed with grade I-II mitral valve prolapse, so for the last two years, I've been taking Ormidol 25 mg every single day. I started it to help manage my heart rate, arrhythmias, and tachycardia. It seems like the medication has actually helped reduce the frequency of those symptoms a bit, I guess.
I'm still waiting on some more blood work to come back from the local clinic, so once those results arrive, I might be able to share them here with you all.
I've gone in for thyroid ultrasounds a few times now, and they've always come back within the normal range, I guess.
So, Sam is back from the city now, feeling completely depressed. We went out for a walk—just me, my husband, and the dog—and everything seemed fine at first. But then, at one point, it was like something just clicked inside my body. I don't know how else to describe it, but it was a literal click. Suddenly, this overwhelming weakness hit my legs, my arms, my entire body. My balance just went totally off, and it felt like I was either going to pass out or my legs were simply going to give out underneath me. I’m also getting these tingling sensations that sting in my hands and feet. My husband asked if we wanted to grab coffee, but I told him I was feeling poorly again, so we just headed straight home. Once we got in, I just broke down crying. This isn't me. I don't recognize this helpless person who feels so sick all the time. I’m crying because I feel like I’ve permanently lost my old life—that version of me that was happy, cheerful, and carefree. Now, this is just my new reality, and I honestly have no idea how dark things are going to get. Everything has just spiraled out of control over these last few weeks; it's affected my whole life and my entire family. I just want my old life back.
This depression is honestly killing me. Every once in a while, I’ll take 2 mg of Normabel just to try and trick my brain into feeling something else, I guess.
It feels like multiple sclerosis is constantly spinning around in my head, and honestly, dealing with the cramps on top of it is just killing me.
I know that by doing this, I’m only making things worse for myself, but honestly, it feels pretty impossible to resist.
I finally quit smoking after twenty years, and honestly, I’m not feeling any kind of withdrawal at all—no cravings or anything, not even a single urge to just have one puff.
It feels like my brain has just completely locked up from fear.
There is one thing I just can't wrap my head around. I don't mean that I'm constantly dwelling on everything that's going on with me—work keeps me busy, and I have good people around me. For instance, we were out walking today, laughing and having a great time; everything felt genuinely positive. At no point did it even cross my mind what was wrong with me, but then, out of nowhere, it was like a switch just flipped. Within a single second, I started feeling terrible. I'm not imagining things, either; I truly felt this physical weakness and a complete loss of balance. So, I didn't just think myself into being sick; it was actually happening.
I just don't get it at all, I guess

Thanks, wanderingcobra76

I'm 41 years old, and for the second time in my life—about two years apart—I've dealt with these abnormal, involuntary movements involving my arms, legs, and body all at once. They feel like sudden bodily jerks, and I stay fully conscious through it all. The first episode lasted about two days, coming in waves lasting several minutes each. This second one happened about ten days ago and lasted roughly an hour, also in waves of a few minutes. There was no stress or physical exertion involved; it just happened out of nowhere while I was sitting there. It eventually calmed down on its own.
Neurologist findings, EEG, TCD, and Brain CT: all clear.
EEG results: Mid-voltage cerebral activity shows an alpha rhythm of 9-11 Hz. Partial blocking is present. No asymmetry or paroxysms noted. HV remains unchanged. Findings are within normal limits.
TCD results: Visualization of the Circle of Willis and VB flow shows normal SBSK in all examined blood vessels, physiological circulation directions, and normal waveform signatures.
Brain CT results: Shows a normally positioned and appropriately wide fourth ventricle with normal absorption values in the infratentorial region. The third ventricle is medioponated supratentorially, and the lateral cerebral cortex is symmetrical. Basal cisterns and sulci are normal. Brain tissue density values are within normal limits. Bone structures of the neurocranium show no pathological changes.
Thyroid results:
T3 1.65 (Range: 0.89-2.44)
TSH 0.982 (Range: 0.350-5.000)
FT4 14.42 (Range: 9.00-19.5)
Anti TPO 9.64 H (Range: Bloodwork:
Total protein 71.0 (Range: 66-81)
Copper 19.3 (Range: 12.2-25.1)
Immunoglobulin A 1.65 (Range: 0.70-4.00)
Immunoglobulin M 1.64 (Range: 0.40-2.30)
Immunoglobulin G 9.9 (Range: 7.0-16.0)
Ferritin 28 (Range: 20-200)
Albumin 67.8 (Range: 58.0-70.0)
Alpha 1 globulins 2.2 (Range: 1.0-2.8)
Alpha 2 globulins 9.1 (Range: 7.0-12.0)
Beta globulins 8.3 L (Range: 9.0-14.0)
Gamma globulins 12.6 (Range: 8.0-17.0)
Albumin 48.1 (Range: 42-50)
Alpha 1 globulins 1.6 (Range: 0.7-2.0)
Alpha 2 globulins 6.5 (Range: 5-9)
Beta globulins 5.9 L (Range: 6-10)
Gamma globulins 8.9 (Range: 6-12)
CA 19-9, GICA CA 15-3 5.7 (Range: CA 125 32.4 (Range: CEA 1.29 (Range:
I still have an eye exam, SEP/SEEP, and a brain MRI left to do. I was wondering, is a 1.5T MRI sufficient, or would it be better to go to a specialist who has a 3T machine? If that's the case, I'd have to travel to New York City. The facility in my hometown only has a 1.5T, so I'm feeling pretty undecided about it.