Jessica Taylor62 said:Linda Campbell Please, try talking to the oncologist one more time before the radiation starts. Explain that Mom simply doesn't have an appetite and is feeling incredibly weak; beg them to prescribe some Ensure. In my experience, my mother turned a corner within a week just by using that supplement—her bloodwork actually improved—and she was able to push through her chemotherapy. She struggled with her appetite too, having to force herself to eat, but now she’s even managing to get up during the night to grab a snack. I am rooting for you all. Best wishes to everyone.
We gave the Ensure a shot, but since she doesn't have a stomach left, it didn't sit well at all. It seems the dairy content triggered some diarrhea (apologies for the graphic detail), so that's a no go. Regardless, thank you.
HELP NEEDED We just got back from the oncologist today. My mother starts chemotherapy this Tuesday; they’re calling them "milder" sessions—four cycles, three days each. Since they had to remove her entire stomach, gallbladder, and spleen, the doctors are playing it safe with chemo even though there aren't any visible metastases yet. It’s purely preventative at this stage. Please, if you have any advice whatsoever, I am all ears. Ever since such an extensive surgery, she has absolutely no appetite and everything she tries to eat comes right back up. She's barely eating anything at all. I AM ESPECIALLY ASKING FOR ANYONE WHO HAS NAVIGATED STOMACH CANCER AND CHEMOTHERAPY BEFORE. Thank you.
Angela Wright said:Look, I’ve already touched upon how my mother spent six months seeing a well-known bioenergy practitioner. To give you the context: she had a glioblastoma, underwent surgery, and because the prognosis was so grim, she refused radiation and chemo. Instead, she committed to an intensive four-month regimen with this practitioner, seeing her every single day for an hour at a time. After those four months, her MRI was absolutely spotless. She appeared and functioned completely normally—she was dusting closets and even traveling to places like Indianapolis, Aljmaš, Split, and Medjugorje just six weeks after her surgery. Because the sessions were expensive (though the lady offered to do it for free, which my mother declined out of sheer awkwardness), we scaled back to only the days the practitioner happened to be in the city, and even then, sessions were cut to just thirty minutes. Tragically, six months post-op, she suffered a recurrence. It’s impossible to say whether the treatments were insufficient or if the surgeon simply did such a flawless job that a recurrence was inevitable within that timeframe regardless. My personal take, based on what I’ve witnessed firsthand regarding other patients being healed by this woman, is that bioenergy does indeed work for glioblastoma. However, given how incredibly aggressive and malignant this specific cancer is, attempting to sustain daily, multi-hour sessions is physically and mentally exhausting for both the patient and the practitioner. The second hurdle is that it’s virtually impossible for a practitioner to provide the same quality of treatment to someone undergoing radiation. During the radiation period, nothing can be done; it's a total standstill. It isn't until several months after the final dose that a person can begin receiving remote sessions, and even then, they can only last about 15 minutes. Apparently, the radiation is so damaging that it causes the skin on the hands to crack and bleed. Regrettably, my conclusion is that when dealing with glioblastoma, everything you attempt is merely an "attempt." All real hope lies in clinical trials.
Could you please send me that woman's number via private message?
Casey Palmer5 said:Cinnamon just ends up irritating your skin.
Personally, I prefer mixing together juniper, cedar, lemon eucalyptus, lemon, cypress, rosemary, and sage...
I tried using cinnamon once and ended up needing medical attention; I couldn't even pull my pants on for four days because of the inflammation. For me, the real solution is a proper massage three times a week.
But that is precisely my point, dear. In just the last month alone, I’ve come across ten different price points for Beta-glucan on this forum. It is an absolute SHAM.
Amy Hayes28 said:Exactly, I didn't want to rush things and look foolish by missing a crucial detail, but honestly, this whole thing is beyond my comprehension! Today at the pharmacy, they told me it was practically unbelievable that (Beta-glucan 1.3 D 500 mg 90 capsules) could cost more than $50.00 somewhere!!
PEOPLE, LET ME REPEAT MYSELF. BETA-GLUCAN 1.3 D (THAT VERY SAME AMERICAN MANUFACTURER) COSTS IN INDIANAPOLIS JUST $50 FOR 60 TABLETS OF 500 MG EACH $190
[QUOTE=slyseal28;8260256]Ladies, I need some advice. My husband started radiation therapy on April 16th, and after his 8th session, we're seeing the first side effects—his platelet count dropped to 158, which is right on the edge. Last week it was 190, and two weeks before he started, it was 240.
Besides Noni, propolis, royal jelly, and maintaining a strict diet (all of which we are doing), is there perhaps some other "magic bullet" that might help him keep those platelets up? 😕
Maybe this is a silly question, please don't judge me.
Thank you all in advance for your replies, 😘[/QUOTE
If you look online, you will find plenty of information regarding Beta-glucan 1.3 D; the consensus seems to be that it is exceptionally effective at mitigating the various side effects caused by RADIATION.
Dear Ivanica! You are in my prayers; may God grant you and your husband the strength to endure this entire ordeal.[/QUOTE]
velvetmarlin18 said:Is this advice or personal experience? Prostate cancer is racing forward and has apparently spread to the bones. We're looking at metastases. We've received almost zero useful information from the doctors; frankly, it feels like they’ve already checked out on us. His general condition is deteriorating, and he has absolutely no appetite left. We are currently trying teas, noni juice, and reishi mushrooms. Is it safe for Lisa to start using Beta-glucan without consulting a doctor first?
Regarding Beta-glucan... In our case, we started giving it to my mother ten days before her surgery for stomach cancer—two doses of 500 mg. By the tenth day after the procedure, she began taking Beta-glucan on her own initiative. Since she doesn't have a stomach anymore, she just dissolves it in water and drinks it on an empty stomach in the morning. You have to understand, this is a polysaccharide; it isn't a drug or even a standard vitamin, so it shouldn't cause harm. We made sure to consult with both a nutritionist and the professionals at the pharmacy. From what I have seen firsthand, Beta-glucan was incredibly helpful for my mom. She still takes it to this day.
feralwolf24 said:Dive, please check your private messages. Reach out either here or via PM. I assume you’re navigating a difficult situation right now. Honestly, none of us could have ever envisioned something like this happening to my husband. It wasn't even a remote possibility in our minds. To me, his diagnosis of gastritis felt like a massive deal at the time. When they took a biopsy, I was certain—and I mean absolutely certain—that they were just testing for some common bacteria. It didn't even cross my mind that it could be anything else. The people on this forum have been an indescribable lifeline for me. Even just having someone clarify medical jargon that doctors tend to gloss over is an enormous help.
It wasn't even a thought for us, either. We spent the entire time convinced it was just gastritis. Please get in touch. I stepped into this myself last month following my mother's diagnosis, and I can tell you that the information I gathered was invaluable. I actually used Linda Campbell's posts to help navigate my mother's surgery. We still stay in contact; whenever I need guidance, I reach out. It makes things much easier when you can consult with someone who has already walked this exact path.
Anonymous said:feralwolf24, your post actually drove us to go get some more precise testing done—specifically a gastroscopy. The truth is, there were no signs at all :-(. Just exhaustion, frayed nerves, and that distinct scent of livestock. I hadn't noticed anything before. On top of that, my husband is battling cancer :-(. I can hardly wrap my head around what’s happening right now. The biopsy results just came back today. We are completely lost. Where do we even turn? Surgery is being discussed... my God, what is this happening to us??!!! I only joined this forum because I don't even know how to express my gratitude. I honestly can't tell if I should be relieved that we finally have answers or if I'm just so overwhelmed I want to lash out at someone. Forgive me, I am completely losing my composure.
Please, do share what you've found out. We have all navigated these dark stages ourselves; we will support you with whatever knowledge and strength we can muster.
Jesse Fowler82 said:Listen, everyone deserves to feel supported when they face a devastating illness. When someone gets hit that hard, it feels like the entire world has turned its back on you, and that kind of abandonment hurts more than the physical pain. At 35, I found myself facing a permanent disability, and honestly, it feels like every ship I ever sailed has sunk. Everyone loves to offer platitudes like "just fight, and everything will be fine," but that’s easy to say from the sidelines. Who knows? Maybe I’ve even missed my chance with this forum, because right now, I don't see a single straw left to grab onto. By the way, while the physical setback isn't life-threatening in a strictly medical sense, the impact on my intimate life has been incredibly jarring. To put it plainly, I had an ileostomy performed—essentially a total removal of the large intestine. I am forced to wear a bag for the rest of my life, and even though it’s been a month since the surgery, I haven't come to terms with it. My girlfriend left me, my friends look at me with that suffocating pity that I absolutely despise, and my family—well, family is complicated; they try to be objective, but their subjectivity bleeds through. It’s a bitter pill to swallow when you see healthy people around you who have essentially abandoned you because of a physical flaw, leaving you feeling utterly isolated. I’ve been spiraling into depression lately, and frankly, I’m not sure if I’ll pull through, though I am fighting. The worst part is knowing I’ve limited my ability to build what I wanted most: a family and true happiness. I have this gut feeling that people find this condition repulsive, especially women. That thought—"who would ever want me like this?"—is haunting. Fine, I’ll stay alone if I have to, but I ask you, what kind of life is that?
Regarding medications, I’ve been following the discussions above. There is one exceptional supplement that you can't pick up at a local pharmacy here in the States, but you can order it from abroad; it’s called Shilajit, and I highly recommend it to anyone. I know people who have used it consistently, and it seems to have significantly extended their quality of life. If you need any specifics on how to go about it, let me know.... You can find more information about it at www.evalar.ru
Man, tell me more about this Shilajit or just shoot me a private message. I'm grasping at straws here.
Angela Wright said:You can find everything you need to know over at www.hedera.hr, including various testimonials from people facing all sorts of different diagnoses who have used Propolis.
My mother is doing terribly. She does nothing but sleep. We can barely wake her enough to get a meal down. I believe the end is very near. It’s hard to describe, but there is this strange, heavy sense of peace surrounding her.😳
I am profoundly sorry; I can only begin to imagine the weight you are carrying right now. Please, stay strong. There are no universal rules when it comes to these things. I am sending you every ounce of strength this world has to offer. Truly, I must thank you—I have learned so much from you.
"I have learned that everyone wants to live at the summit of the mountain, forgetting that true happiness is found in the climb itself. ... I have learned that when a newborn grasps its father's finger, you hold on forever. I have learned that a person only has the right to look down upon another when they intend to help them rise." Gabriel Garcia Marquez
coppergardener said:My dad was diagnosed with lung cancer this week. It’s grim. I don't have the exact diagnosis yet—I need to go through the paperwork—but he started chemotherapy yesterday. The real issue is that I feel completely lost when it comes to nutrition for cancer patients (the irony is thick; I used to consider myself a semi-professional nutritionist). Does the diet depend on the specific type of cancer? We bought him some Noni juice, but if anyone knows anything more substantial, please let me know. The prognosis isn't great, and frankly, I have my doubts about this chemotherapy, so I refuse to leave anything to chance. If you have any supplement recommendations, please include an approximate price. I want him eating as naturally as possible, but his appetite is abysmal. What’s your take on Taheebo with inulin? It’s loaded with antioxidants, omega-3s, and so on, but I’m paralyzed by choice.
I’ve read that the diet should be high in protein, but without heavy animal fats? Is low-fat cottage cheese okay? Goat milk? What works?
BTW, I stumbled upon a dietary regimen online used by someone fighting a brain tumor (Glioblastoma multiforme stage IV)—is this kind of approach applicable to all cancers, or is it specific? Here it is:
Take Three 750 mg Shark Cartilage three times a day Take a Borage Oil and CoQ10 supplement Drink plenty of water Try to get light exercise, walking is best Get some sunlight I also rubbed Young Living Frankincense Oil on his head daily
The AIM Garden trio (BarleyLife, Carrots & Beets) Graviola Tincture - 5 drops 3 times a day
>>> What do you think? Has anyone actually tried this? Is it some variation of the Budwig method, or something else entirely?
Also, this mentions Q10, but isn't Q10 essentially Vitamin E, and isn't high-dose Vitamin E potentially carcinogenic? Is it even worth experimenting with? And while I know sage can help stimulate appetite, given its supposed mild estrogenic effects, is it safe to consume in small amounts?
Good grief, how does anyone endure this? I’ve spent the entire week vomiting and crying (I was already dealing with a mountain of issues before this, and now this—it feels like someone upstairs is testing our limits). I am praying for him and for myself. To make matters worse, I try to put on a song or a movie I love, but I can't even make it halfway through. A person just goes numb after a while, doesn't she? I know, I'm definitely spiraling right now, but those platitudes like "keep your chin up," "think positively," or "just live your life" feel counterproductive, maybe even psychologically dangerous... I know you aren't supposed to give in, but it's not like you can just switch channels on a TV. Puffffffff😢 Isn't there a remote control for this?
p.s. Thank you and greetings to everyone contributing to this forum.
I know things are incredibly hard for you right now. When I heard about my mother's diagnosis, I got my period and it hasn't stopped for 20 days; I was vomiting for days, dealing with diarrhea and hemorrhoids. The stress is absolute madness! But listen to me: don't let him see you like this. You have to stay strong for him and for yourself so you can step up and manage everything. This is a long, grueling fight. My mother watched our every move; if we looked sad, she immediately assumed her lab results were bad. As for your father, just ensure he eats well and nutritiously, because chemo will drain him completely. You MUST look up Beta Glucan 1.3 D. online (Price for 60 capsules of 500 mg...$190 My mother used it back then, and she still relies on it today. And if you're looking for something similar—take a look at Brokulin tablets. Apparently, they’re quite effective and great for stimulating an appetite. That’s what a nurse told me once.
We haven't observed anything out of the ordinary regarding my mother's behavior, aside from the specific symptoms I previously detailed. However, I am convinced that a person's constitution and their level of chronic stress play a massive role here. My mother’s life has been an unrelenting series of hardships. Her father was murdered and tortured during the very year she gave birth. Following that tragedy, she was essentially cast out by her own mother, forced to fend for herself as a child alongside her older sister while living with distant relatives. She grew up without parental guidance. Her father spent his life struggling with alcoholism, leaving her to raise the three of us entirely on her own. Between the factory job, managing the house, raising children, and tending the garden, she consistently placed herself at the bottom of her own priority list. She never indulged herself once. She wouldn't dream of causing a confrontation with a stranger, let alone a neighbor or—heaven forbid—a family member. She lived in a state of perpetual anxiety and worry. She was always cooking, cleaning, and providing for everyone. And it wasn't just us; it was everyone. Extended family, friends... she took care of everybody. She suppressed all her emotions—her anger, her rage, her actual opinions and thoughts—deep down inside. There is a significant history of cancer in her family, and all of her siblings share this exact same temperament. In my estimation, life simply broke her, and it had to manifest somewhere. It manifested in her stomach.
Angela Wright said:Well, hopefully things turn out alright then.👍 She really ought to start taking Native Propolis in heavy doses immediately if she wants to endure chemo without constant misery. To make it easier on her digestion, just open up the capsules and mix the Propolis into an AB culture in a bowl; let her stir it thoroughly with a spoon. That is how I manage my mother’s regimen, since swallowing pills has become such a struggle for her. I have actually noticed something interesting regarding my mom—she has absolutely no bad breath in the morning, even though her dental health is quite poor. It seems to me that the Propolis has done wonders for balancing her oral and stomach flora.👍
Could you please explain exactly what this Native Propolis is good for? I am uncertain if it is safe for my mother, given that her stomach has been removed. She would need to check with her doctors first. She can have honey, but only in very small amounts. She is incredibly frail following the surgery. How is your mother doing? Is there any sign of improvement?
I suppose it’s time I added my own perspective to this grim discussion. My father passed away from lung cancer. The symptoms? Virtually nonexistent. Then, out of nowhere, he felt this dull ache under his right arm and started running a fever. By the time we actually caught it, the cancer had already spread through his bronchi and lymph nodes. My mother’s experience was a similarly frustrating ordeal. She suffered from pain in the upper right side of her stomach, accompanied by sudden bouts of weakness and sweating that would pass quickly, along with diarrhea. We initially assumed it was just gallbladder issues or perhaps kidney stones. Her doctor essentially stalled us for six months. Last year, she kept putting her on strict diets, prescribing things like Pepsi and Reglan—just a series of useless distractions. Even when we pushed for imaging referrals, the doctor refused. Since last fall, her labs have come back perfectly fine: blood work is normal, renal ultrasound is clear, gallbladder looks fine, and even the tumor markers were within range. You could look at those results and swear nothing was wrong, yet she felt terrible. Interestingly, she still had a healthy appetite, ate well, and wasn't nauseated by anything. She was even out riding her bike and working in the garden. Finally, an ultrasound showed some gastritis, so she saw an internist who took a biopsy. It turned out to be gelatinous carcinoma of the stomach. Everything else looked pristine on paper. Once they performed the surgery, they had to remove her stomach, gallbladder, and spleen. They took the gallbladder and spleen because they had become adhered to the stomach, though pathology later confirmed they were completely healthy. Her lymph nodes were clear too. It remains utterly baffling to me how not a single tumor marker flagged any of this.
I have an appointment scheduled with the oncologist next Saturday. It looks increasingly likely that chemotherapy will be the next step on the agenda. Based on the latest scans, there isn't a trace of the tumor left anywhere else; everything appears clear. The lymph nodes, intestines, and even the bile ducts and spleen—all of which were previously affected—show no signs of it. The tumor was strictly localized to the stomach.
Angela Wright said:He probably just told her what he "could" do. Only time will tell if those efforts actually bore fruit. It’s a harrowing situation, I know😳. Has anyone actually given her a clear roadmap for nutrition yet—what she can eat, what to avoid, and so on? How is her physical state right now? Is she able to walk?
She’s doing okay. Since it’s been 15 days since the surgery, she’s getting up on her own, heading to the bathroom, taking short walks, and things of that nature. However, they weaned her off the amino acids and glucose two days ago, so she’s feeling quite weak at the moment. She arrives at my place tomorrow. They gave her a tiny bit of guidance regarding her diet (very, very little), so I’m mostly navigating this myself—gathering intelligence from our own community here on the forums! Together, we are stronger.
My mother is heading home this Friday, coming straight to my place so I can look after her. She’s had half her abdomen surgically addressed—specifically her stomach, gallbladder, and spleen. When I spoke with the doctor, he essentially gave me the bare minimum, summarizing the procedure by saying they only removed a portion of the stomach. He basically told me he was giving her only as much information as she could emotionally handle, and suggested we shouldn't mention certain other test results... even though everything else came back perfectly clear aside from the stomach area. I honestly don't understand this practice of withholding the full details of a procedure. Should she not know exactly what happened so she can be more careful moving forward? Or is it simply because every individual has a fundamental right to know exactly what doctors have done to their internal organs? My mother is an incredibly brave, resilient woman; she remains exceptionally steady on her feet and fully understands that she has faced stomach cancer. So, you tell me, where does the wisdom lie in keeping her in the dark?