Posts by Megan Williams6

Angela Wright, you have such a beautiful soul that I am practically paralyzed with happiness just knowing people like you exist. Honestly, I used to think someone like that was impossible... You radiate such positivity that I don't even know how to put it into words... It all comes down to one thing: I love my mother so deeply that I can't bear the thought of her passing while I'm still here... And because we are so close to that diagnosis, I feel like I’m walking along the edge of the Petronas Towers—the highest point imaginable—just waiting for a gust of wind to finally carry me where I need to go... Life would be so wonderful if this monster hadn't attacked my mother. Just last year, we were swimming in the ocean and enjoying everything; life was perfect, and then this happened. If only it had targeted me instead (and actually, I have an MRI scheduled for June 10th), but instead, it went after the person I love most in this world—my mother... As for me, I'm just done. I am so incredibly angry that even a hundred cancers couldn't break me. I almost want to call them out: "Come on, come on, I'm right here! Let's settle this." Those cowards can't touch me; I'm practically waiting to face them just so I can destroy them myself... But it's a completely different story when you're the one fighting it, or when it's someone you love—people just don't want to listen. If it ever comes for me, I plan to starve it out... So, ask me more if you want... through fasting, the body consumes everything—first the foreign invaders like tumors, then the fat, then the muscle, and everything else it can find. I don't mean to be tedious, but I know what I'm doing, though it's hard to convince my mom to follow suit... she's 83 years old... and she doesn't exactly take orders from me anyway, so implementing a different diet is tough. We're doing a fruit and vegetable blend three times a day to boost the immune system and all that...🤷

It would probably be best to just remove everything, but I honestly don't know if my mom could survive that. Aside from the uterine sarcoma, she’s apparently "missing" a chunk of bone on her right hip because the tumor ate right through it. They say there's only about 4-6mm of the "acetabular roof" left, which means her entire hip joint is at risk of collapsing. If that's the case, how on earth are they supposed to take out the tumor while actually saving any bone? It’s all getting incredibly complicated... I just don't know, 🤷

I was also wondering if it's possible to take a tissue sample from the uterus for a PhD analysis using something like a needle or a similar method, without having to undergo surgery or being cut open on an operating table, just so we can finally figure out what we're actually dealing with.... Thanks so much.🤷

I want to thank Angela Wright for the support; you’re absolutely right that this isn't just some "women's issue." My mom is dealing with it in her pelvic bone too, which is putting her hip joint at risk—that part has nothing to do with gender. Her previous scans suggested a uterine sarcoma, along with an expansive, infiltrative lesion in her right iliac bone where the etiology hasn't been established yet... Or, the other theory is that it's an osteolytic lesion, but that they aren't actually related—meaning the myoma could have been there forever, which most women deal with anyway. Both my mom and I are terrified of any kind of surgery, partly because of her age, but also because she’s still mobile, even if she limps. If she ends up stuck in a hospital bed, who knows if she'll ever stand on her own two feet again. But if that biopsy—the one needed for the PhD analysis—has to be done right on the operating table, then we’ll just have to brace ourselves for that... even if they might be able to take a sample from the side using a needle.😕

I have a question—my mom had an MRI that showed an expansive lesion in her uterus without infiltration, and after an ultrasound, her gynecologist initially said it was just a uterine "leiomyoma" and everything seemed fine. However, a few days after her CT scan, the radiologist suggested that, pathomorphologically speaking, it likely corresponds to a "Leiomyosarcoma." I'm wondering what the term "pathomorphologically" actually means in this context, and which imaging test is more effective for this kind of diagnosis: MRI or CT? Thanks.

I’ve heard there’s a medication for Leiomyosarcoma called "Yondelis," but it’s incredibly expensive and almost impossible to track down here in the States. I wanted to ask if anyone knows how it's typically administered—is it given before surgery to shrink the tumors first, or is it used after the tumors have been removed? My mother isn't really a candidate for surgery... she's getting older, and the procedure would likely be too much for her body to handle. We're really hoping to find something that can block or reduce the tumors if that's an option...😕

Thanks for the reply and the recommendation. Where could I go in Indianapolis to get a PhD analysis and a tissue biopsy done urgently (perhaps privately)?

Is it actually possible to have a diagnosis of "Leiomyosarcoma" when all my gynecological results were perfectly fine? I’ve seen two different gynecologists now, and both gave me clean cytology reports. One doctor just recommended routine follow-ups, while the other suggested checking back in six months. My CIN levels are fine, my Pap smear showed no abnormalities, and they wanted me back in a year. Their clinical diagnosis was basically inconclusive regarding malignancy—both doctors concluded it was just benign intramural uterine leiomyomas. That was only two months ago, and everything from the MRI to the ultrasound looked normal. But now, after a recent CT scan, a radiologist is suggesting it might actually be "Leiomyosarcoma." From what I can tell, my uterus hasn't even grown significantly in these last few months; it’s stayed right around 100x90. My tumor markers are fresh and normal, and my mammogram was clear too. If it's a sarcoma, that means it's a malignant tumor, yet my gynecologists were adamant that it was benign...😕

Hi everyone! I have a quick question: in the event of a Leiomyosarcoma diagnosis—specifically regarding sarcoma—should tumor markers be elevated, or are they typically only increased in cases of carcinoma? If anyone happens to know the answer, I would truly appreciate it. 😕