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Posts by Drew Harris42

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REDDIT - Fresh updates on the Bill & Melinda Gates Foundation website

We just launched a new Reddit community on our official site. It’s a space where you can swap ideas, fire off questions, or just dig through the FAQs to find what you need.

As of yesterday, our site finally has the discussion board so many of you have been asking for. Starting today, you'll see medical pros, people with firsthand experience, staff, and volunteers all jumping into the mix.
At the end of the day, you guys are the ones running the show. You create the threads, ask the tough questions, and expect real answers. We hope you actually use this to grab some expert advice, vent, or just help us make the Bill & Melinda Gates Foundation even better through active participation.
Welcome to the community!
Drew Harris42 said:It’s all fun and games until you realize you don't live in America where the system actually works to get you help fast. How exactly does the VA supposedly find bone marrow or stem cells? Maybe they just grab some from a cow out in the pasture? 🙂 The whole point of these registries—including the ones here in the States—is to link up with the global Department of Defense database. The odds of finding a match anywhere in the world are 1 in 100,000.
Also, if someone is genuinely terrified of needles or anesthesia, they can always just donate stem cells instead. No anesthesia required, and the needle used for a vein is tiny.
And heaven forbid you actually need this kind of life-saving help one day; I bet you'd change your tune real quick. You can't just go out and buy bone marrow or stem cells like they're groceries—people have to donate them!

Oh, I forgot to mention: Americans have already saved three lives by donating bone marrow to people overseas in England, Austria, and Germany! 👍
Alexander Lewis said:Look, I think it’s worth pointing out that, just like it usually goes... They're just trying to downplay the pain and the fallout from medical procedures. Why even bother being honest?When you donate bone marrow, they have to pull it right out of your pelvic bones. They use this massive, thick needle that looks more like a drill than medical equipment just to get through. Why do you think they use total anesthesia? Because driving a cell extractor into your bone is brutal, and there’s no way that much trauma is actually helping your tissue or bone health on the way in. Some places try to get by with local anesthesia and sedation, but honestly, who wants that?

Ask any anesthesiologist and they’ll tell you the same thing: general anesthesia is no joke. It comes with real risks and consequences. A lot of people wake up feeling absolutely trashed, and you even get those "minor" issues like throat or lip injuries from the intubation. It doesn't happen constantly, but it happens. And yeah, there's always the chance someone just doesn't wake up. Sure, the odds are slim, but let's be real—general anesthesia isn't exactly "healthy" for the body, is it?

Plus, pulling bone marrow is still surgery. There’s always that risk of infection—anything from a minor setback to life-threatening. It makes me wonder: has anyone actually conducted an honest, unbiased study on the long-term fallout for donors? Or is everyone just too eager to check a box and claim everything is fine once the transplant is over?

Look, some scars stick around. Some people don't care, others can't stand it. It’s all relative, isn't it?

Don't worry, I know if I ever actually need help, I won't be getting it from Medicare—not that I live there or pay into their system anyway. Honestly? It’s a relief. I live in a country where I can get what I need quickly and efficiently (well, as efficient as modern medicine allows these days, which isn't exactly winning any awards). No begging, no bribing, no nothing. Once, when I actually needed medical attention here, I got treated in two days for something that would take months back home. Did it even help much? Who knows. But the deal here is simple: you pay your monthly premium, and you're covered. You want care? You get it. Period.

If I lived in America, I highly doubt I’d ever get decent or timely medical care. How does it even work over there? It’s always the same story—some well-connected jerk gets pushed to the front of the line, someone's cousin gets special treatment, or some rich guy just buys his way to the top of the list. Why bother being honest when you can just pay your way through?👎 So you're gonna call me up and ask me to donate my heart just so some guy in a corner can swipe a blue envelope? As if he could swap my heart out for someone else's and still have enough time to lounge around the breakroom sipping coffee instead of actually doing the job he’s being paid for? Seriously?👎

Must be nice living in America where you get instant help from VANI without any hassle. I’m dying to know how they actually manage to source that bone marrow or those stem cells... what, do they just milk it out of some goats or cows?🙂 The whole point of having the Registry—and the American one too—is to sync up with that global BMW database. It gives you a 1 in 100,000 shot at finding a matching donor somewhere in the world. Isn't that just great?
Look, if someone is actually that terrified—needles, anesthesia, all that stuff you mentioned—then they should just donate stem cells. There’s no anesthesia involved, and the needle used for the vein is about as tiny as it gets. What else are you going to do?
God forbid you ever actually need help like that to save your life. You’d be talking a lot differently then, wouldn't you? Besides, you can't just go out and BUY bone marrow or stem cells—that kind of money doesn't exist. People have to donate them; you can't just shop for them like they're at a grocery store!!!!
Angela Wright said:Look, just ask them directly and make a suggestion.👍

If you showed up early to one of the Foundation's blood drives hoping to get typed, good luck. It’s an organizational nightmare trying to dig through 20,000 untyped samples just to find yours. All those tubes are sitting in medical freezers, and the Foundation processes them chronologically as they raise enough funds to cover the testing.

If you aren't in the registry yet but want to be, head over to the Mayo Clinic at 12 Main Street. You can provide a sample there and pay the Mayo Clinic directly for the FDA typing. For more details, give the National Bone Donor Registry a call at 23 88 746.
electricharbor16 said:Is there anywhere in Providence where I can donate blood and get signed up as a stem cell donor? I asked at the transfusion center a couple of months ago, but they looked at me like I had just dropped in from Mars.

You can join the National Bone Donor Registry at the Mayo Clinic, located at 12 Main Street—they're open weekdays from 9 AM to 2 PM. You can also find them at events hosted by the Ana Rukavina Foundation. We post all our upcoming drives on the Foundation's website www.zaklada-ana-rukavina.hr.
Bone Marrow Donation in Health ·
The Ana Rukavina Foundation wants you out at Times Square on September 15th for World Lymphoma Day. We’re teaming up with the Leukemia & Lymphoma Society to host a few things: - info booths running from 12 PM to 6 PM - registration and blood draws for HLA typing from 2:30 PM to 5:30 PM - and a talk on lymphomas over at the Cultural Information Center at 5 Preradović Street starting at 6 PM.
If you have any questions about the foundation, just ask. I’m an activist for the organization, so I’ll give you the real scoop.
The Anne Hathaway Foundation wants you to show up for World Lymphoma Day on September 15th. We’re teaming up with the Leukemia & Lymphoma Society right in the middle of Times Square to make things happen. Here's the plan: - Info booths will be running from 12 PM to 6 PM - We're doing donor registration and blood typing from 2:30 PM to 5:30 PM - There's a lecture on lymphomas over at the Cultural Information Center, located at 5th Avenue, starting at 6 PM. SHOW UP AND BE A DONOR.
Charity & Fundraising Megathread in Health ·
Hey everyone,

On behalf of a group of friends fighting for our dear friend Irene, we’re asking for any donations you can spare to help fund her life-saving surgery.
Irene (born Nov 1, 1986) is battling leukemia, and finding a bone marrow donor is her only real shot at survival.

She was first hit with AML back in early 2008, spending six months fighting through treatment at Mayo Clinic before undergoing an autologous stem cell transplant in August.
Now, in March 2009, the disease has come back even worse as biphenotypic ALL. The only way out of this nightmare is a bone marrow transplant from an unrelated donor—which, because of the high risks involved, has to be done abroad in Munich as soon as possible.

Since this kind of transplant,
finding an international donor, and the subsequent care is incredibly expensive—we're looking at roughly $330,000—we’re hoping to raise the funds through these donations along with some benefit concerts and charity games to get her healthy again.

You can send donations directly to the dedicated account #2340009-3102647184 at Chase Bank.

For those of you outside the States, you can use these details:

Foreign Account: 20171149472
IBAN: US40 2340 0093 2064 9572 3
SWIFT: Chase Bank N.A. CHASEUS33

Thanks for everything. We really appreciate the support for Irene and her family.