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Endometrial Adenocarcinoma diagnosis and outlook

Started by Karen Smith34 · · 👁 6 views · 5 replies

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Participants Karen Smith34Angela Wrightmelloworca6cosmictinker19
Karen Smith34 Karen Smith34 NewcomerOP
5 messages
joined Jun 2013
#1 ·
I’m writing this while feeling pretty overwhelmed, so please excuse any typos or weird grammar.
I might have missed it, but I haven't been able to find anything on these forums about my specific situation.
So, here's the deal: after several months of irregular bleeding—sometimes it was super heavy, other times nothing at all, followed by this odorless pinkish-brown discharge—my Pap smear came back mostly normal, though there was a tiny hint of "atypical cells."
To get straight to the point: the results from my recent D&C confirmed endometrial cancer. I'm heading to the hospital this Wednesday, and I'm hoping maybe they'll perform the surgery by Friday. They're planning to remove my uterus and both ovaries. Either way,
I'm having moments where the shock just makes it hard to breathe. I'm 50, and I've always been healthy—well, except for one D&C about eight years ago due to endometrial hyperplasia. Based on what I know, I shouldn't be in a high-risk group since I'm under 55, I'm not overweight, my blood pressure is fine, I don't have diabetes, and there's no history of this in my family.
Has anyone gone through something similar (especially if you've dealt with the medical system in Cleveland)? Any advice at all? Thanks so much.
Karen Smith34 Karen Smith34 NewcomerOP
5 messages
joined Jun 2013
#2 ·
Honestly, one thing that’s actually making me feel a bit better about my story is realizing that nobody else here has had to deal with this awful experience—and I really mean that, it's not sarcasm—even though I guess I was kind of hoping for a little bit of comfort. (thanks, Barbara)
It doesn't matter, though; I've made up my mind that this illness isn't going to run my life. In a few days, they'll get all of this out of my system, and after that, I'm going to be a healthy woman again. I'm really trying to stick to that decision.
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#3 ·
Karen Smith34 said:Honestly, what brings me a bit of comfort in this whole situation is that nobody here has had to go through this nightmare—and I’m being dead serious, not sarcastic—even though I was secretly hoping for a little bit of sympathy. (Thanks, Barbara)
It doesn't matter, though. I’ve made up my mind: this illness isn't going to run my life. In a few days, they're going to cut all of this out of me, and once it's gone, I’ll be a healthy woman again. I am sticking to that decision with everything I've got.

As long as everything can be surgically removed before it breaches the abdominal cavity, you're looking at a stroke of luck that usually leads to a positive outcome.
Your mindset is exactly where it needs to be. It's healthy. Never, under any circumstances, let a diagnosis take the wheel of your life. You are the boss of your own body, and you'll do whatever it takes to get things back under control.
Stay strong and just keep pushing forward.
For more info on treatments and prognosis: http://www.mayoclinic.org/diseases-conditions/uterine-cancer/symptoms-causes/mcw-20378661
Make sure to log in to the association's forum too. There is a huge turnover of people dealing with a diagnosis, so you are bound to find someone currently fighting the exact same battle.
Karen Smith34 Karen Smith34 NewcomerOP
5 messages
joined Jun 2013
#4 ·
Angela Wright said:If everything can be surgically removed without it spreading to the abdomen, that’s honestly such a blessing—it usually leads to a much better outcome.
I think your perspective is really healthy and positive. You shouldn't let this illness dictate how you live your life. You're in charge of your own body, and I know you'll do whatever it takes to get things back under control.
Hang in there and just stay brave.
For more info on treatments and what to expect: http://www.mayoclinic.org/diseases-conditions/uterine-cancer/...
You should also check out the association's forum. There's always a huge rotation of people dealing with similar diagnoses, so I'm sure you'll find someone going through the exact same thing right now.

Thank you.
I'll jump onto the forum once I'm back from the hospital. Right now, I just don't have the patience for anything else—I'm honestly just ready to get this surgery over with.
melloworca6 melloworca6 Regular
551 messages
joined May 2010
#5 ·
I can't really offer you any advice here. But I hope everything works out for you. 🙂
cosmictinker19 cosmictinker19 Newcomer
1 message
joined Nov 2020
#6 ·
Hi everyone,

My mom was just diagnosed with grade 2 endometrial adenocarcinoma. She's heading in for surgery soon, so I was wondering if anyone here has gone through something similar? I'm curious about how long the procedure usually takes and what the recovery process is like...
We're really hoping it hasn't spread, but we won't know for sure until after the surgery is done.

Thanks in advance for any insight you can share.

cosmictinker19

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